inspiration — Invisible Disabilities Association

2012 Online Disability Expo Now Available Through December 26

IDA Receives “Best Booth Award” for Allsup’s Disability Expo

January 23, 2013 by admin Leave a Comment

Press Release

IDA Receives the “Best Booth Award” for Allsup’s Disability Expo

Parker, CO – January 23, 2013. The Invisible Disabilities Association is thrilled to receive the “Best Booth Award” for Allsup’s True Help® Disability Web Expo. The free, online expo was held on September 27, 2012 and available on-demand through December 26th.

15 non-profit organizations were invited by Allsup to participate in the event. IDA presented 6 Video Interviews and LIVE chats with our experts. We also made informative pamphlets, hand-outs, videos and resources available to the attendees.

The award included a $1,000 scholarship to IDA to help us continue to encourage, educate and support people touched by illness and disabilities around the world. This award was determined by the feedback and votes from attendees of the expo.

Thank you everyone who attended and voted for us!

ABOUT THE INVISIBLE DISABILITIES ASSOCIATION

The Invisible Disabilities Association (IDA) is a non-profit organization that has been encouraging, educating and connecting people and organizations touched by invisible disabilities around the world since 1997. IDA provides awareness, articles, pamphlets, booklets, radio interviews, videos, seminars, events, resources, an online social network and much more.

Contact the IDA Team: Go to the Contact Page on the Invisible Disabilities Association website. Visit the Invisible Disabilities Association at: www.InvisibleDisabilities.org

Additional Resources

IDA Presents LIVE Chats with Our Experts September 27th

Free Online Disability Expo with IDA September 27, 2012

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

Filed Under: IDA Events, IDA in the News, Invisible Disabilities Assoc. Awareness Tagged With: advocate, awareness, caregiver, disability, doctors and nurses, environmental illness, event, helpful tips, IDA award recipient, illness, injury, inspiration, invisible disabilities, loved ones, news, non-profit, outreach, pain, personal story, press release, seminar, speaker, spreading the word, support, video

Learning the Language of Invisible Disabilities

IDA Makes the “Top 10 Guest Blogs of 2012″ on Disability.gov

January 3, 2013 by admin 1 Comment

Press Release

IDA Makes the “Top 10 Guest Blogs of 2012″ on Disability.gov

Parker, CO – January 03, 2012. IDA Founder, Wayne Connell is a regular Guest Blogger on Disability.blog by Disability.gov. We are elated to announce that IDA Made the “Top 10 Guest Blogs of 2012″ on Disability.Blog by Disability.Gov. We are thrilled to receive this recognition and to be given the opportunity to bring about more awareness and education about Invisible Disabilities!

Disability.Blog wrote:

2012 was an exciting year for Disability.Blog! We expanded existing partnerships and began dynamic new ones with leading disability organizations, such as the Invisible Disabilities Association (IDA). IDA President and Founder Wayne Connell and IDA ambassadors, including Kathe Skinner and Jeff Vankooten, wrote thoughtful posts throughout the year to let our readers know about the importance of recognizing and understanding invisible disabilities, and to offer people living with chronic illness and pain an opportunity to tell their personal stories.

Read full story.

Thank you to all of our guest CO-authors and readers who have commented and liked our blogs, showing your support for what IDA is doing!

The IDA Team

ABOUT THE INVISIBLE DISABILITIES ASSOCIATION

Contact the IDA Team: Go to the Contact Page on the Invisible Disabilities Association website. Visit the Invisible Disabilities Association at: www.InvisibleDisabilities.org

RELATED ARTICLES:

Invisible No More!

It’s All in Your Head

Join the Expedition

Looks Can Be Deceiving on Disability.gov

What’s So Funny About on Disability.gov

About

Filed Under: IDA in the News, Invisible Disabilities Assoc. Awareness Tagged With: accessible parking, advocate, author, awareness, caregiver, depression, disability, doctors and nurses, environmental illness, helpful tips, humor, illness, injury, inspiration, invisible disabilities, Invisible No More!, loved ones, mental illness, multiple sclerosis, news, non-profit, outreach, pain, personal story, press release, speaker, spreading the word, support, traumatic brain injury

Association of Applied Therapeutic Humor

IDA on HUFFPOST LIVE News

December 12, 2012 by admin 6 Comments

Press Release

IDA Invited to be a Special Guest on HUFFPOST LIVE News

Parker, CO – December 12, 2012. Wayne Connell, Founder and President of the Invisible Disabilities Association was honored to be a Special Guest on HUFFPOST LIVE produced by THE HUFFINGTON POST.

Nancy Redd hosted this informative broadcast entitled, “Not Handicapped Enough.“

Joining Wayne was Hall of Fame Speaker, Humorist and Nurse, Karyn Buxman, RN, MSN. Karyn is also an IDA Advisory Board Member, author of the book series, “What’s So Funny About…” and founder of Journal of Nursing Jocularity. Karyn has spoken at several of IDA’s events and was the recipient of the 2009 IDA Healthcare Award. She is the past President of the Association of Applied Therapeutic Humor and teaches nurses, businesses and people living with illness and pain how to use humor as stress-relief and therapy.

Wayne’s wife, Sherri was also invited to share her insights and perspectives on living with invisible disabilities. Sherri lives with Progressive Multiple Sclerosis, Chronic-Late Lyme Disease and Chemical Injury. Once a very active young woman, singing and dancing in musicals, achieving multiple college degrees and enjoying her career, Sherri has been unable to care for her own daily needs since 1991. Sherri and Wayne were married in 1994.

HUFFPOST LIVE producers were inspired to air this episode after reading an article from Elsa Sjunneson-Henry, “I May Be Disabled, But People Don’t Think I’m Blind Enough.” Elsa was also a Special Guest on the evening’s program.

Thank you goes out to HUFFPOST LIVE and THE HUFFINGTON POST for airing this valuable information and awareness! WATCH HERE!

ABOUT THE INVISIBLE DISABILITIES ASSOCIATION

Contact the IDA Team: Go to the Contact Page on the Invisible Disabilities Association website. Visit the Invisible Disabilities Association at: www.InvisibleDisabilities.org

ARTICLE RESOURCES

“I May Be Disabled, But People Don’t Think I’m Blind Enough.“

Journal of Nursing Jocularity

Karyn Buxman, RN, MSN

Invisible Disabilities Association

SherriConnell.com

“What’s So Funny About…“

Wayne Connell

About

Filed Under: IDA in the News, Invisible Disabilities Assoc. Awareness Tagged With: advocate, author, awards, awareness, caregiver, celebrity, disability, doctors and nurses, elsa s. henry, environmental illness, event, helpful tips, huffington post, huffpost live, humor, illness, injury, inspiration, invisible disabilities, karyn buxman, legally blind, loved ones, nancy redd, news, non-profit, outreach, pain, personal story, press release, service dog, sherri connell, speaker, spreading the word, support, television, video, vision impairment, Wayne Connell

Learning the Language of Invisible Disabilities

Join the Expedition

November 26, 2012 by Wayne Connell 5 Comments

By Wayne Connell, Founder & President, Invisible Disabilities Association.

Article Excerpt: See what an amazing difference IDA is making with our Annual Honor Awards Banquets. Not only is this an amazing night for attendees, but we share our videos from the evening and article about the Award Recipients to increase awareness, education and support around the world!

In recognition of National Disabilities Month, every October for the past five years, the Invisible Disabilities Association (IDA) has hosted an awards banquet in Lone Tree, Colorado. This year’s banquet will take place on October 14^th. This event allows IDA to honor amazing individuals and organizations from around the nation who are making a difference in the lives of people touched by illness, pain and disability. We also feature incredible keynote speakers such as National Speaker Hall of Fame Inductee Karyn Buxman, RN, MSN, CSP, CPAE; New York Times bestselling author Capt. Luis Carlos Montalván and New York Met’s World Series Champion Ed Hearn. This year we invite you to “Join the Expedition.”

Dictionary.com defines an expedition as, “an organized journey or voyage for a specific purpose.” Much time and planning goes into preparing for an expedition. Sometimes it requires learning a new language; sometimes it forges ahead into difficult places. An expedition often requires a map, unless the territory is unknown and uncharted. And of course lots and lots of cool equipment and tools are needed. Finally, an expedition usually requires a partner or a team to go with you, and a group back home cheering you on.

The problem with the expedition of caregiving or living daily with illness and pain is that you rarely have the opportunity to prepare or pre-plan. It just happens! IDA wants to help people to become “expedition ready” even in the midst of the journey.

IDA’s 5^th annual banquet will feature Antarctic Mike (Pierce) and his wife, Angela, as keynote speakers. Mike and Angela have been on a very long expedition. Mike is a professional speaker, executive recruiter, avid adventure athlete, world record holder and a husband. Angela Pierce is a wife, a blogger and someone who lives daily with disability and has done so most of her life. Together, they are an amazing team!

Mike has completed marathons in some of the world’s coldest climates including the Canadian Arctic, Siberia and twice in the Antarctic. He has set world records in endurance swimming and cycling as well. Adventure sports have changed Mike’s life in many ways, including teaching him the importance of being mentally focused and conditioned to run the most challenging, important and worthwhile expedition, that of helping Angela manage her lifetime disability. Read more of their story on Disability.Blog.

The good news is there are a group of people and organizations from around the nation who are journeying alongside people touched by illness, pain and disability. IDA will be honoring them on this great evening. IDA honorees include:

2012 Advocacy Award Honoree: Suzanne Mintz has been chosen based on her passion and advocacy as the founder of the National Family Caregivers Association. She has set the example for others by caregiving for her husband, Steven, who is living with Multiple Sclerosis. She has used her experience to inspire and advocate for other caregivers.

2012 Caregiver Award Honoree: John O’Brien has been chosen based on his passion and commitment to personally care for his wife and her journey with illness. This passion for people living with illness and pain also moved John to co-found Central Coast Senior Services, a home care agency which provides professional and compassionate caregiving.

2012 Corporate Award Honoree: Debbie Marriott Harrison has been chosen for her personal journey as a caregiver and champion of those living with invisible disabilities, including her own children. In addition, Debbie is an example for others in her role as Senior Vice President of the Marriott Corporation, a company that is leading the way with a disability-friendly atmosphere for both their guests and employees.

2012 Founders Award Honoree: Dick Layton has been chosen based on his personal involvement with IDA’s founder Wayne Connell as a mentor and as a strategic advisor to the entire IDA organization. Dick uses his passion to help others by making a difference in their lives and their organizations and therefore multiplying his impact and reach. Dick Layton is a currently a Managing Partner at Kenton Talent Management.

2012 Healthcare Award Honoree: Kermit Crawford has been chosen based on his leadership role at Walgreen’s as the President of the Pharmacy, Health and Wellness Services and Solutions and his focus on the wellbeing and health of all Americans. Kermit has led Walgreens in the development of programs and services such as the Take Care Clinics, Health Corner TV, Health Screening Tours and the Walk with Walgreens initiative.

2012 Impact Award Honoree: Jan Chambers has been chosen based on her desire and passion to positively impact people living with fibromyalgia and pain through her work as the President of the National Fibromyalgia & Chronic Pain Association.

2012 Inspiration Award Honoree: Bob Woodruff has been chosen because as a traumatic brain injury (TBI) survivor he inspires others with TBI to keep fighting and to use their challenges and triumphs to help encourage others. Bob founded the Bob Woodruff Foundation to honor and encourage veterans, as well as service men and women living with invisible disabilities. Bob is an amazing inspiration and is making a difference in the lives of others.

2012 Invisible Hero Award Honoree: Anna Bigham has been chosen based on her work as the founder and executive director of the nonprofit organization Hidden Wounds. After enduring the tragic loss of her brother, Anna has dedicated her life to serving military personnel living with invisible disabilities by bringing them hope and inspiration.

2012 Medical Award Honoree: Dr. Marshall Thomas has been chosen based on his passion to provide exceptional clinical care and research for patients living with mental health disorders through his leadership as the Executive Director of the University of Colorado’s Depression Center. Under his guidance, the Depression Center has become a recognized leader in research and treatment of depression, as well as a much needed community resource for health professionals and the public about mood disorders.

2012 Perseverance Award Honoree: Angela Pierce has been chosen based on her amazing perseverance as she lives each day with illness from childhood, ongoing long term pain and life threatening injuries caused by a major climbing accident 27 years ago. In addition, despite her circumstances, Angela shares her story, as well as her struggles and triumphs, in order to encourage others in person and through the internet.

2012 Research Award Honoree: Envoy Medical Corporation has been chosen based on its cutting edge research, and the creation of the Esteem®, an implantable, invisible, prosthetic hearing restoration device.

2012 Volunteer Award Honoree: Frances Owens has been chosen based on her lifelong, passionate volunteerism with multiple charities serving people living daily with illness and disability, as well as for those recovering from tragedy. Frances’ current work with Developmental Pathways and the HeartLight Center is inspiring. Her volunteerism with Anchor Center for the Blind, Recording for the Blind and Dyslexic, The Children’s Hospital, The Colorado Autism Society, women’s heart health and Denver Health’s Newborns in Need is an example to be followed.

In addition, check out our great expert chats on the first ever Online True Help® Disability Web Expo sponsored by Allsup, which will be held on September 27^th. Register today for this free event. Topics include:

“Be Expedition Ready – Learn about preparing for the journey of care giving” by Antarctic Mike
“Ready, Set, Thrive – Nine new rules for engaging change and managing stress” by Jeff Vankooten
“7 Realities of the Invisible Becoming Visible” by Wayne Connell, IDA Founder and President
“Communication Do’s and Don’ts for People with Disabilities” by Kathe Skinner, MA, LMFT
“Humor for Health & Well-Being” by Karyn Buxman, RN, MSN, CSP, CPAE
“Your Changing Brain – The owner’s manual to your mind” by Rick Watson

We hope you “Join the Expedition” with us this year in Denver. We believe we all need each other, and even though the journey can be difficult and lengthy, it can be endured with the help of others. IDA will continue to take the lead and provide support and guidance along the way. To register or learn more about the banquet, please go to www.JoinTheExpedition.org.

This article was first published on Disability.Blog by Disability.gov. September 19, 2012.

RELATED ARTICLES:

Invisible No More!

It’s All in Your Head

Looks Can Be Deceiving on Disability.gov

What’s So Funny About on Disability.gov

About Wayne

Wayne is the Founder & President of the Invisible Disabilities Association (IDA). His inspiration for IDA is His wife, Sherri, who lives with Multiple Sclerosis, Lyme Disease, Neurological Chemical Intolerance, Traumatic Brain Injury and Anaphylaxis Food Allergies. Wayne is the Author of the booklet, But You LOOK Good! How to Encourage and Understand People Living with Illness and Pain. He has spoken at seminars, conferences, health fairs and banquets to create awareness, education and support. His personal experience includes that of a professional, multi-tasking husband caregiver with an extensive background in management, media and technology. This man on a mission quickly launched IDA into a world-wide outreach for millions living with invisible disabilities. Wayne and the IDA Executive and Advisory Teams reach out to others living with illness, pain and injury around the world. They bring encouragement and awareness about invisible disabilities to friends, family, co-workers and businesses through websites, projects, articles, pamphlets, seminars, events, videos, radio and social networks.

Filed Under: Becoming Visible, Celebrities, Invisible No More, Personal Stories Tagged With: advocate, awards, awareness, banquet, caregiver, celebrity, disability, doctors and nurses, event, fundraiser, helpful tips, illness, injury, inspiration, invisible disabilities, Invisible No More!, loved ones, news, non-profit, outreach, pain, personal story, speaker, spreading the word, support

IDA on Disability.gov – Join the Expedition

October 5, 2012 by admin Leave a Comment

IDA Founder, Wayne Connell is a regular Guest Blogger on Disability.blog by Disability.gov.

Article Excerpt: In recognition of National Disabilities Month, every October for the past five years, the Invisible Disabilities Association (IDA) has hosted an awards banquet in Lone Tree, Colorado. On October 14th we will, “Join the Expedition” of caregiving and loving those living with illness, pain and disability.

See what an amazing difference IDA is making with awareness, education and support, as well as our incredible 2012 Award Recipients and Keynote Speakers, Antarctic Mike and Angela Pierce. This evening is bound to be a journey you will never forget! Read the entire blog here on Disability.gov. Published September 19, 2012.

Leave your comments on the article and share it with your friends and family on Facebook, Twitter, LinkedIn, Google+ and by email below.

RELATED ARTICLES:

IDA’s Looks Can Be Deceiving on Disability.gov

About

Filed Under: Invisible Disabilities Assoc. Awareness Tagged With: advocate, awareness, banquet, caregiver, celebrity, disability, doctors and nurses, event, fundraiser, helpful tips, illness, injury, inspiration, invisible disabilities, loved ones, non-profit, outreach, pain, personal story, speaker, spreading the word, support

Join the Expedition on Oct 14th. Register HERE!

Autographed Peyton Manning Paper Mosaic by Artist Russell Irwin

October 3, 2012 by admin Leave a Comment

St Louis artist and IDA Ambassador, Russell Irwin creates and donates a one-of-a-kind Peyton Manning Paper Mosaic for 2012 Invisible Disabilities Association Honors Banquet. The 20 x 30 Paper Mosaic is autographed by both Russell Irwin and by Peyton Manning, Quarterback for the Denver Broncos.

I begin my creation by applying layers of torn paper in mosaic patterns of texture and color. This becomes the surface on which I use power sanders to grind, carve and articulate integrated dimensions of image and story.

I call these works of art Paper Mosaics. These are my creations; this is my art, the work that I love.

~ Russell Irwin

IDA is so thrilled by this amazing donation which is the center piece of our live auction at our 5th Annual Honors Banquet on October 14th.

We are overwhelmed by the generosity of both Russell and Peyton. To have an original work of art created by such a renowned sports artist as Russell Irwin who has also been commissioned by the NFL, the Masters, the Dallas Cowboys and of course extensive works for the St Louis Cardinals is quite amazing unto itself. To also have a future Hall of Fame Quarterback, Peyton Manning signing his name to it is over the top!

Every true Peyton Manning fan should lining up to register for the chance to bid on a part of history on October 14th in Lone Tree, Colo. As fantastic as it is, the Paper Mosaic is only part of a wonderful evening of honoring twelve individuals and organizations nationwide who are making a difference in the lives of people touched by illness, pain and disability. The evening will be capped off with a keynote by world record holder and adventure athlete Antarctic Mike (Pierce) and his wife Angela, a life long disability survivor.

Watch videos below of Russell Irwin’s dimensional, amazing and unique Paper Mosaics.

Ever Wonder?	Precious

The Making of Ever Wonder	Precious – The Video

ADDITIONAL RESOURCES

The Russell Irwin Gallery

The Russell Irwin Gallery: Sports Art

Peyton Manning of the Denver Broncos

PeyBack Foundation by Peyton Manning

About

Filed Under: IDA Events, IDA in the News Tagged With: artist, awards, banquet, caregiver, celebrity, denver broncos, disability, event, fundraiser, illness, injury, inspiration, invisible disabilities, news, non-profit, outreach, pain, peyton manning, press release, russell irwin, speaker, spreading the word, support

2012 IDA Honor Awards Banquet with Keynote Speakers, Antarctic Mike and Angela Pierce

Learning the Language of Invisible Disabilities

September 18, 2012 by AntarcticMike 5 Comments

By Wayne Connell, Founder & President, Invisible Disabilities Association and Antarctic Mike Pierce, IDA Ambassador.

Have you ever shared details about your chronic illness and pain and the difficulties you experience daily, and had a person say in response, “Well, but you LOOK good?” Many people have experienced this situation and heard similar phrases that seem harmless, unless you are the one who would give up “looking good” any day to have moments of feeling good.

Do you ask a friend or family member living with chronic illness or pain how they are “feeling” every time you see them or talk to them? It tends to place your loved one in a difficult spot. They either lie to you and say they are “feeling fine,” or they tell you the truth. They feel sick and in pain, day after day. How about asking them how they are “doing” instead? Maybe they are “doing” okay, even though they are in pain.

As my wife, Sherri, explains “Sometimes it’s what people say that hurts more than the illness.” Most people do not say mean things on purpose, yet the things they say can come across as uncaring to a person journeying with illness and pain. Living daily with illness, pain and disability truly is a lifelong expedition. As with any expedition, we need to learn the language of the place we will be visiting. We need to learn what to say and what not to say in order to make sure we don’t end up lost or accidentally insulting someone.

In order to address and teach this new language of invisible disabilities, I wrote a booklet called, “But You LOOK Good, How to Encourage and Understand People Living with Illness and Pain.” It includes many ideas gleaned from my wife’s journal. It will help you to learn how to converse in your relationships with people touched by illness, pain and disability.

Invisible Disabilities Association Ambassador Mike Pierce (AKA Antarctic Mike) has learned this language of invisible disabilities. Here is his story.

“Angela and I have been married for almost 21 years. To most people, she is a very ‘normal’ looking young lady. Of course, I think she’s much prettier than average (ha ha). She drives a car, reads, has friends, is not missing any limbs, is not in a wheelchair and seems able to perform the functions of daily living, like most of us. If you were in a conversation with her or sitting next to her, you’d probably see her like any other woman her age.

Because she looks healthy, you’d likely think she was a working professional; probably a mom; someone who enjoys traveling, sports and other activities in which most people participate.

However, looks can be deceiving. You see, the truth is that Angela survived a 125 foot freefall in a rock climbing accident, breaking her bones in 168 places and requiring more than 40 surgeries. She has hepatitis C from a blood transfusion, a pituitary mass in her brain, Post Traumatic Stress Syndrome (PTSD), kidney failure, has been on dialysis and the organ transplant list and takes more medication than most households do. On the outside, Angela looks just fine.

On the inside, she’s challenged beyond description. The difficulty is that her disabilities are completely invisible, unless you see her compound fracture scars and the skin graph on her legs.

One thing I’ve learned during our 21 years together is that she has different needs and communicates about what those needs are in a very different way than I would have ever expected. During the early years of our marriage, we would fight loudly more often than I’d care to remember or admit. She would get very upset at me over things that I had not done and things I did not understand. I took those comments personally and took my shots back at her, fueling the fire further. I’ve thrown telephones, cereal boxes and other things across the room in anger. One night in a parking lot outside a bowling alley in Denver, a police officer overheard our arguing and came up to ask us if we were okay. We calmed down quickly after that.

What both of us learned after many of these arguments is that what Angela was initially upset about was not the real issue. It was something else that was related to the difficulty of living with various invisible disabilities. It was not me, anything I said or did, but what she was going through. We did not realize that we needed to grow in our ability to speak and understand a different language. I’m talking about the language of invisible disabilities.

It’s not an easy language to understand, as you have to think, be very patient, not take comments personally, listen more and not try to answer questions and solve problems immediately. Often, people with disabilities or chronic pain just want to talk in order to express themselves and let out the pressure that builds up inside them. Questions they ask, comments they make and issues that seem to bother them are not necessarily the genesis of the problem. That’s okay. I’ve learned to just let Angela get it out without me interrupting her, fixing her or commenting. This takes tremendous patience and self confidence on my part, as the knee jerk reaction is to take things too personally, wondering what I did or said wrong.”

The expedition will be long and tough, yet rewarding, as Mike has shared. The language will sometimes be somewhat familiar and other times very different. The best teachers of this language of invisible disabilities are those like Angela and my wife, Sherri, who live daily in the land of illness and pain. Learning the language is the first step to becoming expedition ready. Join the expedition!

This article was first published on Disability.Blog by Disability.gov. March 14, 2012.

MEET ANTARCTIC MIKE AND ANGELA! Don’t miss Antarctic Mike and Angela at the 2012 IDA Honor Awards Banquet on October 14th! They will be sharing their story and key things they have learned – For him as a caregiver, for her as a survivor and for them as a couple. Come join us! Be inspired! Be encouraged!

MORE INFORMATION:

Antarctic Mike’s Website

Antarctic Mike, IDA Ambassador

Angela Pierce’s Blogs on IDA

Angela Pierce’s Website – Falling Off the Mountain

RELATED ARTICLES:

Invisible No More!

It’s All in Your Head

But You LOOK Good! on Disability.gov

Looks Can Be Deceiving on Disability.gov

What’s So Funny About on Disability.gov

About Mike Pierce

Antarctic Mike (Mike Pierce) is a professional speaker, managing partner in a recruiting company, an avid adventure athlete, and a husband to Angela, who lives daily with disability due to a rock climbing accident. Mike has completed marathons in some of the world’s coldest climates including the Canadian Arctic, Siberia and twice in the Antarctic. He has set world records in endurance swimming and cycling as well. Adventure sports have changed Mike’s life in many ways, including teaching him the importance of being mentally focused and conditioned to run the most challenging and important marathon, that of helping Angela manage her lifetime disability.

Filed Under: Becoming Visible, Invisible No More, Personal Stories Tagged With: advocate, author, awareness, but you look good, caregiver, disability, helpful tips, illness, injury, inspiration, invisible disabilities, Invisible No More!, kidney disease, language of inviisble disabilities, loved ones, marriage, pain, personal story, ptsd, speaker, spreading the word, support, traumatic brain injury

What to Say, What Not to Say and How to Help People Living with Illness and Pain

September 17, 2012 by admin 4 Comments

Ask anyone living with illness or pain and they will probably be eager to share what many people have said to them over the years that they didn’t feel was very encouraging. In fact, many will tell you that they were very hurt by something someone said.

It is true, that some people in this world may say something that is intentionally judgmental or negative. Nonetheless, we believe that in many cases, friends and family really do want to be supportive, but simply don’t know how.

Some people choose to ignore the issue or person; some toss out platitudes like simple fix-its and others share what they feel is the right thing to say with an expectation that it will be met with appreciation for their insight. However, loved ones often they find themselves perplexed or even angry when instead of being elated by the comment, their friend or family member is clearly frustrated by what was said. Sadly, these encounters can lead to the breaking down of communication and the relationship as a whole.

IDA Founder and President, Wayne Connell and his wife, Sherri, know all too well how relationships can suffer or even end. Wayne believes that loved ones need to learn what he calls, “The Language of Invisible Disabilities.” People can learn these communication and support skills by learning what to say and what not to say and why.

When they can discover why a certain comment or suggestion is not well received, they can gain a better understanding of their loved one’s perspective. This allows them to ascertain how and why certain comments may cause their loved one to feel misunderstood, judged or as if their situation, losses and perseverance are being minimized. As a result, they can move on to learning what kinds of interchange and assistance gives hope, encouragement and the strength to keep fighting.

All of these things are addressed in IDA’s book, But You LOOK Good! How to Encourage and Understand People Living with Illness and Pain, written by Wayne and Sherri (all proceeds go to IDA).

This book gives practical tips on what to say, what not to say and how to help. It also gives insight into why, we as humans, often respond the way we do to debilitating conditions that are not readily obvious. It shares how we may protect ourselves and try to protect our loved one with denial. And it explains how a loved one may appear as if they do not care, when in fact they do. Yet, they just find it too painful to acknowledge the situation, because they don’t want to see their loved one suffer. These points not only help friends and family, but they also help those living with illness or pain better grasp where their loved one is coming from as well. These are the first steps to restoring relationships.

The video below is from the Online Seminar, What to Say, What Not to Say and How to Help People Living with Illness and Pain with Wayne and Sherri Connell. It was presented during the 2012 National Invisible Chronic Illness Awareness Week (NICIAW), founded by Lisa Copen. Wayne and Sherri were Special Guests for the NICIAW Seminar, Invisible Disabilities and the Husband as Caregiver in 2010 that was also featured in 2011. IDA has been involved in the NICIAW week since it’s inception in 2002.

RELATED ARTICLES

Chronic Illness Tips: 263 ways to more than “just get by.” Available to download for FREE! Tips adapted from IDA’s booklet, But You LOOK Good! into a collaborative project by NICIAW Founder, Lisa Copen.

FREE Chronic Illness Tips eBook with IDA Founder. Chronic Illness Tips: 263 ways to do more than “just get by.” Lisa Copen and Friends. Rest Ministries.

IDA Founder Guest Speaker for National Invisible Chronic Illness Awareness Week. IDA Press Release. July 15, 2012.

Invisible Disabilities and the Husband as Caregiver. IDA Founder and President, Wayne Connell. Interviewed by Lisa Copen on BlogTalk Radio. National Invisible Chronic Illness Awareness Week Online Seminar. September 16, 2010. Featured again September 2011. Listen Here

What to Say, What Not to Say and How to Help with Wayne and Sherri Connell. Online Conference Guest Speakers for the National Invisible Chronic Illness Awareness Week. Founded by Lisa Copen of Rest Ministries. Video. September 10, 2012

About

Filed Under: IDA Events, Invisible Disabilities Assoc. Awareness Tagged With: advocate, author, awareness, caregiver, disability, doctors and nurses, environmental illness, event, helpful tips, illness, injury, inspiration, invisible disabilities, loved ones, non-profit, outreach, pain, personal story, seminar, speaker, spreading the word, support, video, what to say

It’s All in Your Head

August 11, 2012 by JeffVankooten 21 Comments

By Wayne Connell, Founder & President, Invisible Disabilities Association, and Jeff Vankooten, Professional Speaker and Invisible Disabilities Association Executive Board Member

“It’s all in your head!” What a familiar refrain for those living with chronic illness, pain or disability. Doctors, friends, co-workers and family often make this statement when they can’t “see” what you are going through or find a diagnosis. The invisible nature of many illnesses and disabilities creates an atmosphere of suspicion or disbelief, even by those who are closest to you. People may say, “It’s all in your head” to imply that the person is just making up or exaggerating his or her condition. Many people live with the stigma of this label. Some even feel shame and believe so much that they themselves are to blame that they take their own lives.

Maybe it is “all in your head.” There are many conditions that exist as a dysfunction or disease of the brain. Depression, Alzheimer’s, schizophrenia, bipolar, autism, post-traumatic stress disorder (PTSD), traumatic brain injury (TBI), epilepsy, dyslexia, multiple sclerosis, Parkinson’s and ADHD to name a few. These are real disorders and diseases even though they are unseen, and in many cases go undiagnosed or misdiagnosed for years.

Jeff Vankooten, a professional speaker and Invisible Disabilities Association executive board member shares his story below:

I have bipolar disorder. It has been my constant companion most of my life. It’s like a storm cloud that hovers nearby threatening every day to rain. I’m a different person now than I was before it “kicked in.” I’m more serious and less jovial. I’m more guarded with people. I mistrust my ability to make decisions. The varying highs and lows have created an inconsistent approach to life. Yet, in some ways, it has been a blessing. That may sound counter-intuitive, but I am a richer person because of it.

Here are what I find to be the benefits of living under the description of bipolar disorder:

• Depth of Empathy: I can uniquely understand the despair of others, and listen with an attentive ear to those who are suffering. That depth of empathy resonates with people who seek me out to be a compassionate ear and persistent source of hope. God has used this illness and redeemed it for the benefit of others.

• Strength of Relationships: When I was in college, my roommate learned how to monitor my emotional health. He was not intimated by, or afraid of, my invisible disability. When he sensed I was beginning to spiral into depression, he would get me up and we would walk around the neighborhood together. The walks were special because he would always provide “Swisher Sweet” cigars. They are thin, short cigars with a flavored plastic tip. I’m not sure why, but they played a big role in my recovery. Regardless if you have an invisible disability or not, ask yourself who or what are your “Swisher Sweets”?

Though having bipolar disorder has strained some relationships and ruined others, the one with my wife has been solidified. Often marriages dealing with spousal bipolar end in divorce. It can be too much and take its toll on the stability of the relationship. It hasn’t been easy. Nothing of significance ever is. But my wife’s “Swisher Sweets” of patience, compassion, and yes, a swift kick in the butt from time to time, has been invaluable to my life. She gives me the strength to carry on and the joy to participate in life. I love her deeply.

• Embracing of Moments: Depression has a tight logic. I can make a pretty convincing case as to why everyone ought to be bummed out. It’s critical to me that I don’t stay in my argument. I need to break through the closed system of despair by embracing each moment of every day that makes up the totality of my time. I relish the moments spent with my children and friends. I savor every dinner and I enjoy every ride at the amusement park. They are all precious moments.

Education is a real key in learning about the illnesses people are living with each day. The best way to get this education is to ask the people with the disorder or disease themselves. Take time to learn the language of invisible disabilities. Take time to listen and not pre-judge. Be a friend and comforter, not an accuser. We all need to make it a safe place for people living with brain illnesses, disorders and disease to share their difficulties and triumphs. Let’s remove the stigma and shame and be supportive in any way we can.

They can’t just “get over it” or stop being depressed. If someone breaks an arm or a kidney fails, we don’t tell them to simply “snap out of it.” They need real help, and we need to make this world a safe place for them to ask for and to receive it. By listening, learning and loving, we can help them be Invisible No More!

This article was first published on Disability.Blog by Disability.gov. May 30, 2012.

RELATED ARTICLES:

About Jeff Vankooten

Jeff Vankooten is a professional speaker who helps people thrive in disruption and change. He also coaches people over 40 who want to harness their life’s experience into talks and products that leave a legacy. He is a native of Denver, Colorado where he lives with his wife, three kids and really big dog.

Filed Under: Living with Invisible Disabilities, Personal Journey Tagged With: advocate, author, awareness, bipolar disorder, depression, disability, helpful tips, illness, injury, inspiration, invisible disabilities, loved ones, mental health, personal story, speaker, spreading the word, support, Traumatic Brain Injury (TBI)

Walking Out Your Front Door Is The First Step Up Your Mountain

August 6, 2012 by Angela Pierce 1 Comment

Since my accident in 1985, I have been through some very difficult times. There have been many days when I’ve felt fearful to “walk out my front door.” However, the focus of this blog is to help you as the reader understand that when you push through fears and “walk out your front door,” it changes your focus from what you can’t do to what you can do.

Here is an example while I was on a recent trip to Colorado. I stayed with my sister Marcia. During this visit, we had decided to have our nails done. However, she could not go due to the fact that she had to work. I decided to treat myself and get my nails done without her. This was awkward, as I was already in an unfamiliar place and was somewhere that I had never been to. I made the decision to “walk out her front door.”

I was under the lamp waiting for my nails to dry when I noticed a woman sitting next to me and complimented her on her nails. We had some small talk during a big hailstorm. I was concerned about leaving and going to another salon to get my hair washed because the rain was pouring down like crazy, and I did not have a car. This woman, whose name I still did not know, offered to not only give me a ride, but told me she would move her car for me and opened the umbrella right in the store. Going outside in the pouring rain and hail, I did not get a drop of water on me thanks to this woman.

This was a complete stranger who did this for me. She saw that my hands were shaking and asked if I took prednisone, a common prescription drug for tremors. I told her that I did not take it, but I knew what it was due to my kidney disease (prednisone is also prescribed for kidney disease patients). She asked me about my illness. I told her “it is a long story.” She wanted to hear about it, so I told her about my rock climbing accident. After I had shared my story, she opened up about an illness that she struggles with. I invited her to the 2012 IDA Awards Banquet and mentioned that my husband and I were the keynote speakers. She said that she really wanted to come. She eventually told me her name, which is Suzanne.

What I learned through this is that you can “walk out your front door” and make a difference in a stranger’s life. When you live with an invisible disability, you may be pleasantly surprised by the impact you can make when you tell someone your story and what it has taught you. Many strangers that we could meet every day have challenges like us, and they are looking for someone to talk to. They need us as much as we need them. That is why an organization like the IDA can be so helpful.

The key to “walking out your front door” and moving forward is to not only go outside, but to meet people and have meaningful conversations with them. My meeting Suzanne in an unfamiliar place and not being afraid to tell my story, led to a meaningful conversation and a new friend. This was worth “walking out my sister’s front door.”

OK, here is the conclusion: Come to the 2012 IDA Awards Banquet on Oct 14 in Denver and you’ll not only hear my story, but you will meet many people and hear many inspiring stories from those who “went out their front door.”

About Angela Pierce

In 1985, Angela Pierce survived a 125-foot free fall while mountain climbing, breaking her bones in 168 places. Her story of survival is a miracle. The lessons she has learned over the last 27 years are an incredible inspiration to others who must climb their own mountains every day. Visit her website, Falling Off the Mountain.

Filed Under: Living with Invisible Disabilities, Personal Journey Tagged With: banquet, disability, event, fundraiser, helpful tips, illness, injury, inspiration, invisible disabilities, pain, personal story, speaker, spreading the word, support

IDA Featured During National Invisible Chronic Illness Awareness Week 2010 and 2011

IDA Founder Guest Speaker for National Invisible Chronic Illness Awareness Week September 2012

July 15, 2012 by admin 6 Comments

UPDATE September 16: The 2012 Conference Seminars will be available on the NICIAW Website through July 2013. IDA’s Seminar will be available on our website indefinitely.

Press Release

IDA Founder Guest Speaker for National Invisible Chronic Illness Awareness Week September 2012

Parker, CO – July 15, 2012 – The Invisible Disabilities Association (IDA) Founder and President, Wayne Connell and his bride, Sherri were invited back to be guest speakers again for the upcoming 2012 National Invisible Chronic Illness Awareness Week (NICIAW).

Don’t miss the week’s FREE Online Seminars, other activities and offers September 10 – 16.

Monday September 10 at 10 am MST: Wayne and Sherri will be discussing What to Say, What Not to Say and How to Help Someone Living with Illness and Pain. This year, the interview will be by video!

IDA has been involved in the NICIAW since its inception in 2002. We have sponsored and helped get the word out. We have also participated in the online seminars by giving presentations on “But You LOOK Good,” “How Can I Make People Understand” and “What to Say, What Not to Say and How to Help.”

In 2010, Wayne and Sherri were Guest Speakers for a podcast interview, “Invisible disabilities and the Husband as Caregiver” that was broadcast live. In 2011, it was featured again during the week’s events.

Also in 2010, Wayne shared tips that were adapted from IDA’s book, But You LOOK Good! and published into a collaborative project. NICIAW Founder and Author, Lisa Copen compiled a helpful, 80 page ebook, Chronic Illness Tips: 263 ways to more than “just get by.” This book is available to download for FREE!

National Invisible Chronic Illness Awareness Week is an official annual campaign sponsored by Rest Ministries in collaboration with other sponsors. This year, the NICIAW will provide both audio and video seminars, handouts, articles, blogs, posters and more!

Print and Distribute Our Press Release to your friends, family, support groups, doctors, nurses and neighbors!

ABOUT THE INVISIBLE DISABILITIES ASSOCIATION

Contact the IDA Team: Go to the Contact Page on the Invisible Disabilities Association website. Visit the Invisible Disabilities Association at: www.InvisibleDisabilities.org

ADDITIONAL RELATED RESOURCES

National Invisible Chronic Illness Awareness Week Online Seminar. Lisa Copen interviewed IDA Founder and President, Wayne Connell on BlogTalk Radio. September 16, 2010 and September 2011. Listen Here

Chronic Illness Tips: 263 ways to more than “just get by.” Available to download for FREE! Tips adapted from IDA’s booklet, “But You LOOK Good!” into a collaborative project by NICIAW Founder, Lisa Copen.

Invisible Illness and Finding Support. Guest Speakers IDA Founder Wayne Connell and his wife, Sherri. 2010 and 2011 National Invisible Chronic Illness Awareness Week.

About

Filed Under: IDA Events, IDA in the News, Invisible Disabilities Assoc. Awareness Tagged With: advocate, audio, awareness, caregiver, disability, doctors and nurses, event, helpful tips, illness, injury, inspiration, invisible disabilities, loved ones, non-profit, online seminar, pain, press release, speaker, spreading the word, support, video

Woman’s Disability Inspires Husband to Reach Out to Others

Invisible No More

July 6, 2012 by Wayne Connell 6 Comments

Invisible No More!

Shining a Light on the Incredible Perseverance and Courage of Those
Living with Illness and Pain.

It all came crashing down in 1991. First, her legs became paralyzed and then, she received a diagnosis of primary progressive multiple sclerosis (MS), followed by a 10 day hospital stay. She slowly regained the use of her legs, yet the bone-crushing pain, fatigue and cognitive impairments did not dissipate.

We met in 1992. Sherri was a customer of mine at an electronics store I was managing. Wow, was I smitten. We met again at a singles group at her church; all of the guys were surrounding her. Did I even have a chance? Afterwards, everyone went out together to a local restaurant. I, of course, sat across from her. All of the other guys who had been interested in her disappeared when they heard the words, “MS” and “Disabled.” Sherri figured she would tell me the truth right away, and maybe save her the pain of another relationship lost.

I was not deterred. I was falling head over heels in love. She had been a model, a beauty queen, an actress, a singer with the voice of an angel, a cheerleader and someone everyone liked and looked up to. To me, she was still all of these and more. She was funny and intelligent, earning three college degrees, drop dead gorgeous and caring and loving of others.

Shortly after we started dating in 1992, Sherri was also diagnosed with Late Stage Chronic Lyme Disease, which was traced back to when she was bitten by a tick while visiting Arkansas at the age of 14. She had been sick on and off since then, but no one knew why. She was still active, passionate and hard working until her body finally gave out when she was 27 years old in 1991.

We were married on September 4, 1994. We were in love. She started writing about her journey in pamphlets. She wrote about MS to help explain to family and friends about her illness. She wrote about how people didn’t understand why someone who appeared normal was allowed to park in disabled parking. She wrote about how appearances do not always tell the story on the inside. In 1996, she finally thought of a label that described her condition – she had an, “Invisible Disability.” I thought, “Wow! Your description really makes since!” Soon thereafter, I took some of her writings and posted them on a website, called The Invisible Disabilities Advocate.

Therefore, in 1997, the Invisible Disabilities Association (which was originally called The Invisible Disabilities Advocate) was launched. I had no idea that hundreds of thousands of people from around the world were dealing with their illnesses and pain, and how people did not understand and in many circumstances, believe that they had a disability because of the invisible nature of their symptoms.

Along with my wife, I wrote the booklet, “But You LOOK Good – How to Encourage and Understand People Living with Illness and Pain.” IDA has sent more than 21,000 copies worldwide. Our organization continues to grow and support people from around the world with a message of understanding and encouragement; and IDA comforts those living with illness and pain by letting them know that they are not alone. IDA is also educating families, friends, co-workers and caregivers that even though a person’s symptoms may not be visible, they are very real.

IDA reaches around the globe with stories of suffering and triumph. We created www.InvisibleDisabilitiesCommunity.org as a supportive place to share the difficulties and to encourage people touched by illness, pain and disability. Our organization recently launched our second YouTube channel, www.InvisibleNoMore.TV, which brings to life the journeys of many living with invisible disabilities.

We also recently held IDA’s fourth annual Honor Awards Banquet in Denver, and you can see the stories of the very special guest speakers on our IDA YouTube Channel.

Learn about Matt Barrett’s amazing story of lifelong battles with 11 types of cancer with more than 1,700 surgeries, as well as his struggles with homelessness throughout much of his adult life.
Listen to Lori Frisher, a cancer survivor who was once hearing impaired and through cutting-edge technology, is becoming INVISIBLE NO MORE(SM) as she hears the sounds we take for granted.
Be moved by the story of former Captain Luis Carlos Montalván and his service dog, Tuesday and their journey together with Post-Traumatic Stress Disorder (PTSD) and Traumatic Brain Injury (TBI).
Be inspired by former World Series Champion Ed Hearn as he shares about his life after three kidney transplants and skin cancer.
Read about Angela Pierce who survived a 130 foot free fall in a climbing accident, as she shares about living with a Mountain of pain.

These stories and many more are chronicled, as well, on www.InvisibleDisabilities.org

“Believing a loved one when they say they are sick or in pain is the most important thing we can do. Just because we can’t see from the outside, what they are battling on the inside doesn’t mean it doesn’t exist. Belief, validation and support can give a friend or family member the strength they need to continue the fight!”

Take the time in this New Year to encourage and believe a loved one living with illness and pain. Do not allow them to live in isolation anymore. As a society, we need to love first. Join IDA in envisioning a world where people living with illness, pain and disability will be INVISIBLE NO MORE(SM).

This article was first published on Disability.Blog by Disability.gov. January 4, 2012.

JOIN US IN DENVER ON OCTOBER 14, 2012. IDA wants you to “Join the Expedition.” Don’t miss Antarctic Mike and Angela at the 2012 IDA Honor Awards Banquet on October 14th! They will be sharing their story and key things they have learned – For him as a caregiver, for her as a survivor and for them as a couple. Come join us! Be inspired! Be encouraged!

ABOUT THE INVISIBLE DISABILITIES ASSOCIATION

RELATED ARTICLES:

About IDA

2011 IDA Brings Awareness and Support Around the World

2010 About the Invisible Disabilities Association – IDA Founder and President, Wayne Connell

About Wayne

Filed Under: Becoming Visible, Invisible No More Tagged With: advocate, awareness, disability, illness, injury, inspiration, invisible disabilities, Invisible No More!, loved ones, non-profit, outreach, pain, personal story, spreading the word, support

IDA Executive Board Member – Jeff Vankooten

IDA on Disability.gov – It’s All in Your Head

May 31, 2012 by admin 4 Comments

IDA Founder, Wayne Connell continues to be a very popular Guest Blogger on Disability.blog by Disability.gov.

This article, It’s All in Your Head, was Co-Authored by Jeff Vankooten. Jeff is an author and speaker who shares his battles and lessons learned from living with bipolar disorder. Jeff is also an IDA Executive Board Member.

Article Excerpt: “It’s all in your head!” What a familiar refrain for those living with chronic illness, pain or disability. Doctors, friends, co-workers and family often make this statement when they can’t “see” what you are going through or find a diagnosis. The invisible nature of many illnesses and disabilities creates an atmosphere of suspicion or disbelief, even by those who are closest to you. People may say, “It’s all in your head” to imply that the person is just making up or exaggerating his or her condition. … Read the entire blog here at Disability.gov

Leave your comments on the article and share it with your friends and family on Facebook, Twitter, LinkedIn, Google+ and by email below.

RELATED ARTICLES:

Jeff Vankooten’s Website

IDA’s Looks Can Be Deceiving on Disability.gov

About

Filed Under: IDA in the News, Invisible Disabilities Assoc. Awareness Tagged With: advocate, author, awareness, disability, illness, inspiration, invisible disabilities, Invisible No More!, jeff vankooten, loved ones, personal story, speaker, spreading the word

Angels on the Mountaintop

April 27, 2012 by Angela Pierce 5 Comments

Those of us who live in suffering do not realize the depth of understanding we can give to others. Whether it is on the internet, phone, or praying and sending good thoughts to others we know who live with invisible disabilities, we can make a difference. Sometimes our pain and sickness lead us to being lonely. Since we are already angels, we should try to remember that we are suffering for others who do not even know they need our help.

Here are two examples of how God has been able to use me to help someone that did not know they needed my help. One, a friend of mine was having a baby. I went to visit her in the afternoon and found out that nobody else would be there to support her during birth. I stayed with her, postponing my dialysis, which meant more pain for me; however, not only was I able to hold Hadley’s hand during her C section, I was the person who cut the umbilical cord. What an experience for me to be able to hold a new baby’s hand and to be able to celebrate a new life with a good friend of mine. I held the baby, placed her next to my Hadley’s cheek and with tears in both our eyes, we shared a quiet moment that neither of us will ever forget.

A second example was this past week. A good friend of mine from dialysis had been in the hospital for the past 3 days. She had a heart attack brought on by congestive heart failure. While I was visiting her in the hospital, the hospice nurse came in and asked my friend Molly if it was OK with her that I be allowed to stay in the room. Molly shook her head yes. Molly and I were very good friends. The nurse continued to ask Molly questions concerning her quality of life. At this point, Molly was in bad shape and was fighting for her life. The nurse asked Molly if she had spoken with her kidney doctor about the possibility of not continuing dialysis. Molly said no. This was difficult for me to hear, as Molly was making the decision to possibly not get dialysis treatment any longer. The nurse was basically telling Molly that even though her mind was strong, her body was weak and was giving up.

Most people could not go to a hospital to visit a friend or family member and listen to a nurse or doctor have a life and death conversation. Even though its difficult, its very important to be there for people like Molly, when they need us the most. Those of us with invisible disabilities can relate to people like Molly and can truly be an angel during some of the most exciting and difficult moments in people’s lives.

About Angela Pierce

Filed Under: Living with Invisible Disabilities, Relationships Tagged With: disability, illness, injury, inspiration, invisible disabilities, making a difference, personal story, reaching out, support

2012 IDA Honor Awards Banquet with Keynote Speakers, Antarctic Mike and Angela Pierce

IDA on Disability.gov – But You LOOK Good!

March 15, 2012 by admin 8 Comments

IDA Founder, Wayne Connell continues to be a very popular Guest Blogger on Disability.blog by Disability.gov.

This article, But You LOOK Good! – Learning the Language of Invisible Disabilities, was Co-Authored by IDA Ambassador, Antarctic Mike Pierce. Mike is a speaker, athlete, world record holder and caregiver. He shared his very touching story about his wife, Angela’s disability due to a climbing accident, along with their challenges and triumphs in their lives together. Be amazed and inspired by their incredible story of perseverance and love.

Article Excerpt: Have you ever shared details about your chronic illness and pain and the difficulties you experience daily, and had a person say in response, “Well, but you LOOK good?” Many people have experienced this situation and heard similar phrases that seem harmless, unless you are the one who would give up “looking good” any day to have moments of feeling good. … Read the entire blog here at Disability.gov

Leave your comments on the article and share it with your friends and family on Facebook, Twitter, LinkedIn, Google+ and by email below.

Don’t miss Antarctic Mike and Angela at the 2012 IDA Honor Awards Banquet on October 14th! They will be sharing their story and key things they have learned – For him as a caregiver, for her as a survivor and for them as a couple. Come join us! Be inspired! Be encouraged!

RELATED ARTICLES:

Antarctic Mike’s Website

Antarctic Mike, IDA Ambassador

Angela Pierce’s Blogs on IDA

Angela Pierce’s Website – Falling Off the Mountain

About

Filed Under: IDA in the News, Invisible Disabilities Assoc. Awareness Tagged With: angela pierce, antarctic mike, author, awareness, caregiver, disability, disability.gov, helpful tips, illness, injury, inspiration, invisible disabilities, loved ones, pain, personal story, speaker

American Idol Official Website

‘American Idol’ Contestant, Heejun Han Loves Working with Special Needs Children

February 28, 2012 by admin 1 Comment

Screenshot from Audition Video Copyright 'American Idol'

SEE LATEST Updates and Videos Below!

Season 11 ‘American Idol’ contestant, 22 year old Heejun Han is originally from Korea and now lives in Flushing, New York. Heejun said:

I was inspired to do this audition, because I work at a non-profit organization for kids with special needs. I wanted to prove to them that if you really, really want something and you really really believe in it, you can be someone” (Heejun’s Interview After His First Audition).

Later in the competition, Heejun admitted:

I had a bad depression, but the kids and the organization just pulled me out from there, so I just had to give something back to them. Without those kids I wouldn’t even have motivation to come out here and do all this kind of stuff. I’m not only doing this for myself. I could say that 100%, this is for the kids and it just makes me so happy” (Sing for Your Life – Heejun Han).

Heejun auditioned for ‘American Idol’ in Pittsburgh. Before his auditions, Heejun said about the other contestants, “I thought I was a little good, but they’re just crazy good” (Audition in Pittsburgh). Heejun sang, “How am I Supposed to Live Without You” by Michael Bolton.

He seemed a bit nervous, but delivered a very smooth and heartfelt song and the judges were absolutely impressed! Steven said, “Heejun, man, you sing great” Jennifer agreed, “You have a beautiful voice! I love you!” and Randy added, “On a serious note. I am really impressed and shocked!” Steven chimed in again with, “Ya, I think you’re really great. I think you could be an ‘American Idol.” Heejun was taken back by the comments and said, “Wow! Nobody told me that kind of stuff!” (Heejun’s Audition in Pittsburgh).

All three judges, Randy Jackson, Jennifer Lopez and Steven Tyler sent Heejun straight to Hollywood!

Heejun has a very dry and sarcastic sense of humor, talking about everything from the other contestants being so talented to how “pretty” and good looking they are. He said in Hollywood:

I got here and everyone’s SO tall, SO pretty. Even the guys are so pretty, I don’t know why. I don’t know what they eat, but they’re so good looking!

At one point, Ryan Seacrest asked him what he was sweating in the competition. Heejun answered, “Mostly water.”

Heejun seemed to sail right through Hollywood week, except for his personality clashes with country singer, Richie Law. Although the group seemed to be challenged, their performance got them all onto the next round. Again, Heejun’s dry sense of humor came out as he talked about the “cowboy” in his group. Nonetheless, he did apologize to Richie and his parents for his behavior on camera.

Heejun made it in the Top 24. During his interview he talked about how excited his mom was when he told her the news! Then Heejun added:

The greatest thing that I am worrying about is a “stereo-type” that they’re going to have towards me; like an Asian stereo-type. But I hope I can break that. And if they can just see me as a singer, not as a type of person. Don’t watch the music, but listen to the music. You know?”

Heejun, we think every person has something unique and special about them. There is only one you; embrace all you have been given and all you are!

UPDATE 3/29/12 – Sad to report that Heejun was sent home tonight. He was in the Bottom 3 with Hollie Cavanagh and Skylar Laine. We are sad to see you, go Heejun! Congratulations for making it to the Top 9, for staying true to yourself and for encouraging those around you to reach out to others!

Heejun said during his Curtain Call Interview:

The reason I started out this competition was to prove that if you truly believe in yourself you can become someone regardless of who you are. And if you do something for others, the outcome is something beyond imagination. I hope I impacted at least one person. So, go out there and help other people, because they’re not far away, they are right next to you in your neighborhood. Alright guys! Stay crazy, stay humble, stay cool, stay relaxed, stay who you are … cuz this is just the beginning. Let’s do this together again!

UPDATE 3/28/12 – After Heejun had been given lots of flack about his not “taking the competition seriously,” he came back full force. Heejun won’t stop being entertaining self, but the judges and mentors encouraged him to get serious and show what he can do. So, Heejun did just that with this very appropriate song and message, “A Song for You” by Donny Hathaway during the Top 9 performance show. The judges loved it.

UPDATE 3/22/12 – Heejun was in the Bottom 3 this week for the first time. Joining him was DeAndre Brackenstick and Erika Van Pelt. Although Erika belted out an amazing vocal and the judges loved it, she was sent home.

UPDATE 3/21/12 – The Top 10 perform. Heejun broke way out of his ballad streak and took over the stage. It was Billy Joel night and Heejun sang, “My Life.” The judges thought it was entertaining and fun, but didn’t show off his voice as they know he can sing.

UPDATE 3/15/12 – Although during the performance night, Randy pegged Heejun for being at risk for going home, Heejun was not even in the Bottom 3. Instead, Heejun made it into the coveted Top 10, allowing him to go on the American Idol tour.

UPDATE 3/14/12 – Heejun sang, “Right Here Waiting” by Richard Marx at the Top 11 show.

This show turned out to be the Top 11, because Jermaine Jones was removed from the competition for not having been forthright about his past history with four outstanding warrants from the police. According to the Huffington Post, three were for giving the police a false name (once when they responded to a fight, once from when he was riding in a car that was pulled over and another time when he was driving with a suspended license). The other was for not showing up for a court date.

UPDATE 3/8/12 – Out of the Top 13 (7 guys and 6 gals), Heejun was not in the bottom 6 (3 guys, 3 gals). He whisked right through again!

UPDATE 3/7/12 – Heejun sang, “All In Love is Fair” by Stevie Wonder for the Top 13 Performance night. Jennifer said, “I love you! I loved you from the first time you sang for me and I still love you now. ” Steven said, “Heejun! Fantastic! I love your voice, man. Somethin’ about it’s real special. Keep it up.” Randy added, “Dude! It wasn’t perfect, but it was REALLY good!”

UPDATE 3/1/12 – Heejun made it into the Top 10 by America’s votes! Joining him are Colton Dixon, Elise Testone, Hollie Cavanagh, Jermaine Jones, Jessica Sanchez, Joshua Ledet, Phillip Phillips, Shannon Magrane and Skylar Laine. Then the judges let six more kids “sing for their lives.” The judges each picked one more contestant to join the Top 10, to make a Top 13: Jeremy Rosado, Erika Van Pelt and Deandre Brackensick.

UPDATE 2/28/12 – Heejun sang, “I’m Loving Angels Instead” by Jessica Simpson. Heejun did a great job! The judges agreed, but commented that the song didn’t show off all of his capabilities. As promised, an additional male vocalist was added to the round. Formerly disqualified, Jermaine Jones was asked to return for another chance. On Wednesday, the Top 12 girls will have a chance to sing. On Thursday, the Top 25 (previously the Top 24) will be narrowed down to the Top 12. Ten will be chosen by America’s votes and two by the judges.

UPDATE 2/23/12 – Heejun sails into the Top 24 with his rendition of “New York State of Mind” by Billy Joel.

Also going into the Semi-Finals are Aaron Marcellus, Adam Brock, Baylie Brown, Brielle Von Hugel, Chase Likens, Chelsea Sorrell, Colton Dixon, Creighton Fraker, Deandre Brackensick, Eben Franckewitz, Elise Teston, Erika Van Pelt, Haley Johnsen, Hallie Day, Hollie Cavanagh, Jen Hirsh, Jeremy Rosado, Jessica Sanchez, Joshua Ledet, Phillip Phillips, Reed Grimm, Shannon Magrane, Skylar Laine. On Tuesday February 28th, they will be announcing a Surprise Save, as they add another boy into the Semi-Finals who was previously sent home.

UPDATE 2/16/12 – Heejun moved on to the next rounds as the contestants went from 70 to 42.

UPDATE 2/15/12 – Heejun survived Hollywood week and moved on to Las Vegas!

UPDATE 2/15/12 – Heejun made it through group rounds! 97 other contestants joined him, including Jennifer Malsh, Cari Quoyeser, Reed Grimm, Nick Boddingtom, Creighton Fraker, Aaron Marcellus, Jen Hirsh, Shannon Magrane, Joshua Ledet, Brielle Von Hugel, Amber Holcomb, Mathenee Treco, Ariel Sprague, Eben Franckewitz, David Leathers, Jr., Jeremy Rosado, Gabi Carrubba, Johnny Keyser, Heejun Han, Jairon Jackson, Richie Law, Phillip Phillips, Colton Dixon, Adam Brock, Skylar Laine and many more.

VIDEOS:

Heejun’s Farewell Message

Heejun sings, “A Song for You” by Donny Hathaway during the Top 9 performance show

Heejun in the Top 10 Singing, “My Life” by Billy Joel.

Heejun in the Top 11 Singing, “Right Here Waiting” by Richard Marx.

Heejun Han in 60 Seconds

Heejun Singing “All In Love is Fair” by Stevie Wonder During the Top 13 Performance Show

Top 13 Group Singing “As” by Stevie Wonder.

Recap of Top 13 Performance Night

Heejun’s Interview After Making it Into the Top 13

Heejun sings, “Angels” by Jessica Simpson in the Top 24

Recap of Top 12 Guys, Plus the Surprise Addition of Jermaine.

Heejun Han Interview After Being Selected for the Top 24.

Heejun’s Interview and Solo in Las Vegas, Before the Top 24 was Announced. Heejun sang, “New York State of Mind” by Billy Joel.

Las Vegas Round – “I Only Have Have Eyes for You” by The Flamingos. Neco Starr, Jairon Jackson, Heejun Han and Phillip Phillips.

MIT aka “Most International Team” Group Night in Hollywood Singing, “Broken Strings” by James Morrison. Richie Law, Jairon Jackson, Heejun Han and Phillip Phillips.

Recap of Hollywood Week – Group Night

Hollywood Week – Round 1

Hollywood Week – Moments That Make You Smile

Heejun’s Interview After His First Audition.

Heejun’s Audition in Pittsburgh. A Must See!

Recap of Pittsburgh Auditions

ARTICLE RESOURCES:

Quotes from Videos Posted on This Page.

Photo: Screenshot from ‘American Idol’ Audition Video. Copyright ‘American Idol.’

ADDITIONAL RESOURCES:

Heejun Han’s Facebook Page

MilAl Mission in New York

ADDITIONAL STORIES on IDA:

Shelby Tweten, Teen with Bipolar on ‘American Idol.’

Living with Asperger’s and Tourette’s: James Durbin Contestant on ‘American Idol.’

Living with TBI: ‘American Idol’ Contestant, Chris Medina, Stands by Fiance

About

Filed Under: Celebrities, Invisible No More, Personal Stories Tagged With: american idol, caregiver, heejun han, inspiration, jennifer lopez, learning disabilities, news, personal story, randy jackson, ryan seacrest, steven tyler, television, video

Doctor’s Perspective Changes When She Gets Cancer

February 23, 2012 by admin 1 Comment

As a Molecular Geneticist and Oncologist, Jennifer Kelly, MD was quite familiar with Cancer patients and treatments.

Still, she was surprised to find herself responding in some of the same ways that her patients have. Most of all, she realized that she was no longer the doctor, but the patient.

Dr. Kelly wrote:

While I am still battling cancer and have not yet returned to work nor am I leading a normal life, my illness has changed me profoundly as a physician. No amount of doctoring can prepare you for being a patient. During the past year, I have endured multiple treatment methods, metastasis, and most recently the discovery of a brain tumor that threatens my eyesight. The past year has been full of the most vulnerable moments in my life.

If anything, it’s that recognition of vulnerability as well as expertise that makes me a better doctor today (medpageTODAY’s KevingMD.com).

Read full story.

ARTICLE RESOURCE

A diagnosis of stomach cancer profoundly changes an oncologist. Jennifer Kelly, MD, PHD. medpageTODAY’s KevinMD.com. February 2012.

Stock Photo. Dr. Kelly not in picture.

About

Filed Under: Invisible No More, Personal Stories Tagged With: awareness, cancer, disability, doctors and nurses, illness, inspiration, invisible disabilities, personal story

Nurse-Patient Relationships Endure

February 20, 2012 by Kris Harty Leave a Comment

When attending a patient’s funeral, they blended in among the other mourners.

Nothing made them stand out, as they would in their normal work environment.

But this was not that. The graveside service was simple yet honorable. Snippets of conversation floating on the breeze caught my ear.

It was those snippets that amazed me.

I knew nurses were dedicated to their patients, but this was all new territory, at least for me. They seemed completely at ease, as though this was part of what they do everyday.

It made me wonder if it was routine to them.

Do nurses follow their patients beyond bedside duty? Do they feel a responsibility, a caring, a compassion not only for the patient, but the patient’s family?

Once their caregiving is no longer needed, do they still feel a connection to their patients?

Do they go so far as to attend a funeral of a deceased patient who had been in their care?

How utterly and phenomenally lovely and loving is that?

It’s compassion I don’t fully understand, from my limited viewpoint as a patient. It’s one I admire more than I can say.

I would want that for me, one day – a loooong way into the future, preferably.

I listened a bit more intently.

“I’m sorry, I don’t recognize you. Are you a friend of someone in the family?”

“We’re here because we were among the nurses in the hospital who treated him.”

“Oh! I didn’t recognize you. I’m so sorry.”

“That’s ok. You probably weren’t expecting to see us here. It’s the whole ‘out of context’ thing when trying to recognize faces.”

“It’s so kind of you to be here. Thank you so much for taking the time. Our dad received such great care at the end and you helped make a really difficult time a little easier.”

Their conversation created a lump in my throat. Wistful memories flashed in my mind.

As with any funeral, each one takes me back to two specific earlier funerals: my mom’s and my dad’s. While I don’t recall health care givers in attendance, I wouldn’t have been surprised if some had been there, especially among those at my mom’s funeral.

As a college student, I was too wrapped up in my own grief to give much attention to anyone not immediately recognizable. But I do recall the seemingly extra measures of kindness shown my mom by her nurses in her last days, while hospitalized.

The memory of the nurses’ gentle care of my mom impresses me still, a quarter century later.

If they weren’t at her funeral, I know it wouldn’t have been for lack of caring. They seemed the type who would have been there or who would have wanted to be there, if circumstances allowed.

I’m glad they were there for my friend’s dad’s service.

I like to think it’ll be a comfort for him and his family years later. It’s hard to remember details of those days later on; our memories can only store so much in the form of details or grief. I know it had to be comforting at the time.

Those nurses took their patient relationship to the next level. It inspired not only those in the relationship, but the rest of us who had the comfort of witnessing it, if only from a distance and after the light of it faded.

Reprinted with kind permission from NurseTogether.com

About Kris Harty

The Short Chick with the Walking Stick is Kris Harty, Stickability Specialist. Kris’ expertise as an entrepreneur and a lifelong patient helps entrepreneurs and those in healthcare – on the giving and receiving ends – to persevere and Stick To It-No Matter What! Kris speaks, writes, facilitates and regularly contributes to online medical journals, in addition to recently publishing her first book A Shot in the Arm and a Strong Spirit: How Health Care Givers Help Patients Persevere. She can be reached through her company's Web site, www.ShortChick.com or call 1.877.711.KRIS or through any of the links directly below.

Filed Under: Disability & Healthcare, Living with Invisible Disabilities Tagged With: author, awareness, disability, doctors and nurses, illness, injury, inspiration, invisible disabilities, kris harty, personal story, speaker

‘American Idol’ Official Website

Shelby Tweten, Teen with Bipolar on ‘American Idol’

January 26, 2012 by admin 1 Comment

Photo courtesy of Shelby Tweten Facebook Page

Latest Updates and Videos of Shelby!

17 year old, Shelby Tweten from North Mankato, Minnesota auditioned for ‘American Idol’ in Denver, Colorado. Shelby and several of the contestants from Denver were invited to travel and stay in Aspen, Colorado for the round of auditions that were recorded for television.

Shelby was also chosen to have a back-story about her life to be presented during the airing of the auditions on January 25th.

In this video package, Shelby and her mom share a little bit about Shelby’s challenging journey. Just last year, Shelby was diagnosed with bipolar disorder. However, she says she has battled depression since the fourth grade.

Shelby said,

“American Idol’ has given me a reason to stay on my meds.” Shelby continued, “I wasn’t focusing on staying with them, cuz I really didn’t care. When I’m off my meds, I’m incoherent and I’m not myself.” Her mom added, “She doesn’t have the light in her.”

Shelby opened up with,

“There’s been times when I’ve had hypo-manic episodes. I’ll be shaking, I will stutter, I can’t control my body and my mom will be like, ‘Well, let’s sing together!’ And I’ll sing and it really helps!”

After Shelby’s audition, all three judges, Randy Jackson, Jennifer Lopez and Steven Tyler agreed to send her to Hollywood for the next rounds!

UPDATE 2/23/12 – See more news on the Top 24! Click here: ‘American Idol’ Contestant, Heejun Han Loves Working with Special Needs Children

UPDATE 2/23/2012 – Shelby did not make it into the Top 24. We are sad to see you go home, Shelby! But we are proud of you! Keep singing and go back next year!

The Top 24 going into the Semi-Finals are Aaron Marcellus, Adam Brock, Baylie Brown, Brielle Von Hugel, Case Likens, Chelsea Sorrell, Colton Dixon, Creighton Fraker, Deandre Brackensick, Eben Franckewitz, Elise Teston, Erika Van Pelt, Haley Johnsen, Hallie Day, Heejun Han, Hollie Cavanagh, Jen Hirsh, Jeremy Rosado, Jessica Sanchez, Joshua Ledet, Phillip Phillips, Reed Grimm, Shannon Magrane, Skylar Laine.

On Tuesday February 28th, they will be announcing a Surprise Save, as they add another boy into the Semi-Finals who was previously sent home.

UPDATE 2/16/12 – Shelby moved on to the next rounds as the contestants went from 70 to 42.

UPDATE 2/15/12 – Shelby survives Hollywood week and moved on to Las Vegas!

UPDATE 2/15/12 – Shelby made it through group rounds!

97 other contestants joined her, including Jennifer Malsh, Cari Quoyeser, Reed Grimm, Nick Boddingtom, Creighton Fraker, Aaron Marcellus, Jen Hirsh, Shannon Magrane, Joshua Ledet, Brielle Von Hugel, Amber Holcomb, Mathenee Treco, Ariel Sprague, Eben Franckewitz, David Leathers, Jr., Jeremy Rosado, Gabi Carrubba, Johnny Keyser, Heejun Han, Jairon Jackson, Richie Law, Phillip Phillips, Colton Dixon, Adam Brock, Skylar Laine and many more.

VIDEOS:

Shelby with her group singing, Great Balls of Fire in Las Vegas

Recap of Hollywood Week – Group Night

Hollywood Week – Round 1

Shelby’s Audition in Aspen, CO and back-story package about her.

‘American Idol’ Aspen Auditions – ‘American Idol’

ARTICLE RESOURCES:

Photo Courtesy of Shelby Tweten Facebook Page

ADDITIONAL RESOURCES:

Bipolar Disorder Does Not Define Shelby Tweten on ‘American Idol.’ Video from MTV.com

Shelby Tweten – “Temporary Home” – Idol2012TV

ADDITIONAL STORIES on IDA:

‘American Idol’ Contestant, Heejun Han Loves Working with Special Needs Children

Shelby Tweten, Teen with Bipolar on ‘American Idol.’

Living with Asperger’s and Tourette’s: James Durbin Contestant on ‘American Idol.’

Living with TBI: ‘American Idol’ Contestant, Chris Medina, Stands by Fiance

About

Filed Under: Celebrities, Invisible No More, Personal Stories Tagged With: american idol, awareness, behavioral disorders, bipolar disorder, celebrity, depression, disability, illness, inspiration, invisible disabilities, Invisible No More!, jennifer lopez, news, personal story, randy jackson, ryan seacrest, singer, spreading the word, steven tyler, video