We All Believe in Love

Kathe and David SkinnerWe  believe in love, we just don’t practice it.

Maybe because we think love has no limits, no boundaries, that all is fair.  Love conquers all and love never ends.  Besides time, love is the greatest healer.  And along with diamonds, love is forever.

If that’s true, what about the chart-topping occurrence of divorce?  It’s said that love never fails, but it does.  As for remarriage, those vows would have to be toned down to reflect this second-hand (or third or more) love.   But they’re not.

Love is conditional.   We love for different reasons, with the reasons shifting and shaping over time together and time separately.  In the beginning, each of us has a different definition, based mostly on expectations.  Usually kicking and screaming, the realization hits that being “in love” suggests a togetherness, a “we-ness”; it’s that definition that relationship is about.  It’s a definition that must be known, spoken aloud, and agreed to by both parties and must be flexible enough to join us wherever we are in life.  Most of the couples I see in my office are still clinging to a separate love definition.

In a purely selfish way, my attention comes to focus on invisible disability.  And how that sometimes becomes a deal breaker when it comes to the limits of love.  Besides losing partner-love (or maybe because of it), self-love takes a big hit when the cause of break-up may be disability or chronic illness. Don’t kid yourself (but you will) into believing that your definition of love is your partner’s definition. Remember that the definition of love morphs over time; love is defined by each partner because of all the elements that go into who we are at that moment.

I always disclose to my clients the fact of my MS; one time a client told me he couldn’t work with me because I was “broken”.  Taken aback, I recovered enough to ask him to reconsider, to think about it until our next session.  I’d never had a client be so direct and I’ll admit I was hurt to be judged for my disease.  We did work together very successfully and, at his final session, he told me that he had come to realize that because of his severe anxiety, he was “broken”, too.  I’ve never forgotten how moved I was that my invisible disability led to his introspection and greater understanding of himself.  Best of all, he not only didn’t judge me, but he didn’t judge himself.

It’s crucial at the most basic, core level to actively and with intent search out love’s meaning.  Taking for granted that your definitions are the same leads only to stalemate; bullying for agreement leads to worse.  This love is about the “us-ness”  each of you gives over; anticipating that it will not always be as you first described love in those first dewy moments, faces the reality of who we become together.  Or if we do at all.

About Kathe Skinner

Kathe Skinner is a Marriage & Family Therapist turned Relationship Coach in private practice. She conducts Couples Retreats in fabulous places, offers webinars and holds Couples Communication Classes along the Front Range of Colorado. She and her husband David live in Colorado Springs with two hooligan cats. She has been diagnosed with multiple sclerosis for over 30 years.

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Research Links Isolation, Stress and Disability

Allsup Highlights Resources, SSDI Help as More Research Links Isolation, Stress and Disability

Allsup outlines benefits of online communities and disability organizations, especially for those stressed while seeking Social Security Disability Insurance benefits.

Belleville, Ill.—April 3, 2013—It won’t surprise someone battling a long-term serious chronic illness or disability, but recent studies confirm the health impacts of isolation and stress. The studies highlight the value of supportive resources, according to Allsup, a nationwide provider of Social Security Disability Insurance (SSDI) representation.

“Anxiety, loneliness and depression can strongly affect a person’s physical and emotional state, and more researchers are showing the impact for those with chronic illnesses,” said Tricia Blazier, personal financial planning manager for Allsup.

Recent studies include those by researchers at Ohio State University College of Medicine (“Loneliness predicts pain, depression, and fatigue: Understanding the role of immune dysregulation”) and the University of California-San Francisco (“Loneliness in Older Persons: A Predictor of Functional Decline and Death”). They indicate that loneliness has an impact on people’s functional abilities, especially for older adults, and weakens their immune systems, among other effects.

“Many people may not know how or who to ask for help, but it’s important to seek out support from organizations like Allsup and groups that we work with,” Blazier said.

Resources include the National Alliance on Mental Illness, Lupus Foundation of America, Invisible Disabilities Association, United Spinal Association and the Caregiver Action Network. “Many nonprofit groups have volunteers and peer groups to connect you to resources and people who have your condition, and live in your area,” Blazier explained.

It can be a difficult transition for those who recently experienced a severe disability, such as an injury or quickly worsening illness, Blazier said. It’s hard to go from working, with a built-in social network and feelings of competency and productivity, to a more home-based life centered around medical concerns.

Many people have additional stress with financial worries and the process of seeking Social Security Disability Insurance can be lengthy and complicated. More than two-thirds of applicants are denied SSDI benefits, and the process of seeking a disability appeal can be stressful. A survey of customers who received their Social Security benefits with Allsup’s help found that 75 percent experienced extreme or significant stress during the SSDI process.

Social Security Disability Insurance is a federally mandated insurance program overseen by the Social Security Administration. To qualify for SSDI, individuals must have a severe disability expected to last for more than 12 months or is terminal. Individuals must have paid FICA payroll taxes to be eligible and, typically, must have worked five out of the last 10 years. Find more information on Allsup.com.

Allsup offers a variety of resources, including Allsup Place, a free online community for visitors and customers. One customized tool is the “Locate Resources” option. Users have access to hundreds of resources for their needs, including community agencies and government websites based on the state they live in and their condition.

“It’s important to seek supportive relationships in the wake of a severe disability,” Blazier added. “Along with serving as an expert SSDI representative, Allsup professionals understand and help many of our customers to locate important resources.”

To determine if you are eligible for Social Security Disability Insurance benefits, call the Allsup Disability Evaluation Center at (800) 678-3276 for a free SSDI eligibility evaluation.

ABOUT ALLSUP
Allsup is a nationwide provider of Social Security disability, veterans disability appeal, Medicare and Medicare Secondary Payer compliance services for individuals, employers and insurance carriers. Founded in 1984, Allsup employs more than 800 professionals who deliver specialized services supporting people with disabilities and seniors so they may lead lives that are as financially secure and as healthy as possible. The company is based in Belleville, Ill., near St. Louis. For more information, Click Here. Visit Allsup on Facebook.

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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Don’t Judge by Appearances

Disabled Permit OnlyBy Wayne Connell, Founder and President of the Invisible Disabilities Association 

Have you ever seen someone get out of a car parked in a space reserved for people with disabilities, who did not LOOK disabled? Did it make you feel very uncomfortable or even upset? Did you let them know of your disapproval by giving them a dirty look or yelling at them?

Well, you are not alone. Many people are very disturbed by the sight of a seemingly mobile person taking the space of someone who is truly in need of it. After all, we want to protect the rights of people for whom these spaces are reserved!

However, in our efforts to help those who deserve these parking spaces, we actually may be hurting someone who has a legal right and a legitimate need to park there. How can this be true, you ask? Isn’t it obvious who does and who does not have a disability?

Let me Sherri Connell on Scooter 2.share the following story about my wife, Sherri.

It was a weekend afternoon, and Sherri wanted to head to the department store to pick up some items. She knew that driving would be tough enough, but she felt spending time with her niece would be worth the difficulty of the trip.  

Sherri and her niece pulled into the store parking lot, and she drove around until she found an accessible spot near the front. Sherri pulled out her accessible placard and placed it on the back of the mirror. She then proceeded into the store with her niece to shop.  

Once inside, they looked for an electric motorized cart. They located one and proceeded around the store. Of course, being in her late twenties and looking much younger, Sherri would elicit stares from people wondering why she was using the cart. Some even wondered out loud, especially children who would point and ask “Mommy, what’s wrong with her?”  

Why anyone would ride one of the store scooters unless they really needed it is beyond me. Sherri’s scooter at home goes 8 miles an hour and has head lights, tail lights and a headrest. The mall carts crawl along slowly, and everyone stares at you.

Sherri and her niece finished up their shopping and returned to their car. Sherri started the car and looked in the mirror and noticed a police car with its lights flashing right behind her, blocking her in. There was an immediate knock on her window. Startled, she rolled down her window and an officer stated that she was not allowed to park there, because she was not handicapped.  

Sherri said that the placard was hers and she handed the officer her license, her placard registration and a multiple sclerosis (MS) card. Sherri mentioned that she had the right to park there, because she was disabled with MS and had gotten approval from her doctor and the motor vehicle department.  

The officer replied, “I don’t care how many multiple problems you have, you can’t park there. I saw you walk inside and back to the car, and you looked fine to me.”  

After about 10 minutes of trying to explain her disability to the officer, Sherri started to get quite frustrated. She then asked very politely for the officer’s name and badge number, and if he would please move his car. Of course, her nervous system started to work overtime and her brain went into fight or flight mode. Luckily for the officer, he said he would move his car. Then he stated, “See those people over in that Cadillac, they are not handicapped either.” 

The conclusion of the story is that the officer was eventually reprimanded for the way he was hassling people who had the legitimate right to park in accessible parking.

The general qualifications for accessible parking spaces include those using wheelchairs, walkers, crutches, canes and assist dogs. Nonetheless, most of us do not realize they also include certain impaired functions of the heart or lungs, as well as conditions which are worsened to a specified impairment by walking a certain distance.

People with a variety of disabilities may qualify to park in these spots. Moreover, not all impairments are readily evident to the onlooker. Because of this, we refer to conditions which cause debilitating symptoms that are not so apparent from the outside as “invisible disabilities.”

There are millions of people who are forced to contend with serious illnesses, injuries and circumstances, which have left them with mountains to climb every time they take a step. Most people do not realize a person can have hindrances on the inside, which may not be visible on the outside. Their restrictions may not be conspicuous at a glance, but their pain, limitations and inability to function normally can be debilitating.

What may seem easy to you may seem like a 14,000 foot hurdle to them. Many even collapse in stores, become very dizzy and weak or even black-out. Being able to park close to the entrance of a building when they need to allows them to run an errand they otherwise would not have been able to conquer.

At any rate, the purpose of accessible spaces is to assist those with many types of disabilities and health conditions. For those with various types of limitations, the spots help make it possible for them to shop or visit the doctor.

How do you know who can park in an accessible space and who cannot? Look for a temporary or permanent placard in the front window or a disabled license plate. These items are received after an application, which is completed by a patient’s doctor, is approved by the Department of Motor Vehicles (DMV).

Each state’s DMV has specific guidelines and requirements the person must meet in order to receive a placard or license plate. Most states take into consideration the impairments due to certain conditions, as well as the implications stemming from aggravations of these conditions. Therefore, if a person is issued a license and is displaying it, then they have the legal, medical right to park there.

The following are few assumptions regarding accessible parking:

  • Assumption 1 – Drivers can simply request a placard from the DMV without any proof or documentation.  

Drivers cannot request an accessible plate or placard without a form completed by a licensed physician and with their verifiable license number.

  • Assumption 2 – Doctors are irresponsibly filling out forms for patients. 

Doctors have no personal gain by doing so.

  • Assumption 3 – Drivers are borrowing a placard from a relative. 

Many people believe this happens often, but do not personally know anyone doing so. At any rate, we cannot assume someone is using a placard that does not belong to them, because they do not “look” like they have a disability.

If someone personally knows an individual who has stolen or borrowed a placard, they can file a complaint with the DMV. If we have further concerns with the application and qualification process, we should consider using the legislative process to address them, rather than confronting individuals in a parking lot.

Chances are the person displaying a placard or plate is in fact parked legally and needs the space for physical and/or medical reasons. As you can imagine, it is difficult enough to live with such illnesses, injuries and disabilities that wreak havoc in one’s life without being harassed every time one needs to go shopping or to the doctor. Finally, if a person is displaying a license to park in an accessible parking space, try offering a hand, instead of a visual judgment. After all…the people you are graciously intending to defend may be standing right in front of you!

This article was first published on Disability.Blog by Disability.gov. October 31, 2012.

Photo courtesy of Hernando County, Florida Tax Collector

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What’s So Funny About …

 

About Wayne

Wayne is the Founder & President of the Invisible Disabilities Association (IDA). His inspiration for IDA is His wife, Sherri, who lives with Multiple Sclerosis, Lyme Disease, Neurological Chemical Intolerance, Traumatic Brain Injury and Anaphylaxis Food Allergies. Wayne is the Author of the booklet, But You LOOK Good! How to Encourage and Understand People Living with Illness and Pain. He has spoken at seminars, conferences, health fairs and banquets to create awareness, education and support. His personal experience includes that of a professional, multi-tasking husband caregiver with an extensive background in management, media and technology. This man on a mission quickly launched IDA into a world-wide outreach for millions living with invisible disabilities. Wayne and the IDA Executive and Advisory Teams reach out to others living with illness, pain and injury around the world. They bring encouragement and awareness about invisible disabilities to friends, family, co-workers and businesses through websites, projects, articles, pamphlets, seminars, events, videos, radio and social networks.

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What’s So Funny About …

karynbuxmanBy Wayne Connell, Founder & President, Invisible Disabilities Association and Karyn Buxman, RN, MSN, IDA Advisory Board.

My journey over the past two decades with my wife, Sherri – whose life is filled daily with intense pain, brain fog, overwhelming fatigue and isolation – is full of more downs than ups. It seems like the easy thing to do would be to throw my hands up and scream. I joke sometimes that Murphy has nothing on what we go through each day.

Yet, despite all of the daily suffering, we try to laugh. We laugh at each other. She laughs at me more than I laugh at her, especially when I bolt straight up in the middle of the night and try to figure out what just made that noise and where I am. We laugh at the absurdity of each moment. We laugh when her medical records are lost for the umpteenth time. We laugh at I Love Lucy. I bought all 186 episodes and watched them each night for six months straight. She calls me her Ricky and I call her my Lucy.

The real question is, are we just crazy? Maybe we are not serious enough about her illness. I don’t believe that’s the case. I think we would go mad if we didn’t laugh when someone asks Sherri if she has tried Tylenol for her pain (seriously?). Well, let’s ask an expert. Say Karyn Buxman, RN. Her Masters of Science in Nursing is in Therapeutic Humor. She is the Past President of the Association for Applied and Therapeutic Humor and the editor of the Journal of Nursing Jocularity. Karyn is also the author of the new What So Funny About series of books. She has been a long time Invisible Disabilities Association (IDA) Advisory Board member and a personal friend of Sherri’s and mine. Did I mention she is also in the National Speaker Hall of Fame? I could go on.

Karyn, take it away…

What’s not funny about disabilities?

A diabetic, a blind man and an amputee walk into a bar. The bartender says, “What is this – some kind of joke?”

Having a disability is no joke. But it can be a laughing matter. Pain, suffering, isolation, stress, depression, financial hardships – the problems can seem never ending. And to survive you need all the possible tools in your tool belt that you can find. One tool that is frequently overlooked is humor.

Science is affirming what we’ve suspected all along – laughter is good medicine. The benefits for you are so numerous that you are not going to want to wait for humor to happen by chance. You’ll want to be proactive and experience humor by choice. And the good news is, you don’t have to be funny. You just have to see funny.

What can humor do for you?

 Physically:

We’ve known for many years that negative emotions can wreak havoc on your body. Feelings of sadness, depression, fear, anxiety and stress can actually compound many of the issues you or your loved one may already be suffering as a result of a disability. For instance, stress is now known to exacerbate health problems such as diabetes, cancer, Alzheimer’s, arthritis, COPD, multiple sclerosis, Parkinson’s, epilepsy, migraines, cardiovascular disease, depression  and many more.

Stress raises hormones that cause an inflammatory response throughout your body. Studies show that laughing lowers your levels of the stress hormones cortisol and adrenaline. This may be reflected in lower blood pressure, lower blood sugar, improved circulation, enhanced digestion, decreased inflammation, and diminished pain and discomfort, just to mention a few. Another physical benefit of humor and laughter is decreased muscle tension – another great pain reliever.

Psychologically:

In my opinion, language was invented in order for people to communicate, whereas humor was invented in order for people to complain. Dealing with a chronic disease can trigger anger – and humor is a wonderful way to help process the negative emotions. And while people will run like the building is on fire when a complainer approaches, humor can be a socially acceptable – even enjoyable – way for people to vent.

Part of having a disability – any disability – is that you’re going to feel frustrated, you’re going to be angry, you’re going to have moments when you are filled with rage. It’s unrealistic to think that embracing humor as a coping strategy is going to eliminate those feelings. But repressed anger can make your symptoms even worse.

Humor redirects anger, instead of avoiding or denying it. This redirection can defuse a lot of rage, bringing with it a sense of calm, relief and a fresh perspective. The underlying circumstances that made you angry still exist, but after you’ve laughed, you’re better prepared to address those circumstances.

Socially:

Humor is an effective way to combat social isolation. You can use humor to directly address some of the issues that crop up in your relationships. Humor has been found to strengthen existing relationships (which is good if you like the people you know!). Regular use of humor is thought to make us more attractive to other people, which can increase your social circle and your base of support (this is good news if you don’t like the people you currently know).

But can you help me be funny?

Now that you understand some of the benefits of humor, let’s look at how you can proactively make this part of your daily routine. Here are seven tips on how you can increase your Laughter Factor:

1. First assume that there is humor to be found. If your assumption is that nothing funny is happening around you – then you miss it. Yet if you believe that something humorous is waiting to be found – you will discover it.

2. Raise your awareness. If you are proactively looking and listening for something humorous, you will see and hear what most others miss. Like the tourist who called a hotel in Florida wanting to know “Which beach is closest to the water?” Or the 5 year-old who asked his grandmother “Why doesn’t your skin fit your face?”

3. Manipulate your environment. Surround your living and working space with playful and entertaining items. These might be toys or games; funny books and DVDs; whimsical signs, cartoons, art, or posters; colorful clothing; entertaining CDs or mp3s. If you have fun things in your environment, you increase your likelihood of laughter.

4. Create a Play List. Write down at least 10, preferably 20, things you find fun to do. Ideally half of the items on your list should cost little or nothing to do. The plan: Next time you are feeling uncomfortable, sad or fatigued, pull out your list and make an agreement with yourself to do at least one item on your list. Don’t wait to feel better to play. Play and then feel better.

5. Use the Internet. There are numerous joke and cartoon sites – bookmark them and check them out on a routine basis. And YouTube has a plethora of clips that are guaranteed to bring a smile to your face. (For starters, type “laughing babies” into the search box. What is more contagious than a baby’s laugh?!)

6. Laugh anyway. If there is nothing funny to be found, fake it ‘til you make it – your body may not know the difference. And often it will become real laughter. If you want guidance, there are groups that teach how to laugh for no reason. Check out World Laughter Tour or Laughter Yoga.

7. Laugh at yourself. When all is said and done, you can take your disability seriously – it’s serious stuff. But you can take yourself lightly. Learn to separate the two. You are not your disability. You are an amazing and amusing individual with a rich resource of life experiences.

Hopefully with the tools and information I’ve given you, you can put yourself and your life in their proper perspective. Laugh at your mistakes, your foibles and your embarrassing moments, as well as your successes, your pleasures and your joy-filled moments. And don’t wait for humor to happen by chance. Experience by choice and reap the benefits today!

We hope this has been a very insightful article for you. We plan to bring you more like it in future Disability.gov blogs. Karyn Buxman joined the Invisible Disabilities Association on September 27th for the first ever Online True Help® DisabilityWeb Expo, which was sponsored by Allsup, for one of our online Expert Chats. Learn more about this event and many more on our website!

This article was first published on Disability.Blog by Disability.gov. August 24, 2012.

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What’s So Funny About …

 

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Being Truly Thankful

W and SBy Wayne Connell, Founder and President of the Invisible Disabilities Association 

It’s hard to believe that Thanksgiving 2012 has already come and gone. Usually it falls on the last week of November,  so it was early this year. Even though Thanksgiving is now over, when I started thinking about what to write about this month,  the obvious choice was being thankful. So here it goes.

I have so many things to be thankful for this past year. First of all, I am thankful to Disability.gov for allowing me to share, on a monthly basis, great stories, ideas, tips and insights about and for people touched by illness, pain and disability (read my previous posts on Disability.Blog).

Second, I am so thankful for you, the reader. You have provided wonderful insights via your numerous comments, and have honored me with thousands of Facebook “Likes”. Please keep spreading the word and sharing the Invisible Disabilities Association’s (IDA) message though social media. I hope the stories provide comfort and validation for your daily journey with illness and pain, much of which may be invisible to others. I am also thankful for my faith, my friends, the IDA Board members, the IDA supporters and sponsors and so many others.

Finally, I am very thankful for my family and especially my wife, Sherri, who provides many of the stories I write about because of her daily life with illness and pain. I know she would rather not have a story and instead be living a normal boring life. Ours is an adventure every day. Sherri amazes me with her determination during each of life’s difficult moments.

As many of you know, because of the invisible nature of many illnesses and disabilities, sometimes family members and friends can have a hard time believing what we go through. This may be partly because they still see you the way you were before illness and pain. Even though you made the transition (and not by choice), they haven’t. Of course, because of the invisible symptoms, “seeing is believing” doesn’t always work. My advice to family and friends is simply to believe your loved ones when they tell you what they are going through.

Last week for Thanksgiving, Sherri and I traveled to my brother’s house to spend time with him, my sister-in-law, my four nephews and my mom. I haven’t been to his house in three years and it has been nine years for Sherri. Riding in the car is difficult for Sherri, and my brother lives five hours away. The four day weekend helped because it gave Sherri some time to recuperate from the drive. A shorter stay would never have worked.

What made this past Thanksgiving so special, probably the best one we have had in a decade, is that we got to see my brother, his family and my mom. But it wasn’t just seeing them in person, which was great, but what they had to do to allow Sherri to stay at their house and to interact with them.

In addition to MS and Lyme disease, Sherri lives with chemical intolerance, also known as multiple chemical sensitivity (MCS). She gets very ill from any type of fragranced or chemical product. It is estimated that 12.5 to 15 percent of Americans live with this condition. People with asthma, post-traumatic stress disorder (PTSD), autism and many other illnesses can also be impacted by the chemicals used in fragrances. You can find more information about MCS at www.cleanerindoorair.org.

I am so thankful to my family for not only using fragrance free products during our stay, but also removing all of the candles and any other products in their house that had a fragrance. They changed their laundry detergent years ago so that it wouldn’t be a problem.

One of the main issue that impacts people with illness is isolation. During our trip, Sherri and I cherished the togetherness and time with our family. Was it hard for my brother’s family and my mom? According to them, the answer is no. One of my nephews even commented that in order to spend time with his Aunt Sherri, he gladly gave up his favorite orange colored shampoo for the four day stay.

There are so many people who are in pain daily who feel left out at this time of year. Reaching out to them is not a hard thing to do. Maybe it’s a phone call just to say “hi” and let them know you care. Maybe you can bake them their favorite cookies or pie and deliver that homemade gift to them. You can also send them a card or present, although your presence would probably be their favorite gift.

On our social network, IDA hosts online chats during the holidays for those who would like a sense of community. You can help, too, by reaching out to your neighbors, friends and family who you know are dealing with illness and pain. Let them know you care. Tell them you are thankful for them, that they inspire you and their perseverance amazes you.

When you spend time with them, talk about things other than their illness. They live with the pain and disability daily and sometimes would much rather talk about the weather, the holidays, shopping or their family and friends. Together you can enjoy expressing your blessings and gratitude.

We can all make someone else’s day brighter this holiday season by sharing a smile, a hug, a card, a meal, a call or a kind word. All of these cost little or nothing, yet they can impact another for a lifetime. If we work together and love one another, we can be truly thankful for each other. Let’s all envision a world where people living with illness, pain and disability will be Invisible No More!

This article was first published on Disability.Blog by Disability.gov. November 30, 2012.

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About Wayne

Wayne is the Founder & President of the Invisible Disabilities Association (IDA). His inspiration for IDA is His wife, Sherri, who lives with Multiple Sclerosis, Lyme Disease, Neurological Chemical Intolerance, Traumatic Brain Injury and Anaphylaxis Food Allergies. Wayne is the Author of the booklet, But You LOOK Good! How to Encourage and Understand People Living with Illness and Pain. He has spoken at seminars, conferences, health fairs and banquets to create awareness, education and support. His personal experience includes that of a professional, multi-tasking husband caregiver with an extensive background in management, media and technology. This man on a mission quickly launched IDA into a world-wide outreach for millions living with invisible disabilities. Wayne and the IDA Executive and Advisory Teams reach out to others living with illness, pain and injury around the world. They bring encouragement and awareness about invisible disabilities to friends, family, co-workers and businesses through websites, projects, articles, pamphlets, seminars, events, videos, radio and social networks.

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If It’s, “We’re Expecting” How Come It’s Not, “We’re Disabled?”

I don’t know when it became fashionable to identify pregnancy as an adventure à deux.  It always seemed lopsided that pregnancy excluded men from throwing up, having swollen ankles and shrewish moods.  I’m not even talking about all those forever changes like stretch marks, a bigger butt, and wider hips.  With the possibility of gestational diabetes, postpartum depression, or miscarriage, the adventure becomes a challenge.

Not to make it one-sided, men’s experiences are extraordinary, too, and may include being the target of a woman’s whacky moods or being the late-night junk food scrounger.  For guys, it hits that the two of you are now a family, with all the attendant expectations to be the one who forevermore protects and provides.

Without a doubt there are many, many women for whom pregnancy is a delightful experience. The glowing, the growing, and giving life is an experience like no other.  Expectant women and moms belong to an exclusive club that has strict membership rules.  So even if it was the two of you being pregnant, only one of you, in the strictest sense, is a mom.

Talk about disability or chronic illness, and only one of you is out on that limb.  An “invisible disability” can pose even more challenges.

Our society looks for proof; needs to name it; needs to touch it or otherwise experience its reality.  You can’t be “a little bit pregnant”; you either are or you’re not.  Pee on a stick and you prove it.  With invisible disabilities, there’s no pee test.  For some people, taking it on faith is harder than believing that what isn’t seen is true.  For example, not being able to prove the existence of god doesn’t mean god doesn’t exist.

Obviously, it’s the emotion surrounding belief that counts; to disbelieve or doubt a person’s physical or emotional perceptions is tantamount to discrediting someone’s very existence.  The truth of it is immaterial while the emotion surrounding such thoughts is what count and may even be rooted in jealousy of a sort – “What, so you get a break but I don’t?”  “Buck up, you’re just being lazy.”  “I worked all day but I still have to make dinner and do the laundry and get the kids to bed before I can sit down and catch my breath and where are you? In bed.”

Quantification when invisible disability is present requires a different yardstick but most of all it requires belief, support, and compassion.

Adding a stress load to any system that is already compromised results in a predictable, and usually disastrous, outcome (think of how a building with cracks in the foundation responds to an earthquake).  The same thing happens when an already dysfunctional body system is unable to respond well when stressors are piled on.  Such stressors may include walking through a mall or having relationship difficulties.

“We’re expecting” or “we’re disabled” is an implicit bonding between partners.  Life-changing events happen from which there is no return.  Legal sanctions apply in both situations:  the 20% of women, nationwide, who are disabled are entitled to lifetime support; children until they reach the age of majority.  Society doesn’t seem to have recognized that the “we” of marriage with children and the “we” of disability in a relationship are the same thing.

To say “we’re disabled” says that both partners are in it together, that there is emotional and physical support of the partner who is less capacitated. Pregnancy usually involves the active participation of both partners while acquiring disability isn’t chosen by either partner.  Parenthood never ends, just as disability does not; a major difference is in the expected trajectory – that parenting gets more pleasurable once the nest is empty, while disability often does the opposite.  Disability is different in that there is no consent, no pre-planning, and certainly no enjoyment in acquiring the condition.

Copyright 2012 Kathe Skinner, M.A., L.M.F.T.

About Kathe Skinner

Kathe Skinner is a Marriage & Family Therapist turned Relationship Coach in private practice. She conducts Couples Retreats in fabulous places, offers webinars and holds Couples Communication Classes along the Front Range of Colorado. She and her husband David live in Colorado Springs with two hooligan cats. She has been diagnosed with multiple sclerosis for over 30 years.

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It’s All in Your Head

By Wayne Connell, Founder & President, Invisible Disabilities Association, and Jeff Vankooten, Professional Speaker and Invisible Disabilities Association Executive Board Member 

“It’s all in your head!” What a familiar refrain for those living with chronic illness, pain or disability. Doctors, friends, co-workers and family often make this statement when they can’t “see” what you are going through or find a diagnosis. The invisible nature of many illnesses and disabilities creates an atmosphere of suspicion or disbelief, even by those who are closest to you. People may say, “It’s all in your head” to imply that the person is just making up or exaggerating his or her condition. Many people live with the stigma of this label. Some even feel shame and believe so much that they themselves are to blame that they take their own lives.

Maybe it is “all in your head.” There are many conditions that exist as a dysfunction or disease of the brain. Depression, Alzheimer’s, schizophrenia, bipolar, autism, post-traumatic stress disorder (PTSD), traumatic brain injury (TBI), epilepsy, dyslexia, multiple sclerosis, Parkinson’s and ADHD to name a few. These are real disorders and diseases even though they are unseen, and in many cases go undiagnosed or misdiagnosed for years.

Jeff Vankooten, a professional speaker and Invisible Disabilities Association executive board member shares his story below:

I have bipolar disorder. It has been my constant companion most of my life. It’s like a storm cloud that hovers nearby threatening every day to rain. I’m a different person now than I was before it “kicked in.” I’m more serious and less jovial. I’m more guarded with people. I mistrust my ability to make decisions. The varying highs and lows have created an inconsistent approach to life. Yet, in some ways, it has been a blessing. That may sound counter-intuitive, but I am a richer person because of it.

Here are what I find to be the benefits of living under the description of bipolar disorder:

Depth of Empathy: I can uniquely understand the despair of others, and listen with an attentive ear to those who are suffering. That depth of empathy resonates with people who seek me out to be a compassionate ear and persistent source of hope. God has used this illness and redeemed it for the benefit of others.

• Strength of Relationships: When I was in college, my roommate learned how to monitor my emotional health. He was not intimated by, or afraid of, my invisible disability. When he sensed I was beginning to spiral into depression, he would get me up and we would walk around the neighborhood together. The walks were special because he would always provide “Swisher Sweet” cigars. They are thin, short cigars with a flavored plastic tip. I’m not sure why, but they played a big role in my recovery. Regardless if you have an invisible disability or not, ask yourself who or what are your “Swisher Sweets”?

Though having bipolar disorder has strained some relationships and ruined others, the one with my wife has been solidified. Often marriages dealing with spousal bipolar end in divorce. It can be too much and take its toll on the stability of the relationship. It hasn’t been easy. Nothing of significance ever is. But my wife’s “Swisher Sweets” of patience, compassion, and yes, a swift kick in the butt from time to time, has been invaluable to my life. She gives me the strength to carry on and the joy to participate in life. I love her deeply.

• Embracing of Moments: Depression has a tight logic. I can make a pretty convincing case as to why everyone ought to be bummed out. It’s critical to me that I don’t stay in my argument. I need to break through the closed system of despair by embracing each moment of every day that makes up the totality of my time. I relish the moments spent with my children and friends. I savor every dinner and I enjoy every ride at the amusement park. They are all precious moments.

Education is a real key in learning about the illnesses people are living with each day. The best way to get this education is to ask the people with the disorder or disease themselves. Take time to learn the language of invisible disabilities. Take time to listen and not pre-judge. Be a friend and comforter, not an accuser. We all need to make it a safe place for people living with brain illnesses, disorders and disease to share their difficulties and triumphs. Let’s remove the stigma and shame and be supportive in any way we can.

They can’t just “get over it” or stop being depressed. If someone breaks an arm or a kidney fails, we don’t tell them to simply “snap out of it.” They need real help, and we need to make this world a safe place for them to ask for and to receive it. By listening, learning and loving, we can help them be Invisible No More!

This article was first published on Disability.Blog by Disability.gov. May 30, 2012.

RELATED ARTICLES:

IDA’s Invisible No More on Disability.gov

IDA’s It’s All in Your Head on Disability.gov

IDA’s But You LOOK Good on Disability.gov

About Jeff Vankooten

Jeff Vankooten is a professional speaker who helps people thrive in disruption and change. He also coaches people over 40 who want to harness their life’s experience into talks and products that leave a legacy. He is a native of Denver, Colorado where he lives with his wife, three kids and really big dog.

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Walking Out Your Front Door Is The First Step Up Your Mountain

Since my accident in 1985, I have been through some very difficult times.  There have been many days when I’ve felt fearful to “walk out my front door.” However, the focus of this blog is to help you as the reader understand that when you push through fears and “walk out your front door,” it changes your focus from what you can’t do to what you can do.

Here is an example while I was on a recent trip to Colorado.  I stayed with my sister Marcia.  During this visit, we had decided to have our nails done.  However, she could not go due to the fact that she had to work.  I decided to treat myself and get my nails done without her.  This was awkward, as I was already in an unfamiliar place and was somewhere that I had never been to.  I made the decision to “walk out her front door.”

I was under the lamp waiting for my nails to dry when I noticed a woman sitting next to me and complimented her on her nails.  We had some small talk during a big hailstorm.  I was concerned about leaving and going to another salon to get my hair washed because the rain was pouring down like crazy, and I did not have a car.  This woman, whose name I still did not know, offered to not only give me a ride, but told me she would move her car for me and opened the umbrella right in the store.  Going outside in the pouring rain and hail, I did not get a drop of water on me thanks to this woman.

This was a complete stranger who did this for me.  She saw that my hands were shaking and asked if I took prednisone, a common prescription drug for tremors.  I told her that I did not take it, but I knew what it was due to my kidney disease (prednisone is also prescribed for kidney disease patients).  She asked me about my illness.  I told her “it is a long story.”  She wanted to hear about it, so I told her about my rock climbing accident.  After I had shared my story, she opened up about an illness that she struggles with.  I invited her to the 2012 IDA Awards Banquet and mentioned that my husband and I were the keynote speakers.  She said that she really wanted to come.  She eventually told me her name, which is Suzanne.

What I learned through this is that you can “walk out your front door” and make a difference in a stranger’s life.  When you live with an invisible disability, you may be pleasantly surprised by the impact you can make when you tell someone your story and what it has taught you.  Many strangers that we could meet every day have challenges like us, and they are looking for someone to talk to.  They need us as much as we need them.  That is why an organization like the IDA can be so helpful.

The key to “walking out your front door” and moving forward is to not only go outside, but to meet people and have meaningful conversations with them.  My meeting Suzanne in an unfamiliar place and not being afraid to tell my story, led to a meaningful conversation and a new friend.  This was worth “walking out my sister’s front door.”

OK, here is the conclusion: Come to the 2012 IDA Awards Banquet on Oct 14 in Denver and you’ll not only hear my story, but you will meet many people and hear many inspiring stories from those who “went out their front door.”

About Angela Pierce

In 1985, Angela Pierce survived a 125-foot free fall while mountain climbing, breaking her bones in 168 places. Her story of survival is a miracle. The lessons she has learned over the last 27 years are an incredible inspiration to others who must climb their own mountains every day. Visit her website, Falling Off the Mountain.

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FREE Chronic Illness Tips eBook with IDA Founder

Chronic Illness Tips: 263 ways to do more than “just get by.”

Lisa Copen, the Founder of the National Invisible Chronic Illness Awareness Week and Rest Ministries, collaborated with several authors and experts to compile this very resourceful book.

Wayne Connell, Founder of the Invisible Disabilities Association,  contributed his helpful tips, “10 Ways to Encourage Loved Ones Living with Chronic Illness and Pain” adapted from IDA’s book, But You LOOK Good!

Other topics included in the book are After the Diagnosis, Coping with Illness, Relationships, Faith, Career, Encouraging Others and Practical Tips.

This ebook is available for download for FREE!

Don’t miss Wayne Connell and his bride, Sherri, during the 2012 National Invisible Chronic Illness Awareness Week. They will be discussing the in’s and out’s of living with invisible disabilities, marriage and how to reach out. This year, the interview will be by video!

ADDITIONAL RELATED RESOURCES

National Invisible Chronic Illness Awareness Week Online Seminar. Lisa Copen interviewed IDA Founder and President, Wayne Connell on BlogTalk Radio. September 16, 2010. Featured again September 2011. Listen Here

Chronic Illness Tips: 263 ways to more than “just get by.” Available to download for FREE! Tips adapted  from IDA’s booklet, “But You LOOK Good!”  into a collaborative project by NICIAW Founder, Lisa Copen.

Invisible Illness and Finding Support. Guest Speakers IDA Founder Wayne Connell and his wife, Sherri. 2010 and 2011 National Invisible Chronic Illness Awareness Week.

IDA Featured During National Invisible Chronic Illness Awareness Week 2010 and 2011

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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Hurdles Remain for People with Disabilities and Seniors with Heathcare Reform

Hurdles Remain for People with Disabilities and Seniors After Supreme Court Ruling on Healthcare Reform, Says Allsup

Allsup explains impact of court’s ruling for people with disabilities awaiting SSDI benefits and those relying on Medicare

Belleville, Ill.—June 28, 2012—The U.S. Supreme Court ruling to uphold portions of the Affordable Care Act of 2010 (ACA) will have a profound impact on people with disabilities and those relying on Medicare. But more needs to be known about the affordability of care before determining the law’s actual benefit for people with severe disabilities, according to Allsup, a nationwide provider of Social Security Disability Insurance (SSDI) representation and Medicare plan selection services.

“Access to healthcare is essential for the well-being of millions of seniors and people with disabilities,” said Tricia Blazier, senior disability life planning manager for Allsup. “While the ACA is not perfect, it generally has had a positive impact for most Medicare beneficiaries. For example, it provides preventive service coverage and shrinks the prescription drug donut hole.”

It also has shown promise for people with disabilities because of future provisions set to take effect through 2014. However, Blazier noted, the overall benefit is yet to be determined, with affordability of care being a significant hurdle that still needs to be addressed.

“Even with healthcare reform, many of the initial coverage options have been out of the financial reach of SSDI beneficiaries, for example, the Pre-Existing Condition Insurance Plans (PCIPs),” Blazier said. “The ruling should help resolve some of the uncertainty surrounding healthcare reform, and the broader areas of reform now can move into place. Hopefully, this means improvements to costs and coverage options to support people with permanent disabilities.”

Below, Allsup reviews the key provisions on which the Supreme Court ruled and how those decisions will affect Medicare beneficiaries and people with disabilities.

The Individual Mandate

The Supreme Court ruled that the individual mandate requiring people to have coverage is constitutional. Under healthcare reform, all U.S. citizens and legal residents will be required to have qualifying health coverage starting in 2014.

For people with disabilities, this means a number of positive developments. Insurers already are required to provide coverage to children with pre-existing conditions. Starting in 2014, insurers can no longer deny coverage to anyone with pre-existing health conditions and lifetime limits will be eliminated. This is the same year that individuals will be required to have healthcare coverage and state exchanges will be operational.

People with disabilities who are awarded SSDI benefits must wait 24 months after receiving cash SSDI benefits to become Medicare eligible. Allsup has found that one-third of individuals with serious disabilities will lose their health insurance while awaiting Medicare eligibility and are unable to obtain new coverage because of costs and pre-existing conditions.

“Without the individual mandate, the cost of insurance would largely continue to be out of reach for people with disabilities,” Blazier said. “We have already seen this with the PCIPs, where enrollment is lower than expected and the actual cost of coverage is nearly double what had been the anticipated cost.”

PCIPs, essentially the precursors to the state exchanges required under healthcare reform, are plans that provide insurance to people with pre-existing conditions who can’t get coverage elsewhere at the same market rates as healthy consumers. PCIP participation has been lower than expected and, while costs vary widely by state, each participant is expected to pay $28,944 in medical costs in 2012—more than double the expectation, according to a U.S. Department of Health & Human Services February report.

“For people who cannot afford coverage in the private market, the state exchanges—which will be required to also cover people with disabilities—should provide a bridge, but only if they’re truly affordable,” Blazier said.

The exchanges will allow individuals to compare qualified plans and provide them with information on whether they are eligible for Medicaid, the Children’s Health Insurance Program (CHIP) or other programs to reduce the costs of insurance. For any citizen, especially those with physical and mental disabilities, simplifying how they go about assessing their options and eligibility for complicated programs is an important improvement.

Under the ACA, those without coverage will face a penalty that starts in 2014 of $95 per adult and $47.50 per child, up to $285 for a family or 1 percent of income, whichever is greater, and continues to increase through 2016. After 2016, cost-of-living adjustments will be applied.

Medicaid Expansion Tempered

The ACA had required states to adopt expanded Medicaid eligibility and coverage thresholds in order to remain eligible to participate in the joint federal-state program. Medicaid provides healthcare to people with low incomes and those with disabilities.

However, the Supreme Court ruled that Congress cannot penalize states that choose not to expand Medicaid. As a result, states will not lose their existing Medicaid funds if they don’t comply with this expansion, which called for Medicaid in every state to cover people under age 65 with income of 133 percent of the federal poverty line starting in 2014. (The federal poverty line is $23,050 for a family of four in 2012.)

“In states where Medicaid is expanded, the lower thresholds will help many individuals who are not able to work because of a disability and have to make a daily decision between being able to afford to eat or taking medications that are essential for their conditions,” Blazier said. “We know that when people have to make these types of trade-offs, it often increases healthcare costs down the road.”

What ACA Now Means for People with Disabilities and Medicare Beneficiaries

Provisions of healthcare reform already offering more affordable coverage to Medicare beneficiaries and people with disabilities include:

  • Elimination of Lifetime Limits, Regulated Annual Limits and Coverage for Young Adults - as of September 2010. These provisions were upheld. For example, many young adults (up to age 26) who were allowed onto their parents’ insurance coverage can continue with this coverage.
  • Coverage of Certain Preventive Services - as of September 2010 for all new health plans; extended to Medicare plans in 2011.
  • Reduction of the Medicare Prescription Drug Donut Hole - starting in 2011 until fully eliminated in 2020.

In addition to the individual mandate and expansion of Medicaid (for those states opting for expansion) that go into effect in 2014, other key provisions that will go into effect shortly include:

  • Preventive Services for Medicaid. Starting in 2013, federal matching payment incentives will be provided to states that offer Medicaid coverage with no patient cost sharing for certain preventive services.
  • State Exchanges. Starting in 2014, individuals and small businesses with up to 100 employees can purchase qualified coverage through state exchanges. These exchanges will have a single form for applying for health programs, including coverage through the exchanges and Medicaid and CHIP programs.
  • Elimination of Annual Limits on Coverage and Guaranteed Coverage. Starting in 2014, annual limits on the dollar value of coverage will be prohibited. ACA also requires guaranteed coverage and renewability of health insurance regardless of health status. In addition, ACA allows rating variation based only on age, geographic area, family composition and tobacco use in the exchanges and the individual and the small-group insurance market.

However, not all provisions of healthcare reform will benefit all Medicare beneficiaries and people with disabilities. For example, starting in 2013, the threshold for itemized deductions for unreimbursed medical expenses increases from 7.5 percent of adjusted gross income (AGI) to 10 percent of AGI. However, this is waived for individuals age 65 and older through 2016. Also in 2013, taxpayers will see increased taxes for Medicare. This includes a 0.9 percent increase in the Medicare Part A tax rate to 2.35 percent on earnings over $200,000 for individual taxpayers, and $250,000 for married couples filing jointly, and a new 3.8 percent tax on unearned income for higher-income taxpayers.

Social Security Disability & Medicare Help

Find more resources for people with disabilities and answers to questions about Social Security disability benefits.
Find answers to Medicare questions by contacting the Allsup Medicare Advisor®, which works one-on-one with individuals to help them choose the Medicare plan that best meets their needs or call (866) 521-7655.

ABOUT ALLSUP
Allsup is a nationwide provider of Social Security disability, Medicare and Medicare Secondary Payer compliance services for individuals, employers and insurance carriers. Founded in 1984, Allsup employs more than 800 professionals who deliver specialized services supporting people with disabilities and seniors so they may lead lives that are as financially secure and as healthy as possible. The company is based in Belleville, Ill., near St. Louis. For more information, Click Here. Visit Allsup on Facebook.

The information provided is not intended as a substitute for legal or other professional services. Legal or other expert assistance should be sought before making any decision that may affect your situation.

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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Markers of Aging

“What’s the oldest you’ve ever been?”

A fair question, although it may be obvious chronologically. Personally, I can’t attest to having lived or acted my physical age. Many would agree. Mentally, I don’t feel it.

My friend and speaker colleague Bob mentioned a funny ageism recently. Bob and his family were enjoying a meal together when his little granddaughter piped up. “Grandpa, how old are you?”

“Why, I’m 71.”

“Wow! Did you start out at 1???”

Out of the mouths of young whippersnappers.

This granddaughter still counts her age in years and half years. When do we start counting down instead of up?

Why do we look forward to ‘getting bigger,’ and shortly after we do, we stop looking forward to how our bodies will next change.

It’s not typically for the better.

I was at my annual checkup with my ophthalmologist to make sure 40 years of arthritis hadn’t messed yet with my eyes. I noted that in the last six months, my eyes didn’t seem to adjust or focus quickly when the TV screen would change. A blurry three seconds began to appear before the image would clear.

When it first started happening, I was concerned. The old ‘oh no, what now’ syndrome. But then a sneaking suspicion snuck in that this change was normal…for my age.

I first mentioned it to my neurosurgeon this spring. He looked at me, a half grin creeping across his face. “It’s an age thing, isn’t it?” “Uh, yea.”

My ophthalmologist was no less sympathetic. “You are middle aged, after all.”

Did he have to be so brutal about it?

Why is there no manual for aging? There are books to tell pregnant women what to expect during pregnancy and during that child’s first year, and what’s normal, and what’s not. Why are there no books for those entering middle age? With all us boomers venturing there, it would have to be a best seller. Maybe that’s my next book.

It could be that those in the medical professions have a primer on this stuff. I’d say that’s an unfair advantage. The rest of us slog through, wondering if something is wrong or if our peers are falling apart, too – but that they’re smart enough to keep mum regarding the small horrors coming our way.

We shouldn’t have to stumble through blindly. My slightly younger friends tease me that they’re well equipped to enter middle age because they know from my experience what’s coming their way. I’m glad I can be a beacon (she said wryly).

The preschool niece of an old boyfriend, when she thought we should know better, often asked, “What are you – new??”

Her comment reminded me of Bob’s granddaughter.

I barely remember being new. Heck, I barely remember much of anything some days. But I’m glad I’ve had the luxury of learning what it is to age, to forget, to have mal-adjusting eyesight.

Without it, I would never have lived past new. And I’m grateful I’ve gotten to be the oldest I’ve ever been.

This article first appeared in NurseTogether.com.  

About Kris Harty

The Short Chick with the Walking Stick is Kris Harty, Stickability Specialist. Kris’ expertise as an entrepreneur and a lifelong patient helps entrepreneurs and those in healthcare – on the giving and receiving ends – to persevere and Stick To It-No Matter What! Kris speaks, writes, facilitates and regularly contributes to online medical journals, in addition to recently publishing her first book A Shot in the Arm and a Strong Spirit: How Health Care Givers Help Patients Persevere. She can be reached through her company's Web site, www.ShortChick.com or call 1.877.711.KRIS or through any of the links directly below.

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The Difference You Make

“Did I read that right?”

I re-read the online invitation I received. It wasn’t an invitation anyone hopes to get. There was no ‘shhh’ finger-to-lips graphic, no indication of umbrella drinks, not even a hint of fun food.

There was, however, a beautiful photo of a radiant young woman with three young boys.

It seems a fundraiser is scheduled for someone I know, someone who is a colleague and friend. It has been a few months since we connected and this was the first I heard of her news.

My heart skipped a thump as my eyes re-scanned the text. The words took a moment to register in my unaccepting mind. She was recently diagnosed with breast cancer.

A small business owner and active business leader throughout much of the state, she has needed to curtail her activities, for obvious reasons, thereby curtailing her income, too.

It must have hurt to cut back on the passion that drives her in business and her usual accompanying dizzying schedule. What must hurt more is knowing she has three young boys to raise alone, while looking into an uncertain future, financially or otherwise.

No one ever thinks someone else will get cancer. When that someone is young, vibrant and churns out whirlwind energy that leaves the rest of us panting several hundred paces behind, it shocks something in our soul.

My soul was most certainly shocked.

The invitation said something about us needing to help someone who routinely and unselfishly gives so much while helping all of us. Yes, yes, that’s what we need to do. Give back. Even though the monetary giving back seems paltry in comparison to how much we’d like to help in a more vital way.

But that’s not our role. We can only stand by the sidelines and watch while leaving that role to her healthcare team- nurses, doctors and everyone else it will take to battle the battle inside. We trust them to fight this battle for her in the way the rest of us can’t.

Coincidentally– or not– the email I opened immediately prior to the invitation was an interview outlining the importance of the oncology patient and provider relationship. I want to ask her if she’s happy with her healthcare team that is taking care of her. I want to know that she likes them, trusts them and respects them.

It’s none of my business, really, yet I want to be assured. I write this knowing it’s not my assurance that matters.

I think back to friends and family who have fought the battle. Many won. Some did not. I remember how most raved about their nurses and doctors and techs who traveled with them on their roller-coaster journeys.

What a difference they made. Not only to their patients, but to their patients’ friends and family, most of whom they never met. They left legacies, unaware.

In whose life will you leave a legacy today, whether or not you ever read of it in print?

This article originally appeared in NurseTogether.com. Published with permission.

About Kris Harty

The Short Chick with the Walking Stick is Kris Harty, Stickability Specialist. Kris’ expertise as an entrepreneur and a lifelong patient helps entrepreneurs and those in healthcare – on the giving and receiving ends – to persevere and Stick To It-No Matter What! Kris speaks, writes, facilitates and regularly contributes to online medical journals, in addition to recently publishing her first book A Shot in the Arm and a Strong Spirit: How Health Care Givers Help Patients Persevere. She can be reached through her company's Web site, www.ShortChick.com or call 1.877.711.KRIS or through any of the links directly below.

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My Mother’s Day Climb

Happy Mother’s Day to all the moms out there. It is a very special day for everyone who has children and families.  However, for some of us who may have lost our mother or possibly a child, it is a very difficult day.  It is also difficult for those of us who do not have children, especially those who do not or cannot have children due to the fact we have a disability.  In addition, we need to remember that some mothers are spending their special day at a hospital or other facility, tending to a child who is seriously sick or injured.  This is what my mom experienced for many of her mother’s days after my accident in 1985.

I am grateful for my mom and happy for my friends and family who are moms.  However, there is still a part of me that feels a void since I am not a mom and will never have my own child.  I am reminded of this when someone asks, “do you have children?” At that moment, my heart drops and I say, “no, I do not.” The decision I made to not have children is just one example of how the damage from my rock climbing accident continues to be a daily challenge.  If you met me for the first time, you’d never know that I live with several invisible disabilities.  As a result, I have had to make many difficult choices, including not having children.  I have wrestled with this for 27 years.

I know that there are many women who cannot or choose to not have children, due to health problems and disabilities.  The solution is to find something else that fulfills the void to want to take care of someone or something.  I’ve found different avenues to fulfill my desire to nurture and care for others.  For example, I’ve been a volunteer at local colleges helping students transition into adulthood, worked with young adults who have special needs, have taken care of pets at a local pet store,  and I keep in touch with my godchild and her mom.

Even though many women, including myself, do not have children, there are opportunities to get involved in other people’s lives and make a difference.  It is not a substitute for my own kids, but it is very rewarding and takes the sting out of the wound.  For those out there with severe disabilities, invisible or not, nurturing a child, friend, family member or pet can be just as rewarding.  A simple phone call, email or sending a card, can make a big difference, not only to the person who receives the call or note, but to the one who sends it.

About Angela Pierce

In 1985, Angela Pierce survived a 125-foot free fall while mountain climbing, breaking her bones in 168 places. Her story of survival is a miracle. The lessons she has learned over the last 27 years are an incredible inspiration to others who must climb their own mountains every day. Visit her website, Falling Off the Mountain.

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Heart Attacks Triggered by a Broken Heart

Most of us have heard that stress can cause heart problems. We have even heard the stories about a spouse who passes away, then the other follows close behind.

The mother in law of Invisible Disabilities Association’s Founder, Wayne Connell, has recently experienced increased heart trouble after her son Jim unexpectedly passed away last December. Carole has been battling Lung Cancer for the past year and found herself hospitalized shortly after her son’s death, due to severe chest pains, irregular heartbeat, shooting blood pressure and episodes of collapsing. They did not find artery damage, but her doctor said that her symptoms must be from a “broken heart.”

“It’s called stress cardiomyopathy, or ‘broken heart syndrome” (KENS5.com). A recent study discovered how a broken heart can trigger a heart attack.

New research presented this week at the Experimental Biology meeting in San Diego finds that during mental stress, blood flow through the heart increases in men, but doesn’t change in women. The findings suggest women’s hearts might not adjust properly to stress (KENS5.com).

This is not something to be taken lightly. Connie Pitts is a woman who lives with Fibromyalgia and Chemical Sensitivities, as well as the author of Get a Whiff of This, Connie shared with the Invisible Disabilities Association what happened to her mother shortly after her brother passed away.

My mother died of a heart attack three months after my brother took his own life. During that three months, her eyes lost their sparkle, and she lost over thirty pounds. I do believe it was the grief over her loss that caused her to have a fatal heart attack.

Dr. James Park, an interventional cardiologist at the Texas Health Dallas Hospital said, “What they theorize is the arteries spasm, causing damage to the heart,” he said. “Then, when I do an angiogram to look at the arteries, it looks like there’s no blockages there, but there’s damage to the heart.” (KENS5.com).

Read the full story from KENS5.com in San Antonio.

ARTICLE RESOURCES

A Great Loss for IDA Founder and His Wife

KENS5.com. San Antonio. Study: Broken heart can trigger heart attack. Janet St. James. WFAA.com. April 27, 2012.

Pitts, Connie. Author of Get a Whiff of This. IDA Interview April 2012.

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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Angels on the Mountaintop

Those of us who live in suffering do not realize the depth of understanding we can give to others.  Whether it is on the internet, phone, or praying and sending good thoughts to others we know who live with invisible disabilities, we can make a difference.  Sometimes our pain and sickness lead us to being lonely.  Since we are already angels, we should try to remember that we are suffering for others who do not even know they need our help.

Here are two examples of how God has been able to use me to help someone that did not know they needed my help.  One, a friend of mine was having a baby.  I went to visit her in the afternoon and found out that nobody else would be there to support her during birth.  I stayed with her, postponing my dialysis, which meant more pain for me; however, not only was I able to hold Hadley’s hand during her C section, I was the person who cut the umbilical cord.  What an experience for me to be able to hold a new baby’s hand and to be able to celebrate a new life with a good friend of mine.  I held the baby, placed her next to my Hadley’s cheek and with tears in both our eyes, we shared a quiet moment that neither of us will ever forget.

A second example was this past week.  A good friend of mine from dialysis had been in the hospital for the past 3 days.  She had a heart attack brought on by congestive heart failure.  While I was visiting her in the hospital, the hospice nurse came in and asked my friend Molly if it was OK with her that I be allowed to stay in the room.  Molly shook her head yes.  Molly and I were very good friends.  The nurse continued to ask Molly questions concerning her quality of life.  At this point, Molly was in bad shape and was fighting for her life.  The nurse asked Molly if she had spoken with her kidney doctor about the possibility of not continuing dialysis.  Molly said no.  This was difficult for me to hear, as Molly was making the decision to possibly not get dialysis treatment any longer.  The nurse was basically telling Molly that even though her mind was strong, her body was weak and was giving up.

Most people could not go to a hospital to visit a friend or family member and listen to a nurse or doctor have a life and death conversation.  Even though its difficult, its very important to be there for people like Molly, when they need us the most.  Those of us with invisible disabilities can relate to people like Molly and can truly be an angel during some of the most exciting and difficult moments in people’s lives.

About Angela Pierce

In 1985, Angela Pierce survived a 125-foot free fall while mountain climbing, breaking her bones in 168 places. Her story of survival is a miracle. The lessons she has learned over the last 27 years are an incredible inspiration to others who must climb their own mountains every day. Visit her website, Falling Off the Mountain.

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The Only Disability is YOUR Bad Attitude!

Kick off your shoes and stay awhile.

It sometimes feels like there are few places where people with visible conditions are welcome – and accepted as they are.

Medical settings are often the most welcoming and comfortable places known to those of us with visible conditions. The larger, outside world has way too many issues with the likes of us.

Case in point: a mere one hour time span in the life of…. namely, yours truly.

It happened a couple weeks ago. I was minding my own business, going about my day in the usual way. Nothing out of the ordinary: a professional organization’s meeting, getting in and out of my car and running an errand. Doesn’t seem like it would be all that memorable.

But it was – and not in a warm, fuzzy kind of way.

No, the unfuzziness started early in the morning. Toward the end of a monthly mastermind meeting for speakers and authors that I co-founded, a gentleman who I’ve known for years uttered a showstopper.

He’s known for espousing the power of attraction. All well and good, until he stepped over a line – clearly marked with warning flares.

He was going off in his usual manner, instructing us in the finer points of thinking our way to success. Never mind the heavy lifting of running a business. It would take care of itself if we but thought the right thoughts.

At which point, he turned to me. “This applies to health, too.”

He continued, addressing the larger group again. “I have so many friends with arthritis who whine and complain about how bad it is and how much it hurts. Well, of course it does! That’s what they’re thinking about all the time!”

Apparently not yet sensing – or thinking about – the sudden deep freeze emanating from my pores right next to his, he looked at me and further explained, “You probably didn’t realize the connection.”

The deep freeze deepened. “Ohhhhhhhhh, you’ve told me numerous times.”

Momentary taken-aback pause. “I have?”

“Hmmmmmmmmmmmmmmmm.”

Perhaps it was the engulfing silence from me or from my fellow attendees. Perhaps it was the ice cold steel clad stare from my eyes to his, the stare coined the Harty Glare from my long-time friend Lynne. Perhaps a combination. No matter. It shut him down. Perhaps ‘thinking’ it so, does work.

Nonetheless, the best comeback came to me later in my car. What’s with the perpetually delayed response time?? What I should have said is, “How many seven year old kids think about getting rheumatoid arthritis – and then do?? Huh, huh?? Answer me that one, ‘O Think and It Will Be So, Boy.’”

But before I had a chance to think that delayed thought, another something happened as I was getting into my car following our hastily-ended meeting.

Just as I was plopping my irritated self into my car outside the restaurant, a woman walked up to me while my door was still open. “Hey. Lady.”

She looked harmless enough, yet I’m always a little cautious.

Calmly, she proceeded, as though this was the most natural thing she says every day to strangers: “Hey, I just wanted to tell you that when I saw you walk past me inside the restaurant, I could see that you have the mark of the beast on your forehead.”

I was soooo not in the mood to put up with yet another lunatic. My pronounced limp often seems to give strangers an assumed license to comment on any aspect of my physicalness. But this was a whole new direction.

I reached for my door, eye-roll in full swing. She kept up the luna-babble. “You probably picked it up at (insert name of nearest big box store). A lot of people get it there.”

“Nooo, I don’t shop there.”

“Ohh! Then, you must have gotten it at (insert name of large regional grocery store chain). People sometimes get it there, too.”

“I don’t shop there, either.”

“OH, well. Umm, I really feel that God is going to heal and lengthen your legs this afternoon!”

“He already did.”

“Ohhh, well, that’s great.” Door is almost slammed shut…. “Have a blessed day!” Seriously? I’m trying, but dealing with the likes of you cuts into the feel of any blessedness.

No longer in the mood to deal with the world at large, all I wanted to do was go home, alone. But my cat wouldn’t appreciate me not stopping to refill his food supply.

So I drove to the nearest (insert name of big box pet store here). As I walked in, another customer preceded me by five paces. The store’s door greeter, beaming, chirpily welcomed her. The greeter turned her head, saw me, and any lingering smile vanished in an instant. Her mouth clamped shut. I was awarded the ‘up and down’ stare. I stared back. This was not the time to mess with me.

I kept staring. She finally stopped staring. In a stilted voice, she eked out, “Can I help you?”

Not unless you can fix your own problem, honey – whatever it is.

Getting home never felt so good. The only other safe place is a medical setting. Maybe all other establishments need to start posting these signs in addition to no smoking signs: “Thank you for not staring.”

Next stop, the nearest sign company. I think I’ll buy a few thousand shares of stock.

This article originally appeared in NurseTogether.com.

About Kris Harty

The Short Chick with the Walking Stick is Kris Harty, Stickability Specialist. Kris’ expertise as an entrepreneur and a lifelong patient helps entrepreneurs and those in healthcare – on the giving and receiving ends – to persevere and Stick To It-No Matter What! Kris speaks, writes, facilitates and regularly contributes to online medical journals, in addition to recently publishing her first book A Shot in the Arm and a Strong Spirit: How Health Care Givers Help Patients Persevere. She can be reached through her company's Web site, www.ShortChick.com or call 1.877.711.KRIS or through any of the links directly below.

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Mistakes with Reporting SSDI Can Be Costly at Tax Time

Mistakes with Reporting Social Security Disability Income Can Be Costly at Tax Time, Allsup Finds

Lump-sum SSDI awards for new beneficiaries require special attention; Allsup outlines other cost-saving tax tip

Belleville, Ill. – February 17, 2012 – More than 1 million people with severe disabilities became beneficiaries under the Social Security Disability Insurance (SSDI) program last year. But many of them are likely to improperly report their SSDI payments on their income tax returns, according to Allsup, a nationwide provider of Social Security Disability Insurance representation and Medicare plan selection services.

“It can take months and sometimes years to receive Social Security disability benefits. So, many people receive a one-time, lump-sum amount that includes back payments,” said Paul Gada, a tax attorney and personal financial planning director for the Allsup Disability Life Planning Center. “One of the most frequent questions we receive from claimants at this time of year is whether SSDI benefits are taxable and how to report lump-sum payments on their tax return.”

Up to 50 percent of Social Security disability benefits are taxable each year. The actual amount is determined by adding one-half of the taxpayer’s SSDI benefits to all of his or her other income sources. For 2011, a federal income tax return must be filed if gross income is at least $19,000 for couples filing jointly and $9,550 for individuals.

“The average monthly SSDI benefit for 2011 was $1,072.96 or $12,875.54 for the year. As a result, many people relying on SSDI will not owe taxes,” Gada said. “A problem can occur, however, if they mistakenly report all of a lump-sum payment received in 2011 as 2011 income, in which case they could end up paying too much in taxes.”

According to Gada, it’s essential that both individuals and their tax preparers understand how to report SSDI lump-sum payments. “The IRS allows taxes on SSDI lump-sum payments to be spread over previous tax years using the current-year tax return,” Gada explained. “This means recipients do not have to go through the time or expense of filing amended returns, or pay higher taxes on their current year’s income.”

People who received a lump-sum SSDI payment in 2011 will see this amount included in Box 3 of the Form SSA-1099 they receive from the Social Security Administration (SSA). Worksheets provided in IRS Publication 915 and discussed in Allsup’s free online guide, Managing Your Taxes, can be used to determine the taxable portion of a retroactive SSDI payment. However, Gada cautions it can be extremely difficult to do this by hand and recommends seeking help from a knowledgeable tax professional or, at the very least, investing in tax preparation software that covers this.

Other Money-Saving Tax Tips and Free Tax Filing Help

About 8.6 million disabled workers received income through the Social Security Disability Insurance program in 2011, including new beneficiaries.

Below, Allsup highlights additional tips that may help people with disabilities and their caregivers save on their taxes. More information is provided in Allsup’s Managing Your Taxes guide on Allsup.com, including links to free tax filing assistance resources.

Tax Credits

  • Earned Income Tax Credit (EITC). This is a refundable tax credit of up to $5,751. When it’s applied, it could result in a refund. To be eligible, a taxpayer or a spouse needs to have been employed for part of 2011, earned below $13,660 to $49,078 (depending upon filing status and the number of children claimed) and had investment income of $3,500 or less. “Many people with disabilities don’t file a tax return because their income is so low,” Gada said. “But you could lose out on thousands of dollars from the EITC if you don’t file a tax return.”
  • Credit for people with disabilities. Taxpayers are eligible for this credit of up to $7,500, if they receive taxable disability income from a former employer’s accident, health or pension plan and meet income requirements. For 2011, adjusted gross income (AGI) must be under $17,500 for single filers, under $20,000 for joint filers with one spouse eligible for the credit, or under $25,000 for joint filers with both spouses eligible.
  • Dependent care credit. Taxpayers who pay someone to care for a dependent or spouse with physical or mental impairments may be able to take a credit of up to 35 percent of day care costs while they are working or looking for work.

Tax Deductions

  • Increased standard tax deduction. People who are blind or visually impaired may be able to take a higher standard tax deduction.
  • Medical deductions. Taxpayers who itemize can deduct medical costs if those costs exceed 7.5 percent of their AGI. Deductible expenses include medical and dental costs, travel expenses for treatment, long-term care and medical insurance premiums, and costs for certain equipment for people with disabilities. Taxpayers with a chronic illness, or with a spouse or child with a chronic illness, may be able to deduct costs for attending conferences related to that illness.
  • Deduct the costs of seeking SSDI benefits. Taxpayers who hired a representative such as Allsup to help them get SSDI benefits and who itemize can deduct the representation fee paid from the taxable part of their benefits.

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ABOUT ALLSUP

Allsup is a nationwide provider of Social Security disability, Medicare and Medicare Secondary Payer compliance services for individuals, employers and insurance carriers. Founded in 1984, Allsup employs nearly 800 professionals who deliver specialized services supporting people with disabilities and seniors so they may lead lives that are as financially secure and as healthy as possible. The company is based in Belleville, Ill., near St. Louis. For more information and a Free Consultation visit Allsup.com. Be sure to mention you heard about them from IDA.

The information provided is not intended as a substitute for legal or other professional services. Legal or other expert assistance should be sought before making any decision that may affect your situation.

Above Allsup Press Release published with permission.

ARTICLE RESOURCE

Mistakes with Reporting Social Security Disability Income Can Be Costly at Tax Time, Allsup Finds. Allsup News Room. February 17, 2012.

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Tips on Social Security Eligibility

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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Climbing the Mountain of Weakness

“When you are weak, you are strong.” What does this really mean? For those of us who have invisible disabilities, this is a haunting statement, yet it is one of the most liberating and powerful principles available to us.  We want so desperately to look someone in the eye and say, “I’m doing great.  How are you?” The reality is that when we are hurting, we are not doing great and we find it difficult, if not impossible, to look at someone in the eye and say, “I’m not doing well at all.  Can you help me?”  When we find someone who will listen to us and understand how we are struggling, it is a huge boost of strength.

What do I mean by weak?  Simply this:  The fear of admitting that you are having a very hard time or struggling to the point of not seeing a way out.  For example, in the last 2 months I’ve come to the conclusion that I do not feel safe to drive my car due to how I’m doing physically.  Telling someone that I can’t take myself where I want to go is very difficult, as it means I have to depend on others.  On the one hand, this is a weakness, because I’m afraid to admit to someone else that I need help.  On the other hand, it is a source of strength because when I ask for someone else’s help, I’m letting them into my world; when I see that they accept me after knowing this about me, it is a great relief and source of strength.  It takes a lot of courage for me to let someone else know my weaknesses.  Regardless of their reaction, the courage that I put forth to do this, strengthens me.

Unfortunately, in our culture today, admitting that we are weak, unable, not smart, feeble, or anything other than strong and powerful is frowned upon.  Going one step further, it is my belief that we not only frown upon this, but we push people aside who are anything other than positive, strong, full of answers and fully capable of overcoming difficulties.  This is true not only for us who live with disabilities, but this attitude exists in our schools, neighborhoods, companies and families.

What does all this mean for you? Admitting that you are weak is OK.  Choose an area of your life that you’re having a hard time with.  Make a decision to tell someone you trust about this.  You will surprise yourself with how this is very liberating and how it will strengthen you.

About Angela Pierce

In 1985, Angela Pierce survived a 125-foot free fall while mountain climbing, breaking her bones in 168 places. Her story of survival is a miracle. The lessons she has learned over the last 27 years are an incredible inspiration to others who must climb their own mountains every day. Visit her website, Falling Off the Mountain.

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Alert Dogs Put Their Sniffers to Work to Save Lives

Photo Copyright Diabetic Alert Dogs

We all know that a dog’s sense of smell is more keen than a human’s. In fact, according to Dan Warren, a Virginia dog breeder, humans have about 5 million nose receptors, but dogs have about 250 million!

But, did you know that dogs can detect very subtle fluctuations in blood sugar levels? Warren’s company, Diabetic Alert Dogs by Warren Retrievers trains dogs to alert their owner when their blood sugar is dropping, but is still within normal range. Warren is also the Founder, President and CEO of Guardian Angel Service Dogs, the non-profit arm that provides awareness and funding for families to receive a diabetic alert dog.

“They also train dogs to help others with ‘invisible disabilities,’ Warren says, ‘including post-traumatic stress disorder and autism” (salisburypost.com).

Dogs can also be trained to alert their owners of seizures, anxiety, blood pressure and more by barking, pawing and/or licking. Some dogs even know how to dial 9-1-1.

Read Full Article

ARTICLE RESOURCES

Diabetic alert dogs can sniff out health problems. Katie Scarvey. salisburypost.com. Lifestyle. February 19, 2012.

Diabetic Alert Dogs by Warren Retrievers

Guardian Angel Service Dogs

Photo Copyright Diabetic Alert Dogs by Warren Retrievers

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About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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Nurse-Patient Relationships Endure

When attending a patient’s funeral, they blended in among the other mourners.

Nothing made them stand out, as they would in their normal work environment.

But this was not that. The graveside service was simple yet honorable. Snippets of conversation floating on the breeze caught my ear.

It was those snippets that amazed me.

I knew nurses were dedicated to their patients, but this was all new territory, at least for me. They seemed completely at ease, as though this was part of what they do everyday.

It made me wonder if it was routine to them.

Do nurses follow their patients beyond bedside duty? Do they feel a responsibility, a caring, a compassion not only for the patient, but the patient’s family?

Once their caregiving is no longer needed, do they still feel a connection to their patients?

Do they go so far as to attend a funeral of a deceased patient who had been in their care?

How utterly and phenomenally lovely and loving is that?

It’s compassion I don’t fully understand, from my limited viewpoint as a patient. It’s one I admire more than I can say.

I would want that for me, one day – a loooong way into the future, preferably.

I listened a bit more intently.

“I’m sorry, I don’t recognize you. Are you a friend of someone in the family?”

“We’re here because we were among the nurses in the hospital who treated him.”

“Oh! I didn’t recognize you. I’m so sorry.”

“That’s ok. You probably weren’t expecting to see us here. It’s the whole ‘out of context’ thing when trying to recognize faces.”

“It’s so kind of you to be here. Thank you so much for taking the time. Our dad received such great care at the end and you helped make a really difficult time a little easier.”

Their conversation created a lump in my throat. Wistful memories flashed in my mind.

As with any funeral, each one takes me back to two specific earlier funerals: my mom’s and my dad’s. While I don’t recall health care givers in attendance, I wouldn’t have been surprised if some had been there, especially among those at my mom’s funeral.

As a college student, I was too wrapped up in my own grief to give much attention to anyone not immediately recognizable. But I do recall the seemingly extra measures of kindness shown my mom by her nurses in her last days, while hospitalized.

The memory of the nurses’ gentle care of my mom impresses me still, a quarter century later.

If they weren’t at her funeral, I know it wouldn’t have been for lack of caring. They seemed the type who would have been there or who would have wanted to be there, if circumstances allowed.

I’m glad they were there for my friend’s dad’s service.

I like to think it’ll be a comfort for him and his family years later. It’s hard to remember details of those days later on; our memories can only store so much in the form of details or grief. I know it had to be comforting at the time.

Those nurses took their patient relationship to the next level. It inspired not only those in the relationship, but the rest of us who had the comfort of witnessing it, if only from a distance and after the light of it faded.

Reprinted with kind permission from NurseTogether.com

About Kris Harty

The Short Chick with the Walking Stick is Kris Harty, Stickability Specialist. Kris’ expertise as an entrepreneur and a lifelong patient helps entrepreneurs and those in healthcare – on the giving and receiving ends – to persevere and Stick To It-No Matter What! Kris speaks, writes, facilitates and regularly contributes to online medical journals, in addition to recently publishing her first book A Shot in the Arm and a Strong Spirit: How Health Care Givers Help Patients Persevere. She can be reached through her company's Web site, www.ShortChick.com or call 1.877.711.KRIS or through any of the links directly below.

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