Invisible Disability
By Rhonda Moore,
Elbert County News Staff Writer
The day Wayne and Sherri Connell married, they knew their
union was special. What they didn't know was that together they would one day
reach out and touch the lives of thousands.
The Connells, of Elbert County, are the founders of the educational forum the
Invisible Disabilities Advocate, a nonprofit organization formed in 2004 as a
result of the couple's personal experience.
Sherri Connell lives with multiple sclerosis and Lyme disease, two diseases with
symptoms not always visible to the naked eye. After the couple married in 1994,
Sherri decided to educate their extended family about her symptoms via a
pamphlet with information on how to live with what she coined "an invisible
disability."
Her research blossomed into an organization to reach out to other families whose
lives are changed by an invisible disability and whose numbers run in the
millions.
"The Invisible Disabilities Advocate reaches across all chronic illness groups
by providing a common resource for the caregivers, family and people suffering
from illness, pain and fatigue," Wayne said.
In a report summary for a Capitol Hill briefing in Washington, D.C. on women's
health and chronic illness by the National Institute of Nursing Research, the
institute said more than 40 million people are limited in their daily activities
by chronic illness.
With up to 45 percent of the population affected by a chronic illness, Wayne
said his organization bridges the gap between advocacy groups serving a specific
illness to provide resources for all who live with a chronic condition.
"An invisible disability or chronic illness can be mental disorders such as
bi-polar disorder or depression, or it can be something like lupus, fibromyalgia,
chronic fatigue or Reflex Sympathetic Disorder," Wayne said. "Someone with a
visible disability can spend their lives explaining what they can do when they
look like they can't. People with an invisible disability spend their lives
explaining that they're not able to do things but they look like they can."
The challenge facing families and caregivers in cases where symptoms are
invisible motivated Sherri to pen the booklet, "But You Look Good." A guide for
caregivers, spouses, patients and families who live with an invisible
disability, its readers report the information is life changing, Wayne said.
Among the many challenges facing families touched by an invisible disability is
the need to see the disability to believe it, he said.
"We've had husbands on their knees asking their wife for forgiveness for the way
they've treated them after they get the book," he said. "They might have spent
years saying it could be improved by a positive attitude. Sometimes a person
suffering from an invisible disability is showing a positive attitude just by
taking a shower that day. The book has been an amazing thing."
The Connells developed a series of seminars based on information gleaned from
the book to help people learn to live a full life with chronic illness, he said.
Joined by Dr. Jeffrey H. Boyd, author of "Being Sick Well," two classes are
available at Parker Adventist Hospital April 28 and 29.
In the seminar, Boyd addressed four main causes of chronic illness and uses case
histories, personal testimonies, and a variety of resources to illustrate not
just how to cope, but how to live joyfully even in sickness.
Connell outlines the guide from their book, "But You
Look Good" with practical tips on what to say, what not to say and how to help
someone who lives with a debilitating condition. The book has elicited enormous
response on the Invisible Disabilities Advocate Web site, with more than 10,000
visitors a month, he said. "We want people to
understand they're not alone out there," Wayne said.
The seminar is free to the public. To register, call 303-269-4001. For more
information about the Invisible Disabilities Advocate and to view information
about the book and seminar schedules, visit the Web site at
www.myida.org.
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