A-B |
C-D |
E-F |
G-H |
I-J |
K-L |
M-N |
O-P |
Q-R |
S-T |
U-V |
W-Z |
Accessible Parking
Adhesions Related Disorder
International Adhesions Society
ALS
Articles on Illness
But They LOOK So Good! – The Paradox of Feeling Bad, but Looking Good. Excerpt of Part 1 of the booklet, But You LOOK Good!
Coping with Invisible MS – Article from the Alliance Exchange © Avonex Alliance, written about Sherri and invisible disabilities
For Friends and Family: How to Help – Article from the MSFocus Magazine © the MS Foundation, excerpted from But You LOOK Good!
Knowledge is Power! Educate the Masses! – By S.W. Hussey and Sherri Connell.
Multiple What? – Untangling the Perplexities of Multiple Sclerosis. An explanation to dispel assumptions that all with MS have the same symptoms and severity of symptoms.
Why Go Fragrance Free - Are Perfumes and Fragrances Making You Sick?
Why Don’t They Just Take Something? – Living in the Gap.
Arachnoiditis
Arnold Chiari Malformation
World Arnold Chiari Malformation
Zipperheads for Chiari on Facebook
Arthritis
American College of Rheumatology
International Stills Disease Foundation
Autism
The Johnson Center for Child Health and Development
Autoimmune Disorders
American Autoimmune Related Diseases Association
American Behcet’s Disease Association
Behcet’s Disease Books and Resources
National Eosinophilia-Myalgia Syndrome Network
John Hopkins Vasculitis Center
The Polyarteritis Nodosa (PAN) Research and Support
Bone and Skeletal Conditions
Illinois Bone and Joint Institute
National Osteonecrosis Foundation
Osteonecrosis-Avascular Necrosis Support Group International Association
Bowel and Digestive Disorders
Cyclic Vomiting Syndrome Association
Irritable Bowel Syndrome (IBS)
Irritable Bowel Syndrome Resource Ctr
Brain Injury
All About Traumatic Brain Injury
The Center for Head Injury Services
International Brain Injury Association
Traumatic Brain Injury Resources
American Brain Tumor Association
Asbestos and Mesothelioma Center
Cancer Treatment Centers of America
CyberKnife Robotic Radiosurgery System
The Leukemia & Lymphoma Society
Mesothelioma Information and Resource Group
Caregivers/Family
National Family Caregivers Association
Chronic Cerebrospinal Venous Insufficiency
Chronic Fatigue
Fibromyalgia and Chronic Fatigue
Researchers Tie Gene Cluster to Chronic Fatigue
Chronic Illness
Improving Chronic Illness Care
National Chronic Care Consortium
The Chronic Syndrome Support Association (CSSA)
Chronic Pain
The American Academy of Pain Management
North American Chronic Pain Association of Canada
Pain.com Pain Management Resource
Community Services
National United Way (Access Your Local UW from This Site)
Crohns and Colitis
Crohn’s and Colitis Foundation of America
Crohn’s Disease Resource Center
Cystic Fibrosis
Diabetes
Juvenile Diabetes Research Foundation International
Disability Links
Visit IDA’s Disability Information Links Page
Dysautonomia
Dysautonomia Information Network
Dysautonomia Youth Network of America
National Dysautonomia Research Foundation
Dyslexia
Davis Dyslexia Association International
International Dyslexia Association
Recording for the Blind and Dyslexic
Ehlers-Danlos Syndrome Network C.A.R.E.S. Inc
Ehlers – Danlos National Foundation
Encephalitis
The Encephalitis Society (West Nile Virus)
Endometriosis
Environmental Illness
Visit IDA’s Cleaner Indoor Air Campaign
Fibromyalgia
FMS/CFIDS Sufferers Unite Million Letter Campaign May 2005
Fibromyalgia Aches and Pains as a “Symptom” of Hypothyroidism
National Fibromyalgia Partnership
National Fibromyalgia Association
Ambiguous Loss (Pauline Boss, Ph.D)
American Academy of Bereavement
Hearing Impairment
Silence Has a Sound – Lori Frisher
Hemochromatosis
American Hemochromatosis Society
Hepatitis
HIV
Humor
Association on Applied and Therapeutic Humor
Interstitial Cystitis Association
Learning and Developmental Differences
Association for Comprehensive NeuroTherapy
Hi2U 4 people with hidden impairments
Learning Disabilities Association of America
Learning Disabilities Association of California
National Center for Learning Disabilities
Liver Disorders
Lupus
Lyme Disease
Visit IDA’s Lyme Disease Links Page
Journal of the American Medical Assoc.
Medi-Smart Nursing Resource Ctr
National Institutes of Health (studies, research)
The New England Journal of Medicine
NOAH: New York Online Access to Health
Medical Information (Alternative & Nutrition)
Nutritional Supplements.com (unbiased consumer reviews on vitamins and drugs)
Remedyfind (supplements and medications rated & reviewed)
Medical Market Research
Healthcare Landscape www.healthcarelandscape.com
Medical Translations
Spanish Medical Translations www.acr-translations.com
Mental Health
American Psychological Association www.apa.org
Bay Area Psychological Testing Assoc. www.bapta.com
Bipolar Children http://hometown.aol.com/DrgnKpr1/BPCAT.html
Bipolar Disorder Overview from MayoClinic.com – www.mayoclinic.com/health/bipolar-disorder/DS00356
Depression (hormonal issues) www.drmirkin.com/women/1233.html
Depression Forums www.DepressionForums.org
Depression-Guide.com www.Depression-Guide.com
Depression Learning Path www.clinical-depression.co.uk
Depression.com (information on drug and natural treatments) www.depression.com
Mental Health and Illness.com www.mentalhealthandillness.com
Mental Health Net www.mentalhelp.net
NAMI The Nation’s Voice on Mental Illness www.nami.org
No Kidding? Me Too! (Brain Dis-eases) by Actor Joe Pantoliano www.NKM2.org
Silver Ribbon Campaign for the Brain www.silverribbon.org
total-health-care.com www.total-health-care.com
Migraines
Multiple Chemical Sensitivities
Visit IDA’s Cleaner Indoor Air Campaign for information and resources
Multiple Sclerosis
Consortium of Multiple Sclerosis Centers
MS MuSings- Online Magazine for MS
Multiple Sclerosis Association of America
Multiple Sclerosis Central Support
Multiple Sclerosis Resource Center
Multiple Sclerosis Society of United Kingdom
National Multiple Sclerosis Society
Rotarian Fellowship of MS Awareness
Tri-State Multiple Sclerosis Association
Myalgic Encephalomyelitis (M.E.)
Myasthenia Gravis
Myasthenia Gravis Meeting Place www.myasthenicmeetingplace.org.uk
The Myasthenia Gravis Foundation of America www.myasthenia.org
Neurological Disorders
A WiserMind www.awisermind.com
The American Academy of Neurology www.aan.com
The American Academy of Neurology Foundation www.neurofoundation.org
Cauda Equina Syndrome www.caudaequina.org
CNS Vasculitis Foundation www.cnsvf.org
Central Nervous System Vasculitis Foundation, Inc www.cnsvfinc.org
Intracranial Hypertension Research Foundation www.ihrfoundation.org
The Noise Center -Promotes hearing conservation and noise awareness through education, advocacy and outreach. International Noise Awareness Day educates the general public about the harmful effects of noise on hearing, health and the quality of life. www.lhh.org/noise
National Inst. NINDS www.ninds.nih.gov
Spastic Paraplegia Foundation www.sp-foundation.org
Stiffman Syndrome www.stiffman.org
Thoracic Outlet Syndrome www.tellmeabouttos.com
Neuropathy
Neuropathy Association www.neuropathy.org
BrainTalk Communities www.BrainTalk.org
IDA’s Online Support Group www.InvisibleDisabilitiesCommunity.org
MDJunction.com www.mdjunction.com
Parents with Disabilities
Parenting With An Illness www.angelfire.com/sk/ruthb1
Rest Ministries Parenting With An Illness www.restministries.com/category/relationships/parenting/
Pancreas
The Pancreatitis Place www.pancreatitisplace.org
Parkinson’s Disease
The Michael J Fox Foundation for Parkinson’s Research www.michaeljfox.org
National Parkinson Foundation www.parkinson.org
Parkinson’s Alliance www.parkinsonalliance.net
Pelvic Pain
The International Pelvic Pain Society
Physical Differences
Pituitary Issues
Brain Tumor – Pituitary Adenoma www.brain-tumor.org/81_Pituitary_adenomas.html
Neuroendocrine neurosurgery.mgh.harvard.edu/neuroendocrine/
Pituitary Network Association www.pituitary.org
UCSF Pituitary Treatment Center ccpd.ucsf.edu
Post-Polio Syndrome
International Post Polio Health www.post-polio.org
Post Polio Network www.polionet.org
Post-Polio Syndrome Central www.skally.net/ppsc/
Post Traumatic Stress Disorder (PTSD)
PTSD Combat: Winning the War Within
Primary Biliary Cirrhosis
PBC Patient Support Network www.pbcers.org
Raynaud’s Foundation members.aol.com/raynauds/index.htm
Rare Disorders
Basal Cell Carcinoma Nevus Syndrome www.bccns.org
National Organization Of Rare Diseases www.rarediseases.org
Respiratory Disorders
RSD & CRPS
Canadian RSD www.canadianrsd.com
Reflex Sympathetic Dystrophy Syndrome Association www.rsds.org
RSD Awareness www.rsdawareness.com
RSD Coalition www.rsdcoalition.com
RSD Hope www.rsdhope.org
RSI (Repetitive Strain Injury)
Carpal Tunnel Syndrome and Repetitive Strain Injuries: www.repetitive-strain.com
Computer-Related Repetitive Strain Injury rsi.unl.edu
CTDNews — Workplace Solutions for Repetitive Stress Injuries www.ctdnews.com
CTD Resource Network, Inc www.ctdrn.org
WorkPace: www.workpace.com/more
National Sarcoidosis Resource Center www.nsrc-global.net
SarcInfo.com www.sarcinfo.com
Sarcoidosis Center www.sarcoidcenter.com
Sarcoidosis Online Sites www.sarcoidosisonlinesites.com
Scleroderma
Scleroderma From A-Z www.sclero.org/medical/about-sd/a-to-z.html
Scleroderma Foundation www.scleroderma.org
Service Dogs
Visit IDA’s Service Dog Information Page
Sjogren’s
Lynne’s Sjogren’s Page www.lynne-sjogrens.org
National Sjogren’s Syndrome Assoc. www.sjogrens.org
Sjogren’s Syndrome Foundation www.sjogrens.com
Skin Disorders
FIRST – Foundation for Ichthyosis & Related Skin Types
Sleep Disorders
American Sleep Apnea Assoc www.sleepapnea.org
Narcolepsy Network www.narcolepsynetwork.org
National Sleep Foundation www.sleepfoundation.org
Restless Legs Syndrome www.tldp.com/issue/179/restless_legs_syndrome.htm
Restless Leg Syndrome Foundation www.rls.org
Sleep/Wake Disorder Canada www.swdca.org
Sleepnet.com www.sleepnet.com
The Sleep Well www.stanford.edu/~dement
Talk About Sleep www.talkaboutsleep.com
Suicide
National Hotline1-800-SUICIDE (1-800-784-2433)
Second Wind Fund of Metro Denver
Suicide Prevention/Voices of Education website for info www.save.org
Stroke
Stroke Family www.strokefamily.org
The Stroke Network www.strokenetwork.org
Thyroid Disorder
Endocrine Web www.endocrineweb.com
Endocrinologists Say TSH Normal Range is Now 0.3 TO 3 … Millions More Have Thyroid Problems Under New Guidelines www.thyroid-info.com/news/janfeb2003.htm#endos
Fibromyalgia Aches and Pains as a “Symptom” of Hypothyroidism thyroid.about.com/library/weekly/bldrlowe.htm
Hypothyroid Patients… (T4 Conversion to T3)- Nikki Tovell www.bmj.com/cgi/eletters/315/7120/1463#8452
Is Your Hypothyroidism UNDERtreated? thyroid.about.com/library/weekly/aa081499.htm
Optimum Diagnosis and Treatment of Hypothyroidism With Free T3 and Free T4 Levels- Dr. Mercola www.mercola.com/article/hypothyroid/diagnosis_comp.htm
Thyroid Disease- Mary Shomon thyroid.about.com/mbody.htm
Thyroid-Info- Mary Shomon www.thyroid-info.com
T3 Triiodothyronine Drugs Improve Quality of Life for Hypothyroidism- Review of New England Journal of Medicine article www.thyroid-info.com/articles/t3drugsnejm.htm
Use of T3 Thyroid Hormone to Treat Depression- Dr. Mirkin www.drmirkin.com/morehealth/G171.htm
TMJ & Other Facial, Jaw & Head Pain
Maxillo Facial Center www.maxillofacialcenter.com
TMJ Association www.tmj.org
TMJ Friends www.tmjfriends.com
TMJ Treatment Center www.drtthomasson.com
Trigeminal Neuralgia Assoc www.tna-support.org
Toxic Injury and Encephalopathy
Visit IDA’s Cleaner Indoor Air Campaign
Transverse Myelitis
Transverse Myelitis Organization
Cryoglobulinemia Vasculitis Organization
Society of Interventional Radiology
Vestibular Disorders
MdDS Balance Disorder Foundation
Vestibular Disorders Assoc (VEDA)
Vitamins & Supplement Reviews
Nutritional Supplements.com (unbiased consumer reviews on vitamins and drugs) www.nutritionalsupplements.com
Remedyfind (effectiveness of supplements and medications rated & reviewed) www.remedyfind.com
Wilson’s Syndrome Foundation Thyroid Condition www.wilsonssyndrome.com
Women’s Issues
Vulvodynia: Diagnosis and Treatment
Wounds
Association of the Advancement of Wound Care
Youth
Children’s Miracle Network Hospitals
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DISCLAIMER: The Invisible Disabilities Association (IDA) does not necessarily agree with all information contained within this website, pages, articles, comments, links, etc. Posted links and information does not constitute endorsement of any website, organization, business, product or service. Neither IDA nor any of our affiliates, board members, volunteers etc. can be held responsible for any information, comments or opinions expressed within this site or any linked sites. Data contained in this web site should not be construed as medical or legal advice. Use your own discretion and seek medical or legal advice from a professional before taking action or making any changes.
SUGGEST A LINK: Don’t see a link pertaining to your condition? Suggest one! Our links were provided by IDA volunteers and visitors. We value the opinions of our readers and want to know which websites best speak to you and your challenges. If you own a professional website or non-profit organization and would like to exchange links or you would like to suggest a link to your favorite health organization, please send your request to IDA through our contact page. With a few exceptions, link suggestions to health product sales and treatment sites will not be accepted. IDA reserves the right to post or not post any links for any reason.
THIS IS NOT A LIST of Invisible Disabilities: We do not maintain a list of specific illnesses and diagnosis’s that are considered invisible disabilities. Invisible disabilities are such symptoms as debilitating fatigue, pain, cognitive dysfunctions and mental disorders, as well as hearing and eyesight impairments and more. There are thousands of illnesses, disorders, diseases, dysfunctions, birth defects, impairments and injuries that can be debilitating. Therefore, all conditions that are debilitating are included when we talk about invisible disabilities throughout the website.
However, our focus is not to attempt to provide a vast amount of information about thousands of specific conditions (there are plenty of websites that do that). We are here to provide awareness, education, connection and support for everyone who lives with a debilitating condition. We do this by offering articles, pamphlets, booklets, resources, radio, video, seminars and more to give hope and compassion to all living with invisible disabilities as well as information for loved ones to better understand. If you would like to suggest a link to an organization or foundation that provides information about your specific condition, please send it to us through the contact page. We would love to hear about it! Please see our page, “What is an Invisible Disability” for more information.
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