Research Links Isolation, Stress and Disability

Allsup Highlights Resources, SSDI Help as More Research Links Isolation, Stress and Disability

Allsup outlines benefits of online communities and disability organizations, especially for those stressed while seeking Social Security Disability Insurance benefits.

Belleville, Ill.—April 3, 2013—It won’t surprise someone battling a long-term serious chronic illness or disability, but recent studies confirm the health impacts of isolation and stress. The studies highlight the value of supportive resources, according to Allsup, a nationwide provider of Social Security Disability Insurance (SSDI) representation.

“Anxiety, loneliness and depression can strongly affect a person’s physical and emotional state, and more researchers are showing the impact for those with chronic illnesses,” said Tricia Blazier, personal financial planning manager for Allsup.

Recent studies include those by researchers at Ohio State University College of Medicine (“Loneliness predicts pain, depression, and fatigue: Understanding the role of immune dysregulation”) and the University of California-San Francisco (“Loneliness in Older Persons: A Predictor of Functional Decline and Death”). They indicate that loneliness has an impact on people’s functional abilities, especially for older adults, and weakens their immune systems, among other effects.

“Many people may not know how or who to ask for help, but it’s important to seek out support from organizations like Allsup and groups that we work with,” Blazier said.

Resources include the National Alliance on Mental Illness, Lupus Foundation of America, Invisible Disabilities Association, United Spinal Association and the Caregiver Action Network. “Many nonprofit groups have volunteers and peer groups to connect you to resources and people who have your condition, and live in your area,” Blazier explained.

It can be a difficult transition for those who recently experienced a severe disability, such as an injury or quickly worsening illness, Blazier said. It’s hard to go from working, with a built-in social network and feelings of competency and productivity, to a more home-based life centered around medical concerns.

Many people have additional stress with financial worries and the process of seeking Social Security Disability Insurance can be lengthy and complicated. More than two-thirds of applicants are denied SSDI benefits, and the process of seeking a disability appeal can be stressful. A survey of customers who received their Social Security benefits with Allsup’s help found that 75 percent experienced extreme or significant stress during the SSDI process.

Social Security Disability Insurance is a federally mandated insurance program overseen by the Social Security Administration. To qualify for SSDI, individuals must have a severe disability expected to last for more than 12 months or is terminal. Individuals must have paid FICA payroll taxes to be eligible and, typically, must have worked five out of the last 10 years. Find more information on Allsup.com.

Allsup offers a variety of resources, including Allsup Place, a free online community for visitors and customers. One customized tool is the “Locate Resources” option. Users have access to hundreds of resources for their needs, including community agencies and government websites based on the state they live in and their condition.

“It’s important to seek supportive relationships in the wake of a severe disability,” Blazier added. “Along with serving as an expert SSDI representative, Allsup professionals understand and help many of our customers to locate important resources.”

To determine if you are eligible for Social Security Disability Insurance benefits, call the Allsup Disability Evaluation Center at (800) 678-3276 for a free SSDI eligibility evaluation.

ABOUT ALLSUP
Allsup is a nationwide provider of Social Security disability, veterans disability appeal, Medicare and Medicare Secondary Payer compliance services for individuals, employers and insurance carriers. Founded in 1984, Allsup employs more than 800 professionals who deliver specialized services supporting people with disabilities and seniors so they may lead lives that are as financially secure and as healthy as possible. The company is based in Belleville, Ill., near St. Louis. For more information, Click Here. Visit Allsup on Facebook.

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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IDA Receives “Best Booth Award” for Allsup’s Disability Expo

AwardPress Release

IDA Receives the “Best Booth Award” for Allsup’s Disability Expo

Parker, CO – January 23, 2013. The Invisible Disabilities Association is thrilled to receive the “Best Booth Award” for Allsup’s True Help® Disability Web Expo. The free, online expo was held on September 27, 2012 and available on-demand through December 26th.

15 non-profit organizations were invited by Allsup to participate in the event. IDA presented 6 Video Interviews and LIVE chats with our experts. We also made informative pamphlets, hand-outs, videos and resources available to the attendees.

The award included a $1,000 scholarship to IDA to help us continue to encourage, educate and support people touched by illness and disabilities around the world. This award was determined by the feedback and votes from attendees of the expo.

Thank you everyone who attended and voted for us!

ABOUT THE INVISIBLE DISABILITIES ASSOCIATION

The Invisible Disabilities Association (IDA) is a non-profit organization that has been encouraging, educating and connecting people and organizations touched by invisible disabilities around the world since 1997. IDA provides awareness, articles, pamphlets, booklets, radio interviews, videos, seminars, events, resources, an online social network and much more.

Contact the IDA Team: Go to the Contact Page on the Invisible Disabilities Association website. Visit the Invisible Disabilities Association at: www.InvisibleDisabilities.org

Additional Resources

2012 Online Disability Expo Now Available Through December 26

IDA Presents LIVE Chats with Our Experts September 27th

Free Online Disability Expo with IDA September 27, 2012

 

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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IDA Makes the “Top 10 Guest Blogs of 2012″ on Disability.gov

TypePress Release

IDA Makes the “Top 10 Guest Blogs of 2012″ on Disability.gov

Parker, CO – January 03, 2012. IDA Founder, Wayne Connell is a regular Guest Blogger on Disability.blog by Disability.gov. We are elated to announce that IDA Made the “Top 10 Guest Blogs of 2012″ on Disability.Blog by Disability.Gov. We are thrilled to receive this recognition and to be given the opportunity to bring about more awareness and education about Invisible Disabilities!

Disability.Blog wrote:

2012 was an exciting year for Disability.Blog! We expanded existing partnerships and began dynamic new ones with leading disability organizations, such as the Invisible Disabilities Association (IDA). IDA President and Founder Wayne Connell and IDA ambassadors, including Kathe Skinner and Jeff Vankooten, wrote thoughtful posts throughout the year to let our readers know about the importance of recognizing and understanding invisible disabilities, and to offer people living with chronic illness and pain an opportunity to tell their personal stories.

Read full story.

Thank you to all of our guest CO-authors and readers who have commented and liked our blogs, showing your support for what IDA is doing!

The IDA Team

ABOUT THE INVISIBLE DISABILITIES ASSOCIATION

The Invisible Disabilities Association (IDA) is a non-profit organization that has been encouraging, educating and connecting people and organizations touched by invisible disabilities around the world since 1997. IDA provides awareness, articles, pamphlets, booklets, radio interviews, videos, seminars, events, resources, an online social network and much more.

Contact the IDA Team: Go to the Contact Page on the Invisible Disabilities Association website. Visit the Invisible Disabilities Association at: www.InvisibleDisabilities.org

RELATED ARTICLES:

Invisible No More!

It’s All in Your Head

Join the Expedition

Learning the Language of Invisible Disabilities

Looks Can Be Deceiving on Disability.gov

What’s So Funny About on Disability.gov

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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IDA on HUFFPOST LIVE News

HUFFPOST LIVE IDA Wayne Connell 12-11-2012.Press Release

IDA Invited to be a Special Guest on HUFFPOST LIVE News

Parker, CO – December 12, 2012. Wayne Connell, Founder and President of the Invisible Disabilities Association was honored to be a Special Guest on HUFFPOST LIVE produced by THE HUFFINGTON POST.

Nancy Redd hosted this informative broadcast entitled, “Not Handicapped Enough.

Joining Wayne was Hall of Fame Speaker, Humorist and Nurse, Karyn Buxman, RN, MSN. Karyn is also an IDA Advisory Board Member, author of the book series, “What’s So Funny About…” and founder of Journal of Nursing Jocularity. Karyn has spoken at several of IDA’s events and was the recipient of the 2009 IDA Healthcare Award. She is the past President of the Association of Applied Therapeutic Humor and teaches nurses, businesses and people living with illness and pain how to use humor as stress-relief and therapy.

Wayne’s wife, Sherri was also invited to share her insights and perspectives on living with invisible disabilities. Sherri lives with Progressive Multiple Sclerosis, Chronic-Late Lyme Disease and Chemical Injury. Once a very active young woman, singing and dancing in musicals, achieving multiple college degrees and enjoying her career, Sherri has been unable to care for her own daily needs since 1991. Sherri and Wayne were married in 1994.

HUFFPOST LIVE producers were inspired to air this episode after reading an article from Elsa Sjunneson-Henry, “I May Be Disabled, But People Don’t Think I’m Blind Enough.” Elsa was also a Special Guest on the evening’s program.

Thank you goes out to HUFFPOST LIVE and THE HUFFINGTON POST for airing this valuable information and awareness! WATCH HERE!

ABOUT THE INVISIBLE DISABILITIES ASSOCIATION

The Invisible Disabilities Association (IDA) is a non-profit organization that has been encouraging, educating and connecting people and organizations touched by invisible disabilities around the world since 1997. IDA provides awareness, articles, pamphlets, booklets, radio interviews, videos, seminars, events, resources, an online social network and much more.

Contact the IDA Team: Go to the Contact Page on the Invisible Disabilities Association website. Visit the Invisible Disabilities Association at: www.InvisibleDisabilities.org

ARTICLE RESOURCES

Association of Applied Therapeutic Humor

Chemical Injury

Elsa Sjunneson-Henry

HUFFPOST LIVE

THE HUFFINGTON POST

I May Be Disabled, But People Don’t Think I’m Blind Enough.

Journal of Nursing Jocularity

Karyn Buxman, RN, MSN

Invisible Disabilities Association

SherriConnell.com

What’s So Funny About…

Wayne Connell

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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IDA on Disability.gov – Join the Expedition

IDA Founder, Wayne Connell is a regular Guest Blogger on Disability.blog by Disability.gov.

Article Excerpt: In recognition of National Disabilities Month, every October for the past five years, the Invisible Disabilities Association (IDA) has hosted an awards banquet in Lone Tree, Colorado. On October 14th we will, “Join the Expedition” of caregiving and loving those living with illness, pain and disability.

See what an amazing difference IDA is making with awareness, education and support, as well as our incredible 2012 Award Recipients and Keynote Speakers, Antarctic Mike and Angela Pierce. This evening is bound to be a journey you will never forget! Read the entire blog here on Disability.gov. Published September 19, 2012.

Leave your comments on the article and share it with your friends and family on Facebook, Twitter, LinkedIn, Google+ and by email below.

RELATED ARTICLES:

IDA’s Invisible No More on Disability.gov

IDA’s It’s All in Your Head on Disability.gov

IDA’s But You LOOK Good on Disability.gov

IDA’s Looks Can Be Deceiving on Disability.gov

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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Autographed Peyton Manning Paper Mosaic by Artist Russell Irwin

St Louis artist and IDA Ambassador, Russell Irwin creates and donates a one-of-a-kind Peyton Manning Paper Mosaic for 2012 Invisible Disabilities Association Honors Banquet. The 20 x 30 Paper Mosaic is autographed by both Russell Irwin and by Peyton Manning, Quarterback for the Denver Broncos.

I begin my creation by applying layers of torn paper in mosaic patterns of texture and color. This becomes the surface on which I use power sanders to grind, carve and articulate integrated dimensions of image and story.

I call these works of art Paper Mosaics. These are my creations; this is my art, the work that I love.

~ Russell Irwin

IDA is so thrilled by this amazing donation which is the center piece of our live auction at our 5th Annual Honors Banquet on October 14th.

We are overwhelmed by the generosity of both Russell and Peyton. To have an original work of art created by such a renowned sports artist as Russell Irwin who has also been commissioned by the NFL, the Masters, the Dallas Cowboys and of course extensive works for the St Louis Cardinals is quite amazing unto itself. To also have a future Hall of Fame Quarterback, Peyton Manning signing his name to it is over the top!

Every true Peyton Manning fan should lining up to register for the chance to bid on a part of history on October 14th in Lone Tree, Colo. As fantastic as it is, the Paper Mosaic is only part of a wonderful evening of honoring twelve individuals and organizations nationwide who are making a difference in the lives of people touched by illness, pain and disability. The evening will be capped off with a keynote by world record holder and adventure athlete Antarctic Mike (Pierce) and his wife Angela, a life long disability survivor.

Join the Expedition on Oct 14th. Register HERE!

Watch videos below of Russell Irwin’s dimensional, amazing and unique Paper Mosaics.

Ever Wonder? Precious
The Making of Ever Wonder Precious – The Video
   

ADDITIONAL RESOURCES

The Russell Irwin Gallery

The Russell Irwin Gallery: Sports Art

Peyton Manning of the Denver Broncos

PeyBack Foundation by Peyton Manning

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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2012 Online Disability Expo Now Available Through December 26

YOU DIDN’T MISS IT! The True Help® Online Disability Expo is now available on demand through December 26.

All the booths are still open for people to browse through!

1) Register here!
2) Go to the Empowerment Hall to find our booth! Hoover over the booths to find the Invisible Disabilities Association or use the direct link (below) to go right to the IDA Booth after you register.
3) Look through our videos, pamphlets and free handouts.
4) Go to the chat module to find the video interviews and transcripts from our IDA Experts.
5) Vote for IDA! After attending, you will be sent a questionnaire about how you enjoyed the expo.

PLEASE VOTE for IDA to win the $1,000 grant to help us continue to reach out with encouragement, education, support and resources. After visiting the Disability Expo, you will be sent a survey in which to vote for us. Thank you!

Our IDA Experts:

  • VIDEO: Be Expedition Ready – Learn about preparing for the journey of care giving. Antarctic Mike (Pierce) and IDA President, Wayne Connell.
  • VIDEO: Nine new rules for engaging change and managing stress. Jeff Vankooten.
  • VIDEO: 7 Realities of the Invisible Becoming Visible. IDA Founder and President, Wayne Connell.
  • VIDEO: Communication Do’s and Don’ts for People with Disabilities. Kathe Skinner, MA, LMFT.
  • VIDEO: Humor for Health & Well-Being. Karyn Buxman, RN, MSN, CSP, CPAE.
  • TRANSCRIPTS: Your Changing Brain – The owner’s manual to your mind. Rick Watson, CEO DRS Health Group.

Don’t forget to invite your friends, family, groups, neighbors and medical professionals!

The IDA Team
Invisible Disabilities Association
http://www.InvisibleDisabilities.org/

RELATED ARTICLES

Free Online Disability Expo with IDA

IDA Presents Live Chats with Our Experts September 27th

 

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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What to Say, What Not to Say and How to Help People Living with Illness and Pain

Ask anyone living with illness or pain and they will probably be eager to share what many people have said to them over the years that they didn’t feel was very encouraging. In fact, many will tell you that they were very hurt by something someone said.

It is true, that some people in this world may say something that is intentionally judgmental or negative. Nonetheless, we believe that in many cases, friends and family really do want to be supportive, but simply don’t know how.

Some people choose to ignore the issue or person; some toss out platitudes like simple fix-its and others share what they feel is the right thing to say with an expectation that it will be met with appreciation for their insight. However, loved ones often they find themselves perplexed or even angry when instead of being elated by the comment, their friend or family member is clearly frustrated by what was said. Sadly, these encounters can lead to the breaking down of communication and the relationship as a whole.

IDA Founder and President, Wayne Connell and his wife, Sherri, know all too well how relationships can suffer or even end. Wayne believes that loved ones need to learn what he calls, “The Language of Invisible Disabilities.” People can learn these communication and support skills by learning what to say and what not to say and why.

When they can discover why a certain comment or suggestion is not well received, they can gain a better understanding of their loved one’s perspective. This allows them to ascertain how and why certain comments may cause their loved one to feel misunderstood, judged or as if their situation, losses and perseverance are being minimized. As a result, they can move on to learning what kinds of interchange and assistance gives hope, encouragement and the strength to keep fighting.

 All of these things are addressed in IDA’s book, But You LOOK Good! How to Encourage and Understand People Living with Illness and Pain, written by Wayne and Sherri (all proceeds go to IDA).

This book gives practical tips on what to say, what not to say and how to help. It also gives insight into why, we as humans, often respond the way we do to debilitating conditions that are not readily obvious. It shares how we may protect ourselves and try to protect our loved one with denial. And it explains how a loved one may appear as if they do not care, when in fact they do. Yet, they just find it too painful to acknowledge the situation, because they don’t want to see their loved one suffer. These points not only help friends and family, but they also help those living with illness or pain better grasp where their loved one is coming from as well. These are the first steps to restoring relationships.

The video below is from the Online Seminar, What to Say, What Not to Say and How to Help People Living with Illness and Pain with Wayne and Sherri Connell. It was presented during the 2012 National Invisible Chronic Illness Awareness Week (NICIAW), founded by Lisa Copen. Wayne and Sherri were Special Guests for the NICIAW Seminar, Invisible Disabilities and the Husband as Caregiver in 2010 that was also featured in 2011. IDA has been involved in the NICIAW week since it’s inception in 2002.

RELATED ARTICLES

Chronic Illness Tips: 263 ways to more than “just get by.” Available to download for FREE! Tips adapted  from IDA’s booklet, But You LOOK Good!  into a collaborative project by NICIAW Founder, Lisa Copen.

FREE Chronic Illness Tips eBook with IDA Founder. Chronic Illness Tips: 263 ways to do more than “just get by.” Lisa Copen and Friends. Rest Ministries.

IDA Founder Guest Speaker for National Invisible Chronic Illness Awareness Week. IDA Press Release. July 15, 2012.

Invisible Disabilities and the Husband as Caregiver. IDA Founder and President, Wayne Connell. Interviewed by Lisa Copen on BlogTalk RadioNational Invisible Chronic Illness Awareness Week Online Seminar. September 16, 2010. Featured again September 2011. Listen Here

What to Say, What Not to Say and How to Help with Wayne and Sherri Connell. Online Conference Guest Speakers for the National Invisible Chronic Illness Awareness Week. Founded by Lisa Copen of Rest Ministries. Video. September 10, 2012

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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Like and Post to Raise $1,000 for IDA with Allsup’s Post for a Purpose

Like and Post to Raise $1,000

for IDA in September!

IDA will receive one dollar in the month of September up to $1,000 for each person who “Likes” Allsup’s Facebook Page and posts on their page your to this question:

 How can others best encourage you on
your journey with illness, pain or disability?

Let your voice be heard and post for a great cause! Share this with your friends, family, neighbors and groups! 

Thank you!

The IDA Team

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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IDA Presents LIVE Chats with Our Experts September 27th

Press Release

Invisible Disabilities Association Presents Live Chats with Our  Experts on September 27th.

Parker, CO – August 30, 2012. IDA Teams Up with Allsup for a FREE and Online True Help® Disability Web Expo to offer Live Chats and more!

The Invisible Disabilities Association Booth Includes:

■ Front Desk
■ About IDA
■ Encouragement and Education
■ Invisible No More TV
■ Videos, Handouts, Pamphlets
■ 6 Live Chats with Our Experts!

Register Here – It’s free!

Print Our Flyer – Share with your groups, friends, family, doctors, nurses and caregivers!

Help Raise $1,000 for IDA in September – Share your thoughts on how others can encourage you on your journey! Click the link for details!

7 a.m. – 2 p.m. (PST) / 8 a.m. – 3 p.m. (MST) / 9 a.m. – 4 p.m. (CST) / 10 a.m. – 5 p.m (EST)

IMPORTANT! After you register for the expo, go to the “Empowerment Hall” where IDA’s Booth will be. That is where you will find all of our information, videos and 6 Live Chats! Hoover over the booths with your mouse to find our booth and click on it!

Network with others, register for prizes, make your voice heard in the live chats, and more!

9:15 -10:00 a.m. (CST)

Making the Most of Your Web Expo Experience. Allsup
10:00 – 10:50 a.m. (CST)

Be Expedition Ready – Learn about preparing for the journey of care giving.

Antarctic Mike (Pierce) and IDA President, Wayne Connell. Mike is a Speaker, World Record Holder, Caregiver to his wife, Angela and IDA Ambassador. Mike and Angela will be our Keynote Speakers for the 2012 Honor Awards Banquet on October 14th. Don’t miss it!

11:00 – 11:50 a.m. (CST)

Ready, Set, Thrive – Nine new rules for engaging change and managing stress.

Jeff Vankooten, Speaker, Trainer and  IDA Executive Board Member who lives with Bipolar Disorder.

12:00 – 12:50 p.m. (CST)

7 Realities of the Invisible Becoming Visible.

Wayne Connell, Invisible Disabilities Association Founder and President.

1:00 – 1:50 p.m. (CST)

Communication Do’s and Don’ts for People
with Disabilities.

Kathe Skinner, MA, LMFT, Marriage and Family Therapist and IDA Executive Board Member. Kathe also lives with Multiple Sclerosis. She and her husband, David specialize in counseling couples with a spouse living with chronic illness.

2:00 – 2:50 p.m. (CST)

Humor for Health & Well-Being.

Karyn Buxman, RN, MSN, CSP, CPAE, Nurse, Hall of Fame Speaker, Humorist and IDA Advisory Board Member. She is also the Founder of Journal of Nursing Jocularity.

3:00 – 4:30 p.m. (CST) Your Changing Brain – The owner’s manual to your mind. Rick Watson, CEO DRS Health Group and IDA Executive Board Member. DRS Health Group addresses emotional wellness and cognitive capacity practices.

This expo is open to all living with chronic illness, pain, injury, disability and their loved ones, as well as medical professionals and all who want to learn more about these subjects.

ABOUT THE INVISIBLE DISABILITIES ASSOCIATION

The Invisible Disabilities Association (IDA) is a non-profit organization that has been encouraging, educating and connecting people and organizations touched by invisible disabilities around the world since 1997. IDA provides awareness, articles, pamphlets, booklets, radio interviews, videos, seminars, events, resources, an online social network and much more.

Contact the IDA Team: Go to the Contact Page on the Invisible Disabilities Association website. Visit the Invisible Disabilities Association at: www.InvisibleDisabilities.org

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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IDA on Disability.gov – What’s So Funny About

IDA Founder, Wayne Connell is a regular Guest Blogger on Disability.blog by Disability.gov.

This article, What’s So Funny About… was Co-Authored by Karyn Buxman, RN, MSN and IDA Advisory Board Member and Author.

Article Excerpt: My journey over the past two decades with my wife, Sherri – whose life is filled daily with intense pain, brain fog, overwhelming fatigue and isolation – is full of more downs than ups. It seems like the easy thing to do would be to throw my hands up and scream. I joke sometimes that Murphy has nothing on what we go through each day.  … Read the entire blog here on Disability.Blog. Published August 24, 2012.

Leave your comments on the article and share it with your friends and family on Facebook, Twitter, LinkedIn, Google+ and by email below.

RELATED ARTICLES:

IDA’s Invisible No More on Disability.gov

IDA’s It’s All in Your Head on Disability.gov

IDA’s But You LOOK Good on Disability.gov

IDA’s Looks Can Be Deceiving on Disability.gov

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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IDA on Disability.gov – Looks Can Be Deceiving

IDA Founder, Wayne Connell is a regular Guest Blogger on Disability.blog by Disability.gov.

This article, Looks Can Be Deceiving, was Co-Authored by Kathe Skinner. Kathe is a Relationship Coach who lives with Multiple Sclerosis. She is also an IDA Executive Board Member.

Article Excerpt: Why believe? Why believe someone is ill and in pain when their appearance and circumstances may indicate otherwise? Perhaps their body is crying out in pain, the brain fog comes and goes and they alternate between moments of brilliance and a loss for words. How can we determine the extent of someone’s injuries and illness just by looking at them? … Read the entire blog here on Disability.Blog. Published July 25, 2012.

Leave your comments on the article and share it with your friends and family on Facebook, Twitter, LinkedIn, Google+ and by email below.

RELATED ARTICLES:

Kathe Skinner’s Website, Being Heard Now

IDA’s Invisible No More on Disability.gov

IDA’s It’s All in Your Head on Disability.gov

IDA’s But You LOOK Good on Disability.gov

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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FREE Chronic Illness Tips eBook with IDA Founder

Chronic Illness Tips: 263 ways to do more than “just get by.”

Lisa Copen, the Founder of the National Invisible Chronic Illness Awareness Week and Rest Ministries, collaborated with several authors and experts to compile this very resourceful book.

Wayne Connell, Founder of the Invisible Disabilities Association,  contributed his helpful tips, “10 Ways to Encourage Loved Ones Living with Chronic Illness and Pain” adapted from IDA’s book, But You LOOK Good!

Other topics included in the book are After the Diagnosis, Coping with Illness, Relationships, Faith, Career, Encouraging Others and Practical Tips.

This ebook is available for download for FREE!

Don’t miss Wayne Connell and his bride, Sherri, during the 2012 National Invisible Chronic Illness Awareness Week. They will be discussing the in’s and out’s of living with invisible disabilities, marriage and how to reach out. This year, the interview will be by video!

ADDITIONAL RELATED RESOURCES

National Invisible Chronic Illness Awareness Week Online Seminar. Lisa Copen interviewed IDA Founder and President, Wayne Connell on BlogTalk Radio. September 16, 2010. Featured again September 2011. Listen Here

Chronic Illness Tips: 263 ways to more than “just get by.” Available to download for FREE! Tips adapted  from IDA’s booklet, “But You LOOK Good!”  into a collaborative project by NICIAW Founder, Lisa Copen.

Invisible Illness and Finding Support. Guest Speakers IDA Founder Wayne Connell and his wife, Sherri. 2010 and 2011 National Invisible Chronic Illness Awareness Week.

IDA Featured During National Invisible Chronic Illness Awareness Week 2010 and 2011

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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Free Online Disability Expo with IDA September 27, 2012

UPDATE September 28: This Expo will be available on-demand through December 26, 2012.

Press Release

IDA Teams Up with Allsup for a FREE and Online True Help® Disability Web Expo

Parker, CO – July 16, 2012. There will be more than a dozen leading nonprofit organizations presenting, including the Invisible Disabilities Association and Allsup.

Virtual booths with experts in health, Social Security Disability Insurance, financial planning, Medicare and health insurance will be available to provide screening services, answer your questions and listen to your feedback.

This free online event will support the specific needs and interests of people with disabilities and chronic illness. Caregivers, healthcare providers and the general public also are encouraged to attend.

Network with others, register for prizes, make your voice heard in the live chats, and more!

This is a FREE One-Day Live, Online Event Thursday, Sept. 27, 2012:

7 a.m. – 2 p.m. (PST) / 8 a.m. – 3 p.m. (MST) / 9 a.m. – 4 p.m. (CST) / 10 a.m. – 5 p.m (EST)

The Invisible Disabilities Association Booth Will Include:

  • Front Desk
  • About IDA
  • Encouragement and Education
  • Invisible No More TV
  • Videos, Handouts and Pamphlets
  • 6 Live Chats with Experts

Don’t Miss the Live Chats with Our Experts: Based on Central Standard Time

  • 9:15 – 10:00 a.m. Making the Most of Your Web Expo Experience. Allsup.
  • 11:00 – 11:50 a.m. Ready, Set, Thrive – Nine new rules for engaging change and managing stress. Jeff Vankooten, Speaker, Trainer and  IDA Executive Board Member who lives with Bipolar Disorder.
  • Noon – 12:50 p.m. 7 Realities of the Invisible Becoming Visible. IDA Founder and President, Wayne Connell. 
  • 1:00 – 1:50 p.m. Communication Do’s and Don’ts for People with Disabilities. Kathe Skinner, MA, LMFT, Marriage and Family Therapist and IDA Executive Board Member. Kathe also lives with Multiple Sclerosis. She and her husband, David specialize in counseling couples with a spouse living with chronic illness.
All Available Booths:
Invisible Disabilities Association / Allsup – Help with Social Security Disability and Medicare / AAPD /American Parkinson Disease Association /Arthritis Foundation /Brain Injury Association of America /The Mended Hearts, Inc. / National Alliance on Mental Illness / National Family Caregivers Association / National Fibromyalgia & Chronic Pain Association / National Multiple Sclerosis Society /National Stroke Association / National Spinal Cord Injury Association / NORD – National Organization for Rare Diseases

Register Here - It’s free!

IMPORTANT! After you register for the expo, go to the “Empowerment Hall” where IDA’s Booth will be. That is where you will find all of our information, videos and 6 Live Chats! Hoover over the booths with your mouse to find our booth and click on it!

Print Our Flyer - Share with your groups, friends, family, doctors, nurses and caregivers!

Help Raise $1,000 for IDA in September – Share your thoughts on how others can encourage you on your journey! Click the link for details!

This expo is open to all living with chronic illness, pain, injury, disability and their loved ones, as well as medical professionals and all who want to learn more about these subjects.

ABOUT THE INVISIBLE DISABILITIES ASSOCIATION

The Invisible Disabilities Association (IDA) is a non-profit organization that has been encouraging, educating and connecting people and organizations touched by invisible disabilities around the world since 1997. IDA provides awareness, articles, pamphlets, booklets, radio interviews, videos, seminars, events, resources, an online social network and much more.

Contact the IDA Team: Go to the Contact Page on the Invisible Disabilities Association website. Visit the Invisible Disabilities Association at: www.InvisibleDisabilities.org

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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IDA Founder Guest Speaker for National Invisible Chronic Illness Awareness Week September 2012

UPDATE September 16: The 2012 Conference Seminars will be available on the NICIAW Website through July 2013. IDA’s Seminar will be available on our website indefinitely.

Press Release

IDA Founder Guest Speaker for National Invisible Chronic Illness Awareness Week September 2012

Parker, CO – July 15, 2012 – The Invisible Disabilities Association (IDA) Founder and President, Wayne Connell and his bride, Sherri were invited back to be guest speakers again for the upcoming 2012 National Invisible Chronic Illness Awareness Week (NICIAW).

Don’t miss the week’s FREE Online Seminars, other activities and offers September 10 – 16.

Monday September 10 at 10 am MST: Wayne and Sherri will be discussing What to Say, What Not to Say and How to Help Someone Living with Illness and Pain. This year, the interview will be by video!

IDA has been involved in the NICIAW since its inception in 2002. We have sponsored and helped get the word out. We have also participated in the online seminars by giving presentations on “But You LOOK Good,” “How Can I Make People Understand” and “What to Say, What Not to Say and How to Help.”

In 2010, Wayne and Sherri were Guest Speakers for a podcast interview, “Invisible disabilities and the Husband as Caregiver” that was broadcast live. In 2011, it was featured again during the week’s events.

Also in 2010, Wayne shared tips that were adapted from IDA’s book, But You LOOK Good! and published into a collaborative project. NICIAW Founder and Author, Lisa Copen compiled a helpful, 80 page ebook, Chronic Illness Tips: 263 ways to more than “just get by.” This book is available to download for FREE!

National Invisible Chronic Illness Awareness Week is an official annual campaign sponsored by Rest Ministries in collaboration with other sponsors. This year, the NICIAW will provide both audio and video seminars, handouts, articles, blogs, posters and more!

Print and Distribute Our Press Release to your friends, family, support groups, doctors, nurses and neighbors!

ABOUT THE INVISIBLE DISABILITIES ASSOCIATION

The Invisible Disabilities Association (IDA) is a non-profit organization that has been encouraging, educating and connecting people and organizations touched by invisible disabilities around the world since 1997. IDA provides awareness, articles, pamphlets, booklets, radio interviews, videos, seminars, events, resources, an online social network and much more.

Contact the IDA Team: Go to the Contact Page on the Invisible Disabilities Association website. Visit the Invisible Disabilities Association at: www.InvisibleDisabilities.org

ADDITIONAL RELATED RESOURCES

National Invisible Chronic Illness Awareness Week Online Seminar. Lisa Copen interviewed IDA Founder and President, Wayne Connell on BlogTalk Radio. September 16, 2010 and September 2011. Listen Here

Chronic Illness Tips: 263 ways to more than “just get by.” Available to download for FREE! Tips adapted  from IDA’s booklet, “But You LOOK Good!”  into a collaborative project by NICIAW Founder, Lisa Copen.

Invisible Illness and Finding Support. Guest Speakers IDA Founder Wayne Connell and his wife, Sherri. 2010 and 2011 National Invisible Chronic Illness Awareness Week.

IDA Featured During National Invisible Chronic Illness Awareness Week 2010 and 2011

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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IDA Chosen as Featured Charity for Networking Event in Denver

Press Release

IDA Chosen as Featured Charity for Mile High Society Project Networking Event in Denver

Denver, CO – July 14, 2012. The Invisible Disabilities Association (IDA) was honored to be the featured charity in July 2012 for the Mile High Society Project. Sponsor, Rachel Angel of Northwestern Mutual chose IDA to be the focus of the evening’s event held by Sponsoring restaurant, Coohills in Denver.

What is the Mile High Society Project? “Our goal is to repurpose the money spent on drinks and food into charitable donations for local organizations. Our monthly events will be held … at a different venue, with a different beneficiary each time” (Mile High Society Project website).

Attendees met the Founder and President of the Invisible Disabilities Association, Wayne Connell and Executive Board Members, Steve Tonkin, Lynelle Lahey and Jeff Vankooten, learned about invisible disabilities and networked with other business professionals.

It was a great evening of awareness and meeting new friends!

A big thank you, goes out to Mile High Society Project, Rachel Angel of Northwestern Mutual, Coohills and all the amazing people who attended the event!

ABOUT THE INVISIBLE DISABILITIES ASSOCIATION

The Invisible Disabilities Association (IDA) is a non-profit organization that has been encouraging, educating and connecting people and organizations touched by invisible disabilities around the world since 1997. IDA provides awareness, articles, pamphlets, booklets, radio interviews, videos, seminars, events, resources, an online social network and much more.

Contact the IDA Team: Go to the Contact Page on the Invisible Disabilities Association website. Visit the Invisible Disabilities Association at: www.InvisibleDisabilities.org

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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Hurdles Remain for People with Disabilities and Seniors with Heathcare Reform

Hurdles Remain for People with Disabilities and Seniors After Supreme Court Ruling on Healthcare Reform, Says Allsup

Allsup explains impact of court’s ruling for people with disabilities awaiting SSDI benefits and those relying on Medicare

Belleville, Ill.—June 28, 2012—The U.S. Supreme Court ruling to uphold portions of the Affordable Care Act of 2010 (ACA) will have a profound impact on people with disabilities and those relying on Medicare. But more needs to be known about the affordability of care before determining the law’s actual benefit for people with severe disabilities, according to Allsup, a nationwide provider of Social Security Disability Insurance (SSDI) representation and Medicare plan selection services.

“Access to healthcare is essential for the well-being of millions of seniors and people with disabilities,” said Tricia Blazier, senior disability life planning manager for Allsup. “While the ACA is not perfect, it generally has had a positive impact for most Medicare beneficiaries. For example, it provides preventive service coverage and shrinks the prescription drug donut hole.”

It also has shown promise for people with disabilities because of future provisions set to take effect through 2014. However, Blazier noted, the overall benefit is yet to be determined, with affordability of care being a significant hurdle that still needs to be addressed.

“Even with healthcare reform, many of the initial coverage options have been out of the financial reach of SSDI beneficiaries, for example, the Pre-Existing Condition Insurance Plans (PCIPs),” Blazier said. “The ruling should help resolve some of the uncertainty surrounding healthcare reform, and the broader areas of reform now can move into place. Hopefully, this means improvements to costs and coverage options to support people with permanent disabilities.”

Below, Allsup reviews the key provisions on which the Supreme Court ruled and how those decisions will affect Medicare beneficiaries and people with disabilities.

The Individual Mandate

The Supreme Court ruled that the individual mandate requiring people to have coverage is constitutional. Under healthcare reform, all U.S. citizens and legal residents will be required to have qualifying health coverage starting in 2014.

For people with disabilities, this means a number of positive developments. Insurers already are required to provide coverage to children with pre-existing conditions. Starting in 2014, insurers can no longer deny coverage to anyone with pre-existing health conditions and lifetime limits will be eliminated. This is the same year that individuals will be required to have healthcare coverage and state exchanges will be operational.

People with disabilities who are awarded SSDI benefits must wait 24 months after receiving cash SSDI benefits to become Medicare eligible. Allsup has found that one-third of individuals with serious disabilities will lose their health insurance while awaiting Medicare eligibility and are unable to obtain new coverage because of costs and pre-existing conditions.

“Without the individual mandate, the cost of insurance would largely continue to be out of reach for people with disabilities,” Blazier said. “We have already seen this with the PCIPs, where enrollment is lower than expected and the actual cost of coverage is nearly double what had been the anticipated cost.”

PCIPs, essentially the precursors to the state exchanges required under healthcare reform, are plans that provide insurance to people with pre-existing conditions who can’t get coverage elsewhere at the same market rates as healthy consumers. PCIP participation has been lower than expected and, while costs vary widely by state, each participant is expected to pay $28,944 in medical costs in 2012—more than double the expectation, according to a U.S. Department of Health & Human Services February report.

“For people who cannot afford coverage in the private market, the state exchanges—which will be required to also cover people with disabilities—should provide a bridge, but only if they’re truly affordable,” Blazier said.

The exchanges will allow individuals to compare qualified plans and provide them with information on whether they are eligible for Medicaid, the Children’s Health Insurance Program (CHIP) or other programs to reduce the costs of insurance. For any citizen, especially those with physical and mental disabilities, simplifying how they go about assessing their options and eligibility for complicated programs is an important improvement.

Under the ACA, those without coverage will face a penalty that starts in 2014 of $95 per adult and $47.50 per child, up to $285 for a family or 1 percent of income, whichever is greater, and continues to increase through 2016. After 2016, cost-of-living adjustments will be applied.

Medicaid Expansion Tempered

The ACA had required states to adopt expanded Medicaid eligibility and coverage thresholds in order to remain eligible to participate in the joint federal-state program. Medicaid provides healthcare to people with low incomes and those with disabilities.

However, the Supreme Court ruled that Congress cannot penalize states that choose not to expand Medicaid. As a result, states will not lose their existing Medicaid funds if they don’t comply with this expansion, which called for Medicaid in every state to cover people under age 65 with income of 133 percent of the federal poverty line starting in 2014. (The federal poverty line is $23,050 for a family of four in 2012.)

“In states where Medicaid is expanded, the lower thresholds will help many individuals who are not able to work because of a disability and have to make a daily decision between being able to afford to eat or taking medications that are essential for their conditions,” Blazier said. “We know that when people have to make these types of trade-offs, it often increases healthcare costs down the road.”

What ACA Now Means for People with Disabilities and Medicare Beneficiaries

Provisions of healthcare reform already offering more affordable coverage to Medicare beneficiaries and people with disabilities include:

  • Elimination of Lifetime Limits, Regulated Annual Limits and Coverage for Young Adults - as of September 2010. These provisions were upheld. For example, many young adults (up to age 26) who were allowed onto their parents’ insurance coverage can continue with this coverage.
  • Coverage of Certain Preventive Services - as of September 2010 for all new health plans; extended to Medicare plans in 2011.
  • Reduction of the Medicare Prescription Drug Donut Hole - starting in 2011 until fully eliminated in 2020.

In addition to the individual mandate and expansion of Medicaid (for those states opting for expansion) that go into effect in 2014, other key provisions that will go into effect shortly include:

  • Preventive Services for Medicaid. Starting in 2013, federal matching payment incentives will be provided to states that offer Medicaid coverage with no patient cost sharing for certain preventive services.
  • State Exchanges. Starting in 2014, individuals and small businesses with up to 100 employees can purchase qualified coverage through state exchanges. These exchanges will have a single form for applying for health programs, including coverage through the exchanges and Medicaid and CHIP programs.
  • Elimination of Annual Limits on Coverage and Guaranteed Coverage. Starting in 2014, annual limits on the dollar value of coverage will be prohibited. ACA also requires guaranteed coverage and renewability of health insurance regardless of health status. In addition, ACA allows rating variation based only on age, geographic area, family composition and tobacco use in the exchanges and the individual and the small-group insurance market.

However, not all provisions of healthcare reform will benefit all Medicare beneficiaries and people with disabilities. For example, starting in 2013, the threshold for itemized deductions for unreimbursed medical expenses increases from 7.5 percent of adjusted gross income (AGI) to 10 percent of AGI. However, this is waived for individuals age 65 and older through 2016. Also in 2013, taxpayers will see increased taxes for Medicare. This includes a 0.9 percent increase in the Medicare Part A tax rate to 2.35 percent on earnings over $200,000 for individual taxpayers, and $250,000 for married couples filing jointly, and a new 3.8 percent tax on unearned income for higher-income taxpayers.

Social Security Disability & Medicare Help

Find more resources for people with disabilities and answers to questions about Social Security disability benefits.
Find answers to Medicare questions by contacting the Allsup Medicare Advisor®, which works one-on-one with individuals to help them choose the Medicare plan that best meets their needs or call (866) 521-7655.

ABOUT ALLSUP
Allsup is a nationwide provider of Social Security disability, Medicare and Medicare Secondary Payer compliance services for individuals, employers and insurance carriers. Founded in 1984, Allsup employs more than 800 professionals who deliver specialized services supporting people with disabilities and seniors so they may lead lives that are as financially secure and as healthy as possible. The company is based in Belleville, Ill., near St. Louis. For more information, Click Here. Visit Allsup on Facebook.

The information provided is not intended as a substitute for legal or other professional services. Legal or other expert assistance should be sought before making any decision that may affect your situation.

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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Invisible No More: Leeza Gandley

Through the project, Invisible No More! the Invisible Disabilities Association is bringing awareness, compassion and belief to millions living with debilitating conditions, shining a light on the “invisible” and making these valuable, incredible people Invisible No More!

This video features the story of Leeza Gandley who lives with Dysautonomia, CFIDS and other complications. Leeza was a student of Pharmacy (Pharm D. Program) and Medicine (M.D. Program) before she became sick and had to leave school before completing her studies. Leeza shared, “Now I utilize that knowledge in navigating the healthcare system — not only for myself, but also as a Patient Advocate for others.” Visit Leeza’s YouTube Channel, She Who Feels.

Learn More About Invisible No More TV Go to Invisible No More TV Channel
Join Invisible No More TV on Facebook Submit Your Invisible No More Story
Order Invisible No More T-Shirts and More Order Invisible No More Wristbands

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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IDA on Disability.gov – It’s All in Your Head

IDA Founder, Wayne Connell continues to be a very popular Guest Blogger on Disability.blog by Disability.gov.

This article, It’s All in Your Head, was Co-Authored by Jeff Vankooten. Jeff is an author and speaker who shares his battles and lessons learned from living with bipolar disorder. Jeff is also an IDA Executive Board Member.

Article Excerpt: “It’s all in your head!” What a familiar refrain for those living with chronic illness, pain or disability. Doctors, friends, co-workers and family often make this statement when they can’t “see” what you are going through or find a diagnosis. The invisible nature of many illnesses and disabilities creates an atmosphere of suspicion or disbelief, even by those who are closest to you. People may say, “It’s all in your head” to imply that the person is just making up or exaggerating his or her condition. … Read the entire blog here at Disability.gov

Leave your comments on the article and share it with your friends and family on Facebook, Twitter, LinkedIn, Google+ and by email below.

RELATED ARTICLES:

Jeff Vankooten’s Website

IDA Executive Board Member – Jeff Vankooten

IDA’s But You LOOK Good on Disability.gov

IDA’s Invisible No More on Disability.gov

IDA’s It’s All in Your Head on Disability.gov

IDA’s Looks Can Be Deceiving on Disability.gov

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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CEO of MasTec Helps Employee with Fibromyalgia on Undercover Boss

Jose Mas CEO MasTec Screenshot from CBS Undercover Boss

Jose Mas, CEO of MasTec, Inc. helped an employee with Fibromyalgia on the Undercover Boss show, which aired on May  11, 2012.

Jose found out one of his employees, Wendy, lives with Fibromyalgia. Wendy told Jose when he was under cover that she felt like she had lost her smile, due to damage from medications she uses for Fibromyalgia. Jose not only gave her the time off to get her teeth fixed, but said he was also willing to pay the full costs to get them fixed, no matter if it totaled $20 – $25,000.

Wendy’s husband also works for MasTec and she had shared with Jose that they are struggling with $30 – $35,000 in debt. So, Jose gave them $30,000 to pay off their current debts.

Jose told Wendy, “I am going to give you $30,000 so you can feel good about having your teeth done and don’t have to feel that is taking away from something else.”

Clip from Undercover Boss. Watch Full Episode.

About

The Invisible Disabilities Association (IDA) encourages, educates and connects people and organizations touched by illness, pain and disability around the globe. Formerly known as The Invisible Disabilities Advocate, IDA was founded in 1997 and incorporated in 2004 as a 501(c)(3) non-profit. IDA reaches out through our websites, projects, articles, pamphlets, booklet, social network, resources, videos, radio interviews, seminars, events and more! Get the word out! Share a link to our articles and pages with Google Plus, Facebook, LinkedIn, Twitter and through Email by clicking on the Share link. Leave a comment!

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